Chronic Pain Sufferers Erupt

Chronic Pain Sufferers Erupt

Chronic pain sufferers  getting frustrated. A story that the National Pain Report ran on Saturday (March 7) has generated a digital conversation about how chronic pain is being treated–and the gist of the conversation is that the people who suffer from chronic pain and the people who care for them are not happy.

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A firestorm of criticism for the U.S. government decision to crack down on opioid prescribing . The result of that government decision they believe is that chronic pain patients are not receiving

John Sandherr is the father of a U.S. Marine who is fighting for better VA treatment of his son.

Returning Veterans that once were over prescribed pain meds are now given no real hope for chronic pain. Anti Depressants are the new pain reliever along with relaxation and other modalities. Yes some of these can work in conjunction
with the proper meds but it’s not realistic to rely just on their new guidelines that do not include narcotic pain medicine.

The VA has given our Vets the – Take it or leave it –non option.

My own son a US Marine Vet with 80% disability rating has been made worse after getting forced to take NSAIDS after he told the Dr. about his ulcer. All the VA has offered is ” good luck ” after my son begged for pain relief. After pleading for a referral for a private hospital he was told by his PCD that he can’t do that even after my son showed him the new law put into place to help Vets get help quicker. I say and listened to the Dr. lie about my sons condition and he said that NSAIDS will not hurt his stomach .

The humanity is gone from our new healthcare system and only God knows how many will be dead as a result.

The following are Comments from our story pages:

Anne Rachall is a Chronic Pain Sufferer who is happy she doesn’t living in Montana

I know it’s time for our Government to get on board with what we suffer. We are not meth users. We are not heroin shooters. We are not cocaine snorters. We are living, once productive parts of society that did not ask for this curse. Our physical anguish is so severely real that it becomes who we are not what we are fighting.
We have degenerative disk disease. Rheumatoid Arthritis. Fibromyalgia. Lupus. Crones disease. IBS. Oh the list goes on. And many like me have multiple issues.
I have pain so severe I am in bed for days. Lifting a cup to my mouth hurts. The only way to break thru that is my narcotic. And trust me we have tried it all.
One last note. I bet the politician with the wife with MS makes sure she has all her narcotics to get thru her day.

Mickie Brown is a chronic pain sufferer

All I know is that for nearly 5 years, I’ve been tortured by denial of pain relief. Since being diagnosed with Rheumatoid Arthritis, Fibromyalgia, Gout, and Sjogren’s Syndrome, I have not received a single prescription for pain, except for once at the Emergency Room. I started out at a low-income clinic, who, when I inquired what would be done to control my pain, was told contemptuously, “We don’t dispense narcotics here.” Well, I’m a little ignorant of the treatments–I didn’t know narcotics were the only pain relief available. I felt very demeaned to the point of tears. Since then, I have asked my Primary Care Physician, and my Rheumatologist what is the plan for controlling my pain? I don’t even ask anymore, because it’s so humiliating to be sent home in Level 10 pain time and again. I’m a 60 year old woman with no history of narcotic abuse. I just don’t understand why this torture is happening. I’ve told my doctors I can’t go on like this. I am polite & understated about it, but a fact is a fact…I can’t take this much longer. Like they say about suicides, I feel hopeless and helpless. No one can live like this for long. What is going to be done about it?

Editor’s Note.  Stories like our report the on opioid prescription controversy are being published on the National Pain Report. If you’d like to receive occasional  updates about our work and join the community we are building, please sign up at the top or bottom of this news story. You can sign for our newsletter on any page. If you have ideas or comments, you’d like to share, we certainly are interested. 

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Authored by: Ed Coghlan

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Coonhound

Hello friends. IMO we need to get legislation passed similar to the bill that defunded the DEA raids on legal MJ dispensaries.
If stoners in CO and WA can walk into a store and purchase weed w/out even a stubbed toe for a valid reason then a disabled citizen suffering in pain (clearly documented) should be able to receive (and have filled) a prescription for opioid analgesics if their doctor sees fit to prescribe one. The purpose of our government is to serve the people; NOT intimidate and scare citizens it is supposed to represent. Bureaucrats should not set agenda, I don’t remember voting on any vacant seat in the DEA.
https://www.youtube.com/watch?v=s2cZz-j8SbU

Undermining the will of the voters? Rep Lee makes a valid point in the DEAs position vis a vis voters. The dinosaur agency and its bureaucrats @ DEA are clinging for dear life on a purpose (any one) before their entire bloated agency is seen as unnecessary and if not, then extremely overly funded as its main purposes (pot and pain) are seen as acceptable to the American people. Do we need to put pain medication on a referendum as well? What do we have to lose at this point?

