Chronic Pain Cure? Medical Cannabis in Virginia and More on Exercise

Chronic Pain Cure? Medical Cannabis in Virginia and More on Exercise

We hope you had a good 4th of July. We found a few interesting tidbits on chronic pain that we thought you’d find interesting.

Research About Treating Chronic Pain

Some Danish researchers think they may have identified another piece to the puzzle of how to treat chronic pain.

The protein Sortilin could play a crucial role in pain development. Thus far, the research, conducted at Aarhus University in Denmark has been only on laboratory mice. Sortilin is a protein expressed on the surface of nerve cells. The study results believe that dealing with pain at the molecular level may stop the body’s pain development.

The patients have in common that they could fill a shopping basket with pain killers ranging from local anesthetic ointments to morphine “without ever really getting any good results”, according to Assistant Professor Mette Richner of the Department of Biomedicine and the DANDRITE research Centre, both part of Aarhus University.

The researchers hope that pharmaceutical companies will take the research and develop some data on whether it is possible to block Sortilin locally in the spinal cord, so that the neurotensin can move freely and “brake” the tendency to chronic pain.

Medical Cannabis in Virginia

In Virginia a moderate expansion of the availability of medical cannabis is now law. Thanks to legislation that took effect July 1st,  Virginians will be able to purchase regulated products that utilize the cannabinoids CBD and THC in a variety of formulas.

Oils, capsules, lozenges, patches, and lollipops are just a few of the ways that residents of the Commonwealth will be able to consume the regulated marijuana products.

In Virginia, manufacturers are not allowed to sell flower; the buds that are typically associated with smoking marijuana.

Low Impact Exercise for Pain

Patients struggling with chronic pain find it difficult to engage in exercises. Yet research shows that physical activities is one of the most effective treatments for many pain conditions.

Stanford’s Dr. Ming Kao, who is a pain physician and a PhD computational biologist ,writing in the Medium, emphasizes the importance of moving around, including basics like walking, aqua therapy and yoga and other low-impact exercises.

It is important, he says, for patients to be strategic about exercise, & invest the limited time & energy on sustainable, beneficial forms of exercises.

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Authored by: Ed Coghlan

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Peggy

Hello everyone I am also a chronic pain patient here in Calif.. I have a failed back surgery and have had chronic pain for 19 years now. The laws here are probably as bad as everywhere else. I was given methadone for the pain 17 years ago and it made it so I could keep working which I needed to do at the time. Then I was given xannax for the anxiety I had because of life situations. Well when I moved from Oregon to here in Calif the laws said I couldn’t take both so I stopped the xannax. I continued on the methadone for pain until I’d had enough of the pharmacy treating me like an addict. They were extremely rude and degrading and said they didn’t have to fill script it was their choice. Oh my doc was mad as heck.(I have filed a complaint with the state of Calif pharmacy board which is still under review) Anyhow I tried going off all meds and tried medical thc. Worked great for me but I didn’t want to do it permanently. Anyhow here you can’t be on a narcotic at the same time and I had to try oxycontin. It works good but methadone worked so much better but I didn’t want to be treated badly again. It’s so sad we are treated so badly for not wanting to be in bed or housebound every day. I never abused my meds but the name methadone has such a bad reputation everyone judges you. I was given a choice by doc t go back on methadone but am not going through the degrading I went thru before. anyhow just needed to tell a little of my story.

Karin

Dear Ed,
I am a chronic pain patient and have been for 18 years.
I live in Oregon and see a Pain Management Specialist every 28 days. I adhere strictly to my contract, have several urine tests and pill counts yearly, only get enough medication for 28 days. I have been tapered down to the “acceptable” govt amount of pain meds according to their pain chart (!). I got my prescription filled today at Rite Aid pharmacy and was told by the very kind Pharmacist that Rite Aid will be starting a new policy of not filling medications for Chronic Pain Patients. What can we do about this? Is this now the start of a pharmacy trend? Can we call Rite Aid corporate and express our displeasure? The Pharmacist has no further information but wanted to give me a “heads up”.
Please let me know what you and other think of this.
Thank you so much for all you do

Thomas Wayne Kidd

Pot dies work for me either. And it’s a big business and the government has it claws in deep. Let’s face it, we cannot expect the government to help us. Prayer is the only option for me and I recommend it highly. But remember God never rewards disobedience to His Commandments. Pray while disobeying His Commandments is foolishness, but people have been lied to for so long by the false teachers that millions believe that a head belief is all that’s necessary. Blindness, spiritual blindness has destroyed many people and if continues to do so. Suffering is much easier to endure when the Almighty God is on our side.

