Chronic Pain Petition to President Obama Launched

Chronic Pain Petition to President Obama Launched

By Ed Coghlan

When U.S. Pain Foundation Founder and President Paul Gileno wrote an opinion column about how the pain community could get organized, it started a pretty robust conversation.

Those words have led to action

One of Gileno’s own pain ambassadors, Jeannette Rotondi put together a petition that calls upon President Obama to allocate a portion of the $1 billion directed toward the opioid abuse epidemic to help the chronic pain pandemic, through funding for improved prevention, treatment, research, provider and patient education and public awareness.

If you want to sign the petition, you can do so here. You should distribute it to others in your group via email or social media if you desire

This is our moment to stand as one, to be unified and to make the change we need, the change we desire and the change that is right,” Gileno said.

U.S. Pain Foundation hopes that 100,000 signatures can be gathered in the next thirty days to make a powerful statement and take what it calls “tangible action” about the need for recognition and action about the plight of the chronic pain patient.

“It is important for people with pain to speak up. We are so proud of our ambassadors, and any individual with pain, who uses their voice to generate positive change for the pain community,” Gileno told the National Pain Report.

Chronic Pain is a major health problem in the United States. According to the American Academy of Pain Medicine, 100 million adult Americans have chronic pain conditions, not including acute or pediatric pain. Pain affects more Americans than diabetes, heart disease and cancer combined. Pain costs society at least $560-$635 annually, equal to $2,000 for everyone living in the U.S. The total incremental cost of health care due to pain ranges between $261-$300 billion and $297-$336 billion due to lost productivity.

Gileno also told his U.S. Pain Foundation in an email over the weekend, “Additionally, look for more action items from U.S. Pain over the next few days regarding making change for all of us in the pain community.”

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Authored by: Ed Coghlan

There are 35 comments for this article
  1. BL at 10:44 am

    Contacting the media is a great idea. But, there is something that I want to mention. Hopefully this won’t happen to anyone here, but it is best to be prepared just in case. The media will often take something that you say and divide it up so that when others see it, the context is changed from what you meant. They can take one sentence and put part of the sentence in one place and the other part of it in another place. What happens is the words you are quoted are the same, but the meaning is changed to benefit the way they want the story to appear.

  2. scott michaels at 7:33 am

    if they actually print your story please highlight your portion, copy and paste to face book and send to local tv.stations as well. Capitalize on any media coverage you get. congrats !

  3. L at 1:29 am

    I contacted my local newspaper to see if they were doing any stories on chronic pain and what is happening and they weren’t but I talked to the reporter who was doing a story on abuse of course. She had doctors and 2 drug addicts 1 heroin and 1 pills of course, but now she is going to add my story to it so it will have a chronic pain patients point of view in it and is supposed to come out in our paper the end of this month. Now if everyone called their local newspaper odds are they will be doing a story about the addicts but think if everyone of those stories also had the story of a chronic pain sufferer in it too. We would at least be getting info about us in the paper. I wish it was only about chronic pain and what we are suffering but maybe that will get someone to look into our side and do more stories about just us and what is happening. So CALL YOUR NEWSPAPERS TRY TO GET THEM TO DO A STORY OR ADD YOU INTO THE STORY THEY ARE ALREADY DOING. MAYBE THEN A BIGGER PAPER WILL PICK IT UP.

  4. BL at 9:26 pm

    Deb Moore, did you ask the media to tell your story and give them your contact info ?

  5. scott michaels at 6:24 pm

    Hello… writting does nothing. the only thing is to inform groups of people in every major city and protest these actions. THAT IS THE ONLY WAY politicians and MEDIA WILL TAKE NOTICE

  6. scott michaels at 6:22 pm

    the cdc did this at the request of the potus, without any regard for the actual patients. The liberals have gone too far. Because of those poor junkies and addicts lets take all pain relievers off the market and we will stop the heroin problem. the pain patients who are they. they wont do anything theyre just lazy addicts. IS THIS GOING TO BE ACCEPTABLE TO US?

  7. Deb Moore at 10:04 pm

    So I had what I think is brilliant idea last night. We are part of the casualties of the herion epidemic. I wrote to a local new station asking them to please do a story on what it has done to us. They keep doing these stories about what herion is doing to society. Well look at what it has done to chronic pain patients. The media seems to be a huge part of our problem. I don’t know if someone will actually decide to do a story but at least I’ve put the idea out to them. Maybe if enough of us suggest the story someone will finally decide to run with it. I have to try to find something to give me hope.

