Chronic Pain Discussion Set for Thursday – Are You Ready to Listen In?

Chronic Pain Discussion Set for Thursday – Are You Ready to Listen In?

The National Academy of Medicine is holding a listening session on Thursday February 13th beginning at 1:30 EST. We suggest you listen to the webinar—it promises to be interesting.

The Action Collaborative on Countering the U.S. Opioid Epidemic wants to better understand the state of chronic pain management, as experienced by different end-user and stakeholder groups. An additional aim of the listening sessions is to bring greater awareness to any intended and unintended consequences of recent changes to opioid prescribing guidelines and related metrics, as they pertain to the delivery, access, and coordination of chronic pain management and care.

This listening session will focus on the experiences and perspectives of persons living with chronic, non-cancer pain, including their experiences interacting with and navigating the health system. The listening session will feature a guided discussion with a panel of persons with lived experience. Our hope is to better understand the spectrum and diversity of experiences of those living with pain to identify key information needed to address existing practice and system-level gaps in chronic pain management.

This event—entitled Living with Chronic Pain: Perspectives from Persons with Lived Experience–will be taking place as a live listening session and will be covering 5 key discussion questions with panelists.

In order to meet the goals for this listening session and dedicate appropriate time for our panelists to share their experiences, there will not be an opportunity for live questions and answers. There will, however, be an opportunity for the audience to participate by providing their written responses to the panelist discussion questions through this form.

Here are the questions they’ll consider:

  1. What aspects of your (or your loved one’s) pain care are currently working well, and what aspects are not?
  2. What successes and/or challenges have you experienced in accessing and receiving pain care, including complementary, non-opioid treatment options?
  3. What sources of information do people with pain (or you) use to learn about their (or your) pain management?
  4. What are the critical messages you feel need to be communicated between healthcare providers and patients and families regarding pain care?
  5. If you had a “magic wand,” what would you change in the health system to improve care for people with pain?

Listen in…and share your opinion not only on the discussion but how you think your point of view was represented in the conversation.

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Authored by: Ed Coghlan

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Ann Sable

What is so stressful and creates more pain is having to have these discussions over and over again. Keep repeating yourselves until you are blue in the face…just like the alphabets. The only difference is, they can’t get tired of it due to already having such things printed up. If they did do any work to their letters, it’s just rewording them. A wand…yeah, if we all had one to change such things, from what I have read and feel myself, I’m pretty sure it would be used against such people that havent the concept of the words, “real pain”.

Donna Hill

Trust the alphabets again? No way in hell.

Jill

How could there be unintended consequences from taking pain medication from sick people who successfully used it to ease their pain? Unless the unbelievable arrogance of non-chronic pain academics who believe their superior brains simply know better resists the notion that chronic pain does not equate with stupidity. It is sad to think people are actually paid money to conduct these useless sessions.

The wand would:
1. Remove arrogance from doctors
2. Include more than one pain area to multiple area if needed in pain management practices
3. Stop, forced physical therapy if Patient Hasn’t benefited. It has to be the patients choice.
4.stop being rude & harassment Toward patience
5. Increase opiate dose
6.stop the long waits to be see
7. Make it Illegal for a doctor to abandon the patient.
8.stop the forced injections, if patient doesnt want any

Trmott

Joanne asks how to sign up. First click this link in the article: The Action Collaborative on TheCountering the U.S. Opioid Epidemic. On the page that comes up click on “EVENTS”. Near the top of the list of events is this one on Feb 13. Click on it and follow the instructions. It’s kind of laborious but I got to where it says, after I “registered”, that more instructions will be provided via an email to the address I provided.

Thomas Wayne Kidd

With the magic wand I would zap em all in one week of daily chronic pain without any opioid pain medications. Perhaps some of them would actually change their deluted minds.

Thomas Wayne Kidd

More insanity!

Alan Edwards

The commentary expressed here on NPR has provided metrics for the academia to study ad infinitum. We Intractable pain patients are suffering. Mistreatment and undertreatment are the norm.
NPR seems to be moving to the dark side- endless discussion and surveys. You have a wealth of Intractable pain data from we the readers whom you seem to ignore. Our pecking on personal cells will stop one day, but the pain is permanent. Medical academia aligned with unelected government entities have created a disaster for the sick and dying. They need to “listen in” to we intractables for a change. THE CONTROLLED SUBSTANCE ACT AND THE VILLANOUS DEA NEED TO BE ABOLISHED. The 2016 Illegal CDC guideline will then be nullified. But the damage and death it has caused cannot be undone.

Elizabeth Rogers

I responded to the online questionnaire. I’m not overly optimistic, but I HOPE it makes some difference for all of us.

Joanne

How does one sign up for the Webinar?

Jen

Really? Pacify the ignorant patients with another conversation, they fall for it every time.

Steven

WHAT? They not only knew but this was planned. Get rid of sick otherwise we would not be having mass causality and 3 years of suffering contuinuing on and on 90 mme would not get a fly high let alone treat real pain. Also, this audience already knows. The government is the only people who can change this and they not listening. Let them feel 2 minutes and you would see change! Sublo cde to treat a 20 year progressive progressive serious chronic diesease?

Dianne M

From the article I read the other day, aren’t they the ones who started it all?