Thomas Wayne Kidd

I have a suggestion find a “Patients Bill of Rights” and start wearing it everytime you have a doctor’s appointment. And talk to them about what it says. You don’t have to be mean. Just remind them of what they have done to you and some 50 million more people who are suffering from Chronic pain. It can’t hurt and might get those doctors with hearts to thinking. I have discussed it with my doctor and actually got a 5 mg increase in my daily does. Seriously!

Voakley

I am one of the many pain sufferers that marijuana does not help. If fact every time I tried it, it actually made me feel worse.
Kratom has helped me about as much as 800mg of IBP, although I’m now seeing more improvement in some of my daily activities. Most of them are still side lined.
I have been a fitness competitor and a very active mom.
So yoga, exercise of all kinds have been a crucial part of my life.
Remodeling homes, landscape engineering and Activities director for the local center for the disabled are my careers that I’ve been able to do in my life.
I am now 48, no where near ready to say, “I must be mindful of my work and active lifestyle”.
Now it has come to a halt.
Yes, I do the yoga and deep meditation. I will not stop that, even though it causes me to now become depressed. Always a constant reminder of what I could still be doing.
A life on the side lines of your active family life and your own personal goals, to me is unacceptable. AND WORSE THAN THAT, IN THIS COUNTRY!
Many blessings to all of us!

Marguerite

A Facebook friend contacted me this morning saying she needed to tell me about something regarding another member of the chronic pain community. What she told me really made me mad. Apparently this other woman was seen in the emergency room she had too much serotonin and had chronic pain. Right now she’s been checked into a behavioral health hospital to treat her chronic pain. I can’t for the life of me wrap my mind around anyone saying yes to that. How is a mental health facility treat chronic pain? Brain washing and electric shock therapy kinda comes to mind and that’s really sad if that’s what we all can look forward to a week stay at the psyc ward. Everyday it just gets more outlandish. It makes me sick knowing that any society would treat fellow members like we’ve been treated. It’s open season on chronic pain in fact im sick of those two words. Chronic pain is a slow death sentence and shame on anyone and damn them all to hell those whose lined their pockets at the expense of our suffering and loss. Everyday im losing more of my life and sanity to under treated pain so someone can play politics with not just my life but for every life chronic pain ruins. For more money and fame these policy makers are playing God in how we live and even how we die. Im 52 years old and I all I can think of is when will I die and know not soon enough. The pain is getting the best of me. It’s a battle im losing everyday. It was all I could do to get a shower this morning it’s been a week since my last shower. I don’t have any purpose to exist any more. I just want everyone to know im fighting for my life right now and don’t want it to end like this. If anything should happen to me know that it wouldn’t have been like this if the CDC guidelines had never been written. I blame the authors for turning my life into the mess I’ve become. Don’t let them say I was a victim of the war on opioids!
Everyone us has a target on our backs and the clock is ticking on our expiration.

Max Beichert

Only one simple change to the CDC Guideline is needed, which unfortunately now would require amendment to the widely-adopted state legislation already based on the original 2016 version, and that is elimination of the “100 MME” prescription limitation that would remove politics from between doctor and patient. Let them keep all the rest.

Rebecca Hollingsworth

Medical cannabis is not the be all end all for pain. I was prescribed medical marijuana for sleep when the government decided that taking a benzodiazepine along with opiates was a no no. It was fine for years (and so was i) until the powers that be said they knew what was best for me, all of us. Personally pot does not help with any of my pain issues and I have no desire to stay “stoned” and not be present for the rest of my life. As far as exercise goes, when I was working, I was on my feet all day everyday, walking for miles. Now with severely reduced medications, I am able to walk or stand for approximately 15 minutes without being in serious pain. And knowing that the tiny dose of medication I have now is not sufficient by any means to relieve the pain I know I am in for a world of hurt that lasts for hours upon hours. What a sorry state it has become to live in the greatest country in the worszB46ld and be tormented with chronic pain knowing damn well that the medicine exists to end this travesty. We chronic pain patients don’t need to be told to exercise and how that would help us and make us feel better. Anymore we all do what we can, knowing the price to be paid for any activity. It’s a tradeoff and most often than not, the “reward” just isnt. Like many others, I went from a productive member of society to a drain on it. These guidelines need to disappear and quickly. I hope, like many others, that just once these decisionmakers, politicians, and yes doctors would have to walk a mile in our shoes. I guarantee that you would see the CDC guidelines disappear never to be seen again.