  8. Dave at 6:26 am

    This petition calls for trusting a President and an administration that has failed people in pain to continue to fail people in pain. The President and his administration can’t get pain care right. He has had 8 years to do so- what great progress can the President and his administration brag of regarding pain care? Has he lowered the prevalence of any pain condition? Are people in pain more satisfied with their care then 8 years ago? How many people were returned to work due to the Obama administration. How bout the out of pocket expenses? Clearly, the President and his administration have failed people in pain- essentially they don’t really care about people in pain. This petition begs the question- if the President and his administration cared- why haven’t they adequately funded pain care(or pain research.
    I say we would be better served by calling for new players- a new administration that cares about people in pain. That would be better then throwing money at an administration that doesn’t care about people in pain.

  9. Kristi Martin at 6:34 pm

    I have lived with chronic pain since 2003. I was a single mom to a 7 year old. I was an RN and was able to purchase my own house at the age of 24. I woke up one day with terrible pain, swelling and redness is my knees and hands and I have never been the same since. I lost everything I had worked so hard for to provide a good life for my son. I have been given a ton of misdiagnoses. With all of my research I finally found out that me and my son have Ehlers-Danlos Syndrome. My son has Chiari 1 Malformation of the brain but has not had to endure surgery. I also have Dercums Disease which is terribly painful. I didn’t ask to have these genetic issues. I didn’t ask for my son to also have these genetic issues. What I do know is the real pain that it comes with. I now live off Social Security which is really no income at all. I can’t afford to pay my bills, prescriptions, food or anything extra. I’m only 41. I do have a wonderful Pain Dr. and Internal Medicine Physician. I’m lucky to also have a wonderful mom and pop Pharmacist. I am on long acting Morphine Sulfate 30mg and Morphine 10mg 4 times daily. I am also on several muscle relaxers. My issues are that I am a fast metabolizer of medications so I require a lot of meds daily. But with these new insurance changes I’m unable to get my Marinol, which I take for severe Gastroparesis,unless I have an Administrative Hearing due to my insurance company denying every appeal. I’m unable to get Lidoderm Patches that help so much. I feel for these Physicians that are being heavily monitored by the DEA et al. They are under a lot of pressure. I don’t go to the ER as they don’t treat chronic pain patients very well. There have been a lot of lies passed around to the media. A majority of true chronic pain patients do not turn to heroin. I hate that stigma that is placed on us. The government needs to know that we are not addicts. We are dependent on these meds. Do we go through withdrawals like an addict….yes. Do we crave opioids like an addict….no. That is the difference between chronic pain sufferers and addicts and the government needs to recognize this difference.

  10. Tracey at 4:55 pm

    Shine on, you nailed it with your comment. I now know of 8 suicides directly related to untreated pain, 1 massive stroke (now on life support) due to neurologist cutting his patient off cold-turkey (patient was in horrible withdrawals, was vomiting, passed out on floor, inhaled vomit into lungs and is now in coma due to massive stroke), and another death due to a doctor cutting patient off cold-turkey. This is all within a 2 month period. Chronic pain forums are full of people who are in pain and NOT getting their pain adequately treated (or even treated at all)! I never dreamed our own government would do this to so many who are already vulnerable due to their chronic illnesses, but it’s got to stop. (Thank you for posting the survey. We’ve got to get our stories out to the media, write, call, fax, e-mail state and federal reps, your state governor, ACLU, and anyone else you can think of!)

  11. Deborah Somers at 2:44 pm

    I’m living with fribomyalga in my whole body I have arthritis in my neck back hands and knees I have to work my husband is disabled and can’t work if I don’t work we will be living on the street I have family but my daughter lives in Georgia I can’t pick up and go my I take alot of different med if I don’t have them I can’t work I have a hard time going to work with them I call out alot because I’m in so much pain I can hardly get out of bed or I’m so exhausted I can’t move it hurts at times to even shower I so wish I was not like this I love my job I pray to God to please take me or help me

  12. Danyce at 2:39 pm

    I am a chronic pain patient as a result of three car accidents. None of them my fault. I’ve been treated for pain since 2009. I’ve had many spinal procedures (rhizotomies 4x a year).
    I was given oxy just this last year, and now feel I can live a somewhat comfortable life.
    I’m commenting because I see so. Many are blaming the POTUS for regulating (wanting to take away our opiate pain meds). And want to make something clear. The CDC is the org that recommended more control of opiates. NOT the President. Obama’s statement was clear. He wants to make sure the CDC’s recommendations DON’T HARM THE LEGITIMATE PAIN SUFFERERS.
    We are petitioning the administration so that our voice will be heard, and we won’t be lumped in with the abusers. President Obama seemed quite sincere when he made his statement.
    Just wanted to clear that up.