Rep. Barbara Lee (D) CA 9th District sums it up pretty well in her 4 min rebuke of DEA practices.
https://www.youtube.com/watch?v=MXhA_9YSgMI

Coonhound

Takoda

Regardless of Age or Disease — upon reading some forums about how pharmacies are treating disabled people, I am truly left flabbergasted with Horror, that aside of how everyone has been hit in so many different directions, whether from the economy, ect — on how Legitimate People who suffer in pain, are now commonly being mistreated and emotionally abused, and eventually tossed to the curb — rather than, being helped to finding ‘cures’ and alternative solutions and maintaining their dignity until then. To have treatment without being discriminated upon is in their rights. I am flabbergasted by how Churlishly Unprofessional MANY have become, awhile not giving a Donkey about destroying these peoples quality of life, awhile Not leading This Reason, to one of the Obvious Conclusions of why depression increases – rather than, shuddering at this idea and stating that “this depression increase must be for ‘other reasons’ such as fear of side effects” – effects, which are commonly more sobering than drinking. Please HELP the people, and stop this madness. There is No Reason, and No Agenda, in the World, to destroy a person who is already suffering day by day.
This article is another gasp o m g article – apparently they now “lack trust” for the average person to use common sense with making their own decisions to purchase over-the-counter products. This leads me to ask a question, to a seemingly ‘logical conclusion’ — Do they have a “Make everyone suffer in some way agenda?” Please wake up, and look at what is happening and how the people are suffering and their lives, which they will not get back, are being destroyed!

The Veterans administration rather than treat you for chronic pain; will ignore you when you tell your doctor that you have had chronic pain for the last 15 yrs and all of the sudden.. you don’t need pain meds. The director down to the last doctor in VA Lexington in under trained on their duties as physicians.
The first rule…..TO DO NO HARM….

Why all of the sudden have the changed course and are going to try all the meds, I’ve already been thru…. They don’t use narcotic meds to treat pain???? I have REAL ISSUES with chronic pain. Two pain stimulators, hip replacement, two bad knees and I can’t even get the VA to send me to the appropriate doctor.

This all has to be bigger than allowing people to sit on listings for months allowing them to die thinking they would receive medical help from the Veterans Administration. NO……They would rather collect their bonuses and rid the world of these people. I would rather collect there bonuses and buy a bulldozer to bury them with……..Let the Doctors be Doctors and the administrators get the hell back to your office and stay there!!!!!!!

Mark Ibsen

It starts here: Our ethical standards, and the underpinnings of our “profession” AMA Code of Ethics – 2004. Editorially Revised 2006 20/11/2006 Members are advised of the importance of seeking the advice of colleagues should they be facing difficult ethical situations. Preamble The AMA Code of Ethics articulates and promotes a body of ethical principles to guide doctors’ conduct in their relationships with patients, colleagues and society. This Code has grown out of other similar ethical codes stretching back into history including the Hippocratic Oath. Because of their special knowledge and expertise, doctors have a responsibility to improve and maintain the health of their patients who, either in a vulnerable state of illness or for the maintenance of their health, entrust themselves to medical care. The doctor-patient relationship is itself a partnership based on mutual respect and collaboration. Within the partnership, both the doctor and the patient have rights as well as responsibilities. Changes in society, science and the law constantly raise new ethical issues and may challenge existing ethical perspectives. The AMA accepts the responsibility for setting the standards of ethical behaviour expected of doctors. 1. The Doctor and the Patient 1.1 Patient Care Consider first the well-being of your patient. Treat your patient with compassion and respect. Approach health care as a collaboration between doctor and patient. Practise the science and art of medicine to the best of your ability. Continue lifelong self-education to improve your standard of medical care. Maintain accurate contemporaneous clinical records. Ensure that doctors and other health professionals upon whom you call to assist in the care of your patients are appropriately qualified. Make sure that you do not exploit your patient for any reason. Avoid engaging in sexual activity with your patient. ************ Refrain from denying treatment to your patient because of a judgement based on discrimination. ••••••••••••••••••• Respect your patient’s right to choose their doctor freely, to accept or reject advice and to make their own decisions about treatment or procedures. Maintain your patient’s confidentiality. Exceptions to this must be taken very seriously. They may include where there is a serious risk to the patient or another person, where required by law, where part of approved research, or where there are overwhelming societal interests. Upon request by your patient, make available to another doctor a report of your findings and treatment. ****************************** Recognise that an established therapeutic relationship between doctor and patient must be respected. ******************************** Having initiated care in an emergency setting, continue to provide that care until your services are no longer required. When a personal moral judgement or religious belief alone prevents you from recommending some form of therapy, inform your patient so that they may seek care elsewhere. Recognise that you may decline to enter into a therapeutic relationship where an alternative health care provider is available, and the situation is not an emergency one. ***************** Recognise that you may decline to continue a therapeutic relationship. Under such circumstances, you can discontinue the relationship only if an alternative… Read