Hayden Hamby Jr.

As a twice spine surgery patient, metal plates, screws, a great deal of pain with surgery itself and still in 24/7 pain on various levels for decades, I soon realized soon after the last surgery I underwent after “heal time”, was completed, the surgeon expressed he could no longer help me with the pain management issues I continued to experience with more surgery. I was then put through the “normal” regiment of physical therapy, all non scheduled medications available, injections, infusions and finally put on a very effective dosage of a scheduled medication. It literally saved me from bankruptcy allowing me to continue to be gainfully employed for 23 years as a small businessman owning and operating a small building company. I also realized very quickly that a continuation of a manual labor job was extremely beneficial. Movement…..helped with pain management issues, however medication allowed me to continue to ….move. It just seems to me that with millions of patients WITH documentation of beneficial use of opiate/opioid medication, dot/gov is hell bent to not admit a mistake was made with the 2016 CDC “guideline” for opioid prescribing physicians and simply now claiming that the “guideline” has been misinterpreted as “law”. Then ….why is it so difficult for patients to get what we have been documented by our physicians as beneficial, and determined by them as far outweighing any harm by prescribing a tailored to the patient dosage of what has been the last, effective treatment for pain management with millions of closely monitored prescribing? Even with drug screening in many cases monthly, sometimes even unannounced, immediate drug screening? $$$$$$$!!!!!!!!! As far as a “cure” for pain management patients, ALL PMP’s……..when? How long? Will this treatment be effective for all patients? Many questions to a seemingly complicated issue but, for millions of patients that have used our medication “as directed”, here we are……still!

S.M.

I would be thrilled to be able to engage in “walking, aqua therapy and yoga and other low-impact exercises.” Unfortunately I am in too much pain to do more than lie in bed and suffer.

I’ll exercise when I’m prescribed an appropriate amount of pain medication, which will allow me to tolerate exercise. Until then, I’ll be home, in bed, in pain.

Extreme pain that plagues folks with CRPS very likely involves Sortilin. It can strike for no apparent reason. Hope Gordon of Scotland was in her PE class in high school, kicking around a soccer ball and got a minor bruise on the lower leg. It started throbbing and burning. A few hours later the leg began to swell and lose circulation. Her family didn’t have much money and she had to rely on Britain’s National Health Service, which like all Socialist schemes, hides the greed of the politicians and bureaucrats who run it, behind multiple layers of regulations that “protect” the ordinary citizens from “consuming too much health care”. It works sorta like our Drug War but more insidious, because it pretends not to hate any particular group of people. Hope went round for round with some bureaucrats at an agency called NICE, asking that her now-nonfunctional leg that did nothing but keep her awake nights with extreme, unrelenting pain, and was blue and cold to the touch, be amputated. The nice bureaucrats at NICE invented hundreds of nice reasons not to cut her leg off. The most imaginative was asking, “What if it spreads into another limb?”. She asked “What if cutting off the leg stops it from spreading into the rest of my body?”.

It took five years of pain and a social media campaign to get Hope the surgery. She’s out of her wheelchair and walks now, with a prosthetic leg and crutches.

Meanwhile we lack a sound scientific explanation of what CRPS is. How do normal nerves turn into painmaking machines that cut off blood flow to the affected limb? Understanding Sortilin will save lives. A Sortilin defect might be what causes CRPS.

Hard to be exercising when Stanford cuts your pain meds.

Glen

Drugs have created business opportunities in Rehabilitation. “Call us, we are here to help.(bring your check book)”. Media gets paid to advertise for them too. Media probably gets paid to “air” the sadstories of celebrities who have lost their kids to drugs.They want to feel better about themselves but really hurt people who had nothing to do with their child’s overdose. Seems like a parenting problem to me. I’m old I suppose. Anyboby hear remember Art Linkliter’s (spelling?) Daughter jumping out a window? (The LSD was illegal).

Glen

We HAVE effective treatment of pain! Opiates used responsibly are safe and effective. Prescribed drugs are not a leading cause of addiction, abuse or suicide. Most people were happy with cannabis laws as they were. No one was having trouble getting it, and police have backed off because a large portion of citizens use it. Legalizing it allows the Government to tax it.