  13. Jean Price at 10:06 am

    Not at all sure why my previous comment wasn’t posted, except I did disagree with this petition. Hopefully it was a system glitch and not a refusal to look at opposing sides of the issue! I think this petition is a mistake on two important fronts…the biggest one being we are asking for part of the funding allocated for drug abuse! Isn’t that like saying…yes, our problem with pain is like drug abuse?! We do need research, but we need our own funding, not a tag on to addiction funding! Once again, it seems “we” continue to support the idea that addiction and life with pain are related! If we want our government and the public to stop doing this…don’t you think we should lead the way? Asking for separate funding to be dedicated and designated for research into chronic pain treatment would be so much more appropriate. My second line of concern is what Dave has already mentioned…a petition for funding must have specific goals and accountability for the money being assigned and also be directed toward who would get these funds…private research or other areas outside of government or the same agencies who have already failed us.! Can you imagine the CDC getting this funding? What would they do for us…since they don’t seem to understand the problem, and have in fact been working against us! The idea of continuing to do more of the same is frustrating to me! Individual talks, petitions,letters and phone calls only go so far. I believe often those making these contacts are viewed as the exception rather than the rule, and therefore the stigma remains as strong as ever.

  14. Deborah at 9:39 am

    You feel like if you could just put in words your thoughts, feelings, and anger that somehow you could make people understand what your life is on a daily basis that they just might get it but in your heart, you know they won’t. I have dealt with the stigma, so I keep it as my little secret. I have dealt with holding back, because if you tell your doctor everything, you fear he may view you as an addict, but I don’t know how an addict acts. I have dealt with the disappointed look on my 7yr old face, the little face I promised from day one that I would never disappoint, when I have to tell him that mommy just can’t, she is having a bad day. Most of all, I have dealt with the pain. The people that sit behind a desk and make up all the restrictions can’t possibly know what it is like to spend a day with my pain and know all the sadness I face because once, life was full of joy and worth living. Now you stay behind that desk and you tell me that my life isn’t going to get better, it’s going to get harder.
    For those out there that choose to abuse your medication and those who view it as extra income, this is the mess you have made. The majority of you probably never suffered a day of real pain in your life but you have definitely made others suffer due to your bad decisions.
    I always thought, you have a voice, use it and you will be heard. I don’t think we are being heard because each time I check, the hill is getting steeper. I understand that there has to be safeguards in place but the real people out there that are truly suffering feel like there is no end in sight. I have to say, I am honestly afraid. How many more tests and requirements can we meet just to prove worthy of our medications because it would truly be inhumane just to stop manufacturing the medication all together but when do they stop is what I want to know?
    I have suffered from chronic pain for over 19 years. In the past, my pain was manageable. Now with all the new regulations and guidelines, I couldn’t tell you when was the last day was that I really enjoyed life. Creating all of the new guidelines has just created chaos for chronic pain sufferers. Hitting our wallets has always been an issue but now they are taking a swing at our quality of life and I’m sorry, but until you really know how miserable some of our days can be, leave it alone!
    So many mistakes have been made along the way. I didn’t allow all of the pill mills to pop up nor did I put a pen into the dirty doctors hand to write those prescriptions and over prescribe those patients but I can definitely tell you that I feel like I’m paying for it.
    Look, I suffer from chronic pain, why do you have to make my life so much harder? The way I see it, we may be inching forward with a few wins here and there but it definitely looks like the government keeps winning in the end.
    There is my voice. I found it for a minute but somehow, I don’t think it is going to make much of a difference in the big picture.

