AAPM Task Force Asking National Pain Report Readers for their Opinions

AAPM Task Force Asking National Pain Report Readers for their Opinions

The National Pain Report strongly believes that the pain patients must be heard. That is why we often agree to partner with reputable organizations who are interested in “hearing” what pain patients believe.

One of our trusted partners is Beth Darnall PhD, who is a Clinical Associate Professor at the Stanford University School Medicine. She is working with the American Academy of Pain Medicine Task Force on Pain Psychology which is conducting a national needs assessment. Ultimately, the aim is to better connect people with pain with pain psychology resources. A critical first step in our national needs assessment is surveying people living with pain.

That’s where our readers come in.

Pain psychology is a treatment modality that seeks to empower people living with pain to better manage their pain by using specific skills and techniques. A pain psychologist is a therapist with very specific training and experience in the treatment of pain. In addition to learning pain management skills, in treatment you often learn about goal setting, problem solving, and overcoming barriers—skills that you use to improve your quality of life.

The AAPM understand that for this research to be effective, it needs the opinions and experience of pain patients.

As Dr. Darnall said about National Pain Report readers, “Our advance thanks to you for taking a moment to share your thoughts with us about pain psychology in this brief, anonymous survey.”

Please take the survey, which we have also posted on our website, so that the AAPM can gain your important feedback.

CLICK HERE TO TAKE THE SURVEY.

We will be reporting on the results of this survey in the coming weeks.

Thanks in advance for participating.

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Authored by: Ed Coghlan

There are 5 comments for this article
  1. Diane Succio at 6:56 am

    By signing up for these reports. I finally feel I am not alone dealing with Dr’s who think they are God. After 5 failed surgeries and a failed stimulator implant, my pain Dr now thinks a pain pump is the answer. Me I’m not sure as that is just another surgery. Leave my pain meds alone since after 2 years she finally put me back on the meds that actually work. The mg might need to be increased but at least I feel human again. Nothing can be done with the muscle spasms, but at least my pain level is hovering around a 7 instead of 9. Granted we in pain have a higher threshold than someone who is not in pain 24/7. Most people would be in ER for I.
    Again Thank You all for sharing your stories.

  2. Scott michaels at 3:42 pm

    I would just like to know who is fighting for the chronic pain patient. Wbo is telling the cdc fda prop that we are suffering . Im tired of writting in all of the comment boxes. I feel lile were just complaining to each other. If my meds go away i dont know what ill do. I do know many people arent as nice as me and they will end up on the streets or doing something stupid to get relief. The blame falls on these groups. If they choose to put millions.of people back in extreme pain, bedridden without any dignity, shame on them and may they all be forced to answer personally to each patients family jhere a family member commited suicide or turned to heroin and overdosed. When a person is starving he will steal to eat. When a person is in extreme pain he will do what ever it take to remove the pain
    Remember that! And be prepared for the tens of thousands on lawsuits coming your way. This is one time i am glad lawyers will prevail.

  3. Kathrine McAnally at 5:21 am

    Am I just wasting my time trying to explain what my life is like and how desperately I want an understanding of what I need from my doctors.
    Well, I won’t take much time with this until I KNOW I am being heard by anyone
    Chronic pain is cruel: it holds you hostage and it seems no one cares enough to help you escape to freedom; to life as you once knew it.
    Several health problems have have at varied times since early teen years kept me from having a full life. It is as if I am the donkey with the carrot tied in from of him: I keep trying, keep going because I do not want to believe I won’t get the carrot.
    I would for once like to hear the doctor say that I only have six months to live. That would mean that I know I am no longer looking at more and more years of pain. I am 64 and I thinking I have to live 20 or 25 more years is so overwhelming. The medical world has condemned us, judged us: they have put us in a box with those who are addicts. We desperately want to be taken out of that box and to be treated with the respect all patients should be given.
    Is anyone listening to us? Does anyone care? The medical world is failing us and taking all hope away from us. Why are we being neglected or our voices not being heard?

  4. Brian at 12:24 pm

    I did the survey. Not meaning to be a pessimist, but I hope it’s not going to spawn a narrow focus approach to pain that is screaming a systematic broad based approach.

    I’ve done self-hypnosis for 30 years off and on, learning from books, to deal with injury pain that was less severe until sixteen years ago. It did help! Emotionally and physically, it helped when my pain level was below 6 and I wasn’t terribly fatigued or stressed out by some issue – otherwise I can’t relax and concentrate. Now with Fibro as well as years of true chronic moderate to severe injury pain, I’m always fatigued so I tend to just lay down and rest as best I can. And until recently I’ve always been active! So I want to question, should pain be the only issue or is it the debilitating fatigue or some root cause of it all? Maybe the most important psychological factor we lack is hope.

    Even if it’s a given that the doctors behind this survey are concerned with just psychology to treat pain, what should be the focus of psychology for pain relief? Are you concerned with just thinking about how your body feels and how you react – like training yourself with bio-rhythms? And what is a valid expectation of pain relief from applied psychology, even if the only pain in focus is Fibro pain? The point is that there’s exterior stresses as well as internal issues that amplify our pain and our feelings of futility. For example:

    What about stress caused by doctors who don’t listen, or who demonstrate really poor judgement?
    What about stress when you go to a pharmacy and get treated like an addict?
    What about the stress from seeing that your social life is gone or personal activities you used to have are now beyond your capabilities?
    What about the futility we feel when we read and read and read, “go gluten free”, “take these vitamins”, “do these exercises”, “researchers find the cause of Fibro”, “new study” blah blah blah.. and then we see headlines like recently when name brand vitamins at major US retailers were proven to have a fraction of the quality and content that’s advertised? Or we read an article only to find the most superficial stuff regurgitated, offering no new information- not even the slightest reason to have hope for the future.

    If the focus is narrow, the next stress will be when people, with other afflictions as well as Fibro, are told “We are focusing only on people with Fibro because your other issues confuse the situation too much. Sorry but we can’t help you right now.” If I’m basically terminal, someone just tell me, straight up, so I can plan accordingly rather than struggle like this. And if I’m not, tell me why my desperation should be replaced with a hopeful feeling.

  5. LouisVA at 11:32 am

    I agree that Pain Psychology can be of benefit to people that have recently started their road down the chronic pain state; however, I’ve had chronic pain since childhood and am currently 65 years old and have learned coping skills over these many years.