An Indianapolis woman is leading a group of chronic pain patient for a two-hour event in front of the Centers for Disease Control Office in Atlanta on Friday June 21st.
Johnna Magers says that patients—some of whom who will be in wheelchairs– from Texas, Indiana, Kentucky and Colorado are already planning to go.
The group is called Chronic Pain Warriors Unite for Our Right to Pain Management.
The idea she said is “we want to educate the CDC” about the impact its Guideline for Opioid Prescribing for Chronic Pain has had on patients.
In April, CDC issued a statement that stated that some policies, practices attributed to the Guideline are inconsistent with its recommendations. Here’s the media statement.
But for many pain patients that moderation was too little too late.
Magers has been promoting the event thanks to number of Facebook pain groups and others and says there’s understandably lots of enthusiasm for the getting more visibility for the chronic pain patient point of view.
The Facebook page for the event is CDC Protest for Pain Patients. As the Facebook page says, “We will have an assembly peacefully to show our dissatisfaction of the CDC 2016 guidelines that have affected millions of lives.”
In addition, she has what she described as a 40-page list of chronic pain patients who have taken their lives in the last several years and will have some cut-outs to commemorate them in their line of protestors in Atlanta Saturday.
Magers is a 50-year old woman who has battled chronic pain for 15 years—at times the pain was so debilitating she could barely work. “I know that I’m going to need pain medicine for the rest of my life.”
The group—which has already secured an assembly permit–will gather at Clifton Road and CDC Parkway in Atlanta. The event will also be live streamed on social media.
Magers wanted to give credit to a number of groups that have been supporting this effort including Pain is Pain, Chronic Pain Voices, CCP News Source, Chronic Pain Support-Pain Doctor.com, International Support Fibromyalgia Network, Adele Faba Foundation for CRPS/PAIN, Refugees of the Opioid Crisis, Don’t Punish Pain Rally Organization, Chronic Pain Patients Lives Matter, United in Pain, Pain in the USA, Pain Patients United Community, Chronic Pain Management Forum, The National Pain Report, PAW Pain Advocate Warriors, Richard A. “Red” Lawhern Ph.D., Steve Ariens P.D.R.Ph., Leah Houston, M.D., and Arnold Feldman, M.D.
Magers is looking for more people. If you want to find out more about the event or contact her directly, email her firstname.lastname@example.org or visit their Facebook page.