  15. Deborah at 9:00 am

    I really just don’t know where to begin. I have been in chronic pain for 19yrs, almost half my life. This is no way to live. People that don’t suffer from chronic pain are on the outside looking in and they don’t have a clue. Some people view me just as they would a heroin addict, on the streets, with a needle in their arm. The stigma is horrible. You feel ashamed when you walk into your pharmacy to fill your prescription and you feel like you are getting “that look”. You know the look, the one you get that makes you feel shameful and embarrassed. The stigma is what you think about before you mentioned your medication to your friends or family. If I’m tired or maybe a little nap would be nice, you hear ” the talk ” The questions automatically lead to, “Are you sure you aren’t taking to much medication?” Then everyone wants to tell you a horror story involving a friend of a friend and opiates. So in my case, I feel like it is my dirty little secret. I don’t let friends or family know I have to rely on opiates. I usually go to my pharmacy when it is not full of customers. I hate all of this. I feel like I should be ashamed but ashamed of what? Ashamed of the fact that my body is filled with pain from 3 horrible car accidents, an 18 foot fall onto a concrete floor which immediately snapped both arms and shattered my hip, or maybe ashamed of the fact that now arthritis has set in throughout my body? I don’t know but society has put that shame in me.
    Now we move onto another situation that I’m sure you have all been in. Having to discuss that relentless pain with your Dr and he quickly dismisses you like the pain doesn’t exist or it can’t really be that bad. Here comes that shame again. You feel like if you are honest with your Dr and you tell him that the pain meds aren’t working so well, you feel like you are going to be viewed as an addict or worse yet, he may stop prescribing, but if you don’t say anything for fear of his reaction, you are left in the same position, with a lot of pain. My primary care physician was prescribing my pain medication. I had just reached a level to where I was comfortable and was able to function and be a mother to my 7yr old son. I was beginning to see life differently once again. Then one day I walked into his office for my my monthly appointment and there sitting was another physician I didn’t know. I never found out what happened to my primary care physician but very quickly the new physician decided that with my chronic pain condition, I needed to be sent to a Pain Management Clinic. Everything went downhill from there. On the first visit I was told that they had limits on what they could prescribe and immediately cut my daily dose in half. I meet all my requirements. The monthly drug testing, the outrageous co pays, and the long drive several city’s away. Just for a short period of time before being sent to the clinic, I had a taste of what life could be like. I had actually enjoyed for it for a change. I was able to take my son to the park and on walks. Housework wasn’t such a painful ordeal and I even volunteered at my son’s school 3 days out of the week. Now I am back in this dark place again. This is all because of the restrictions and the people out there that choose to abuse their medication and se

  16. Angela. Moranor at 7:10 am

    I. Am. Living. With. The. Following:Chiari. 1. Malformation , Dystonia, thyroid, asthma,,migraines, high blood pressure,anxiety,depression, arthritis,scoliosis, bone. Spurs, oozing disk, sleep apnea had. Tree. Strokes. As. A. Result. Right foot. Turns. Inword. And. I’m. Walking on a. Cain. And. Have. Wheels Chari,restless. Leg. Syndrome,heart murmur,low heart rear,herniated disck. So. Yes. I. Live. With. Chronic pain. And. Still. Take care of my. Family. When. They. Are. Not. Taking care of. Me.

  17. Pamela B. at 2:49 am

    I don’t know why you would not be able to go into the court of Appeals in your state and file an injunction against your Dr. and your state providing you have documentation that you have passed all you UA’s and such and have tried all means possible that have failed or made your condition worse. Let it be on your Dr’s, the courts, your psychiatrist who but yourself hands to get it where you have the right to take what ever medication does the means to make you a more viable adult. I am going online tonight to get my paperwork started. Obamma mamma may think he has all this power and shit but it’s up to you state to determine the final decision in this war of drug abuse. I am not an abuser of drugs if I didn’t have them I would most likely be dead. I have the what they call the suicide disease great in my legs and low back I can hardly walk now I am 47 with my drugs I don’t need my wheelchair without my drugs I am in bed ashamed of my wheelchair. So they took 1/2 pills away from well CO government is going to be hearing a lot of briefs and statements from me and I am going to get ready for the trial of a lifetime! I am a person with rights too and I plan to use every right I have. I up 7 days a week and sleep only 4 hrs in that 7 days because my pain is a 10+ always and I did not do this to my self my job did this to me and fought my WC claim and won. So this dear state of CO has paid over a million just to keep alive because of this disease. Ironic huh.

  18. S.T.G. at 11:14 pm

    This is a very sad and scary thing. My life changed dramatically 7 years ago. I was diagnosed with something that I had never even heard of. And I had to have 2 Brain Surgeries and 2 Spinal Surgeries for! I still need another spinal surgery. Each surgery has left me with more pain. It’s too much to function. When I wake up it feels like every bone in my body is broken. If it wasn’t for these pain meds I wouldn’t be able to function at all! What’s worse is that 1 of my children inherited 2 of these disorders and had to have the Brain Surgery at 12 years old! If they take away our ONLY MEANS TO LIVE A LIFE WITH ONLY TOLERABLE PAIN. ..WHERE WILL WE BE? Noone can live in CONSTANT SEVERE PAIN 24/7. Imagine a life that every single thing you do puts you in the bed crying because you dont think you can take anymore pain. And im talking about simple things like taking a shower, using the bathroom or helping your child when they need us. I pray they research and base the medication given to EACH PERSON and their HEALTH PROBLEMS, instead of treating us all like we are drug abusers. I beg you to please think of US…the ones who aren’t abusing medications and need them to help us live our lives to the best of our ability. It’s so scary to think what if my child is in the same amount of pain when he’s my age? What will happen to him? THIS IS A HUGE DECISION AND MANU LIVES DEPEND ON THE OUTCOME.

  19. Jean Price at 8:16 pm

    I’m not at all in favor of having some of the money dedicated for drug abuse and addiction “allocated” for chronic pain! Doesn’t that seem a little like agreeing we are part of the problem?! How about asking for like funds for another completely different medical emergency?! That of hundreds of thousands of people living lives with pain! People with chronic pain need all available resources for treatment including opioids! And as Dave said, unless there are parameters to dictate the the dispersal and the accountability, this will be lost funding! I can see the CDC getting ahold of these funds…and then where we all be? Meditating our hearts out in pain?! Or worse… I think petitions end up being a weak strategy unless it is fully planned out how these funds would serve the pain community. There have been many other petitions and they really haven’t proved helpful in resolving the core issue…which is chronic pain being lumped in error with drug addiction. To solicit part of their funding would be a big mistake in my book! Petition for additional funding for specific health care institutions and research facilities outside of government agencies. This then might be an avenue of help. Otherwise, it says, hey we should get some of that addiction money too since we take opioids! There is enough of this mindset to fight! Don’t join them!

  20. Michael H at 7:39 pm

    the reality os that they should jjust leave us alone! For those that have chronic pain and have been taking opioids for over a year without and signs of dr shopping or abuse of medication should be grandfathered in. PERIOD! AT TGOS POIT I HAVE TO SAY I CANT WORRY ABOUT NEW PATIENTS. IF THEY MNEVER GET THE RELIEF WE DO THATS A SHAME, HOWEVER SINCE THEY WONT KNOW ANY BETTER THATS THEIR WORRY. THOSE 20 MILLION OF US THAT ARE BEING PERSECUTED SHOULD BE ABLE TO CONTINUE OUR MEDICATION WITHOUT INTERRUPTION. AT THIS POINT THAT IS THE ONLY COMPRIMISE THAT COULD MAKE BOTH SIDES HAPPY.
    HMMM A SOLUTION WHAT A NOVEL IDEA

  21. Angie H. at 7:25 pm

    I have seen this petition several times on several different groups already. I have not signed it for several reasons. One., its not clear on where the money is to go. Two., who is going to benefit from the money. Three., nowhere does it state that the chronic pain patients deserve the medications they are now being denied. Four., they have lumped everything into one category of “Drug Addiction”, that is false and needs to be corrected in every direction out there.

    I am not a drug addict. I am forced to take medications to function day to day at any level because of something that was not my fault. I live with what is known as the suicide disease or Complex Regional Pain Syndrome. Its been out since the civil war yet no research is done on it. It destroys lives, the pain is constant, just like so many other disorders, yet we are all labeled drug addicts. I hate having to take the meds. I am scared of the addiction possibilities. Most of us are that have to take them just to function.
    Make these petitions clear, make them understandable to even the most ignorant of people. Maybe then something will be done. Until then we will continue to suffer because everyone else is to blame but the ones that are causing the actual problem. A drug addict will find anything to take, including rubbing alcohol, paint fumes, glue, and what ever else they think of. They will steal, rob, beat up, and do things they normally wouldn’t but yet we are lumped in the same category.
    You tell me what the difference is.

  22. Jeannie mcqueen at 7:11 pm

    Why are we treated like this? I am in constant pain. I sit almost every day thinking am I going out back behind the garage and end it today. I can’t even get what I need now to stop the pain – I just get ignored and they say more injections. how is it the government gives needles to addicts – what is this ****? what can we do? I want to live and be with my family but I sit alone in pain because a dr can’t give me pain Meds cause the government says so. so sick.

  23. Sheri Lynn at 6:07 pm

    I HAVE TO AGREE WITH Rk (above). THIS PETITION DEFINITELY NEEDS A WHOLE LOT MORE PUT INTO IT…ALONG WITH ALL THE DEATHS OF PEOPLE BEING TAKEN OFF THEIR MEDICATION TO GO “COLD TURKEY” i.e. My Own Cousin. He was going through Withdrawals, threw-up and inhaled it, his blood pressure sky-rocketed, and he had a massive stroke! Doctors put him in an induced coma, he is on life support, and IF he lives, he will be a Vegetable. REALLY. The Doctors know about the “Cold Turkey”, BUT, they are insisting to put Stroke on his Death Certificate if/when he passes away!!! WTH. WE ALSO NEED A CLASS ACTION LAWSUIT FOR Cruel and Unusual Punishment, Pain and Suffering, the Horrible Treatment of Our Veterans, Death, The Money they make off of us, and I’m sure there is much more to be said of what this has turned into. PLEASE WATCH THESE FLORIDA NEWS REPORT: http://www.wesh.com/health/state-of-pain-special-part-1/32152120 http://www.wesh.com/health/stateofpain. AND, http://www.wesh.com/health/state-of-pain-special-part-3/32152080. THERE ARE 3 PARTS HERE. WE NEED TO LAY A WHOLE LOT DOWN ON OBAMA AND THE DEA FOR WHAT THEY KNEW THEY WERE DOING TO US. I WAS ON THE CONFERENCE CALL WITH THE CDC BACK IN JANUARY. THEY WERE TOLD SO MANY TIMES THAT THEY ARE LUMPING ADDICTS WITH PAIN PATIENTS. THEY DON’T CARE. IN THE MEDICAL COMMUNITY, IT SAYS: Tolerance, Dependence, and Addiction. DEPENDENCE IS NOT ADDICTION. WE DO NOT SEEK OUT MORE MEDS TO GET HIGH. THE GOV’T IS MAKING MONEY ON HEROIN, AND THEY WATCH IT COME ROLLING IN THRU OUR OPEN BORDERS. WHY DON’T THE DEA DO THERE JOB AND STOP THAT FROM HAPPENING, AND LEAVE US ALONE. WE HAVE DONE NOTHING WRONG TO DESERVE THIS STRESSFUL BULL****. ALSO, STRESS MAKES OUR CONDITIONS MUCH MUCH WORSE. I’M AM DISGUSTED.
    THE DEA WORKS FOR OBAMA. THESE ORDERS CAME FROM THE TOP. OH! AND WHY IS THE GOV’T STOCKPILING PAIN MEDS??? I SAW IT ON THE NEWS LIKE ONE TIME. ALSO, NOW THE NEWS IS REPORTING THAT THERE IS A SHORTAGE OF PAIN MEDS??? OBAMA IS GONNA LEGALIZE POT. THAT’S JUST GREAT. I’M NOT GONNA TRY TO DRIVE A CAR “HIGH”, AND WHAT KIND OF MESSAGE IS THAT GOING OUT TO OUR CHILDREN??? HE WANTS EVERYONE TO WALK AROUND IN THE CLOUDS. THEY ARE EASIER TO CONTROL. EVERYONE SHOULD STOP AND CHECK OUT HITLER AND HOW HE WORKED HIS MAGIC. OBAMA IS SO CLOSELY SIMILAR TO HITLER YOU WON’T EVEN BELIEVE IT!!! AND NOTE HOW HITLER TREATED THE DISABLED. i want to know EXACTLY what is going on. My email does not work. If ANYONE want to Contact me for anything, you can message me on FaceBook at Sheri Lynn (Detroit, MI.). Start Praying Everyone!

  24. Chloe at 6:01 pm

    A petition is good, but why didn’t it mention the glaring problem with opioid access?

  25. Pharmacist Steve at 5:15 pm

    IMO… Obama is packing his bags and heading for the front door.. He is on a victory lap of his “accomplishments”…. remember “change we can believe in”.. Once the Republican convention is over July 21th and Democratic July 28th… all those up for re-election (435 from the House and 33-34 from the Senate) will kick into high gear for the Nov election. The unelected bureaucrats will be left to run the government until the new Congress in Jan. If you remember in the last 6 months there was a petition sent to Obama/White House with 135 K – 150 K signatures called for the head of the DEA to be fired or resign because of some stupid statement he made… And the reaction to that petition – NOTHING VISIBLE… A email/fax campaign to the Republican or Democratic candidate after the conventions may get the concerns of the chronic pain community part of the public election discussion. At the recent National Rx Drug Abuse and Heroin Summit in Atlanta Obama basically stated that there was no difference between addiction/abuse and physical dependency of legal opiate use… and this administration is finally recognizing that substance abuse is a mental health issue… It is highly unlikely that this administration’s opinion that all use of opiates is a “opiate use disorder” is going to change.. Trying to get this administration to change at this point in time you may have better chances of winning a Kobayashi Maru test

  26. Kathy Chancey at 4:05 pm

    I’m on Oxycodone 15. Been on them for years. The pain from Fibromyalgia, osteoporosis, osteoarthritis, Moderate RA, Chronic Fatigue syndrome im on Oxygen. Never smoked in my life. I have no cartledge in my right knee. It is bone on bone. This is the only Opide medication i take. I take other medicines but they are not the pain medicines it sounds like the President wants to control. Sometimes people have a hard time getting there pain medicine because people are abusing it. Like street drugs. Walk in our shoes one day see how we all feel….😢😢

  27. Jeff at 3:47 pm

    Mess with regards to my pain Obama already made me loose my Insurance i had to pay for my own Pain Medication I fractured my neck and had surgery to my back the pain is real. I will fight .

  28. Alta hanlon at 2:23 pm

    The problem here is that limitations are being placed on opioids without first providing something in its place that is as good or better that doesn’t require monthly trips to the doctor for a new prescription plus drug testing. Action without considering the reaction….not the way to go. I guess they were being pressured by families of addicts to “do something” so they did.

  29. Heather Cissney at 2:01 pm

    I just want a little relief

  30. William at 12:47 pm

    This petition isn’t clear as to what it’s intending to achieve. The language is vague. What is improved prevention? Is that another term for placing chronic pain patients who use opiates into the “addict” category. Rewrite with more detail what you are trying to achieve and we will revisit signing it. My wife is a chronic pain patient who has suffered over the past 16 years. We have tried everything available, therapy, TENS unit, non narcotic medications, and eventually we moved to the narcotic medications. We didn’t want her to have to take opiates, but there’s nothing on the market that’s effective and/or doesn’t have horrible side effects. Many times it’s both, the medication doesn’t work and also has deadly side effects. We are usually happy to sign any petition that is trying to put practicing medicine back into the hands of the doctors, not In the hands of the government.

  31. stephenson at 9:39 am

    Hello
    I am not a criminal I am not taking pain medication for the high and I resent what the government is doing to me as a citizen Its unconstitutional !!!
    I am in my 60’s and I’ve had 5 spine surgeries 3 lumbar 2 cervical I have titanium vertical, horizontal rods and screws as long as my index finger in 6 levels of my lumbar and in 4 levels in my cervical area I have extreme chronic pain 24/7 that severely impacts the quality of my everyday life I was knocked out of the work force after working 25 years at one company, attending night university 3 evenings per week for 4 years obtaining bachelor degree in business management and I served my country during the Viet Nam Conflict
    I’ve worked and strived all my life to move forward always trying to better myself in every way possible There is no physical therapy, no tens units,
    no surgery, no nothing, there is nothing to help me with my extreme chronic pain except pain medication I don’t want t take these pills but its all I got
    My surgeries are now 10 years old There’s permanent nerve damage, an
    abundant amount of scar tissue, arthritis, severe motion restriction, knots
    of tissue balls floating in my body at surgical areas My life as I knew it is TOTALLY CHANGED I would lay in bed motionless ( to stop the severe pain ) and if not for pain medication I’m sobbing from the chronic pain constantly
    I was very active in my life and now I deal with chronic pain and the older I get the worse the chronic pain becomes If only the people whom are causing people like me to loose their pain medication or to have the pain medication cut drastically IF only those people changing my life, making me suffer and cry even more COULD WAKE UP in my BODY just ONCE to experience what I live with every second, every minute, every hour, every day, week after week month after month year after year I would bet those same people would back up very quickly Attack this country wide drug addiction problem with more COMMON SENSE than the way they are handling it now Example: Normal sinus problem people have to suffer by being limited to buying sinus edication,
    show their driver license, sign for it and be recorded into a data base BECAUSE there are a small percentage of bad people that would use this medication to make meth ITS NOT FAIR to everyone else whom needs this medication to combat their sinus problems Wake up and use common sense
    to combat these country wide drug problems Its the same wrong solution for the sinus medication now being enforced as it is for chronic pain patients Its unconstitutional !!! Its wrong !!! Please rethink the position the government,
    political people and the medical field has taken in order to stop drug addiction in our country REMEMBER you folks work for the people We’re all not drug addicts Some of us have to take pain medications simply to function to do the normal everyday activities ( walk, stand, sit and drive ) that all of you can do with NO pain in your bodies

  32. Dave at 9:38 am

    This petition doesn’t make clear enough what specifically the money would be used for. It is tantamount to throwing money at the problem of pain care. Much like the NPS, it lacks specifics regarding measurable goals and democratic accountability-and a way to rapidly evaluate the plan and make needed changes or create a new plan.
    Americans deserve to know the money is being spent wisely and carefully. I would remind people of the failure of the decade of pain research and control- something that pain specialists and others seem to have forgotten. When it comes to plans such as these- too much is left to chance. Giving a billion dollar check to fight pain -without a solid plan- that’s a bad check for pain care and people in pain. And there has been such poor planning in the past- we cannot afford to go without a solid plan that will inspire people in pain and build hope and commitment. We know so far the NPS has seemingly failed to do that. So this petition may suffer the same fate.
    I would like to see a large investment to improve pain care- and I say $5 billion. The Australians have already invested the equivalent of $ 2 billion to improve pain care-and there plan is somewhat better then our NPS.
    More then money is needed to improve pain care. A plan is needed that is practical, inspiring, has clear measurable objectives and isn’t elitist and exclusionary in design- and for those who know something about planning- no “throw it over the wall” plans like the NPS. We need the best plans to tackle the great many problems in pain care-and all the money in the world won’t be a substitute for that.

  33. Shine on at 9:16 am

    Honestly, there is just something perversely strange about having to petition a sitting President to make sure people have medical pain care, OR medical care of any type! This is outrageous! Pain patients are being treated with the utmost disdain and callousness. How did it get to this point?
    This medical crisis was created by bureaucrats, anti-opioid zealots and the PRESIDENT and it won’t be solved on the same level it was created. There just aren’t readily available options for pain treatment that work as well as judiciously prescribed opiods!
    We need to extract government from health care!! Too much over-reach!
    This is now at an emergency level!! People are dying and suffering! When will that be a priority?
    Petition on, we have to use every avenue, but if those in power have created this humanitarian mess, what do we do when our loved ones and fellows are dying?

  34. Rk at 9:01 am

    Not sure if i want to sign this because it doesn’t address the issues or say anything about us being put in same catergory as addicts or how we are suffering because of all of this wrong information and the dea etc going after drs and us rather then the addicts.

  35. Wayne S. Swanson II at 8:03 am

    I have taken this opportunity to share my heartbreaking story in hopes these witch hunting Opiate ill informed skeptics will read and understand that I would have no life without Medically prescribed Opiates by a physicians care and strictly monitored monthly urine and blood test. Please remember that An Opinion Before A Thorough Investigation Is The Epitome Of Ignorance! And that a little more compassion from the Medical Field and its representatives could have saved my beautiful Stepdaughters life. Let me say this! A person who has a addictive personality will abuse anything that helps them feel better. I have taken Oxycontin for 12 years , I have had 20 major surgery’s in 9 years. I have so much physical pain I can not even get out of bed with ouit pain meds and when I run out I run out and just lay in bed praying the Lord relieve me of this horrible condition and I pray God you pain med skeptics never go through what I go through everyday of my life when the only thing you have to do is threaten what help I get, Shame on you! There will always be drug abuse and as the so called war on drugs has failed all this will! All you do is stoke and aid the drug pushers business to knew heights in the Black Market of Heroin while depriving folks as me to this horrible movement! My Stepdaughter committed suicide 4 years ago because of being treated like a drug addict by her family and doctors when all along she suffered from Lupus and Fibro which I believe was brought on by a deadly car crash at 18 , she told me between that which I was being put through and what they were putting her through she was not going to live her life in such a hell brought on by people like you that are on a witch hunt to out law Opiates and pain meds that give us some sort of a life . As a retired Police officer and worked indirectly close to the DEA, you people do not have a clue how thrilled you are making the illegal opiate trade and think of my Late Stepdaughter as you continue on with this bull**** movement to outlaw opiates! Just like the slaughter of children at Sandy Hook if there would have just been gun laws , my God they were Gun Laws , the guns that murdered all those 20 children were all registered and owned by a school teacher! You fight Drug Addiction in Elementary education by teaching all children the dangers of Booze and Tobacco which if these witch hunters want for us to know the real truth but they do not. I miss my Stepdaughter a so much and some of us will continue on the fight to protect our right to feel better and function without fear of these witch hunters trying to convince us to commit suicide . And they are trying to do exactly THAT!
    The under line real truth is THESE witch hunters would rather us Chronic Pain sufferers commit suicide are and DRINK all the BOOZE we can drink! The Federals legalized it ( ALCOHOL) knowing its a more deadly drug than Strychnine. And just because the DEA has miserably failed with their bullshit war on drugs why do they deprive us sick people of our Constitutional Rights to be Happy in that pursuit of with Professional Physicians to take meds that give us relief of this horrible malady of Chronic Pain ! May God have mercy on their miserable souls they that seek to destroy us Chronic Pain Sufferers only and little hope of temporary relief of this horrible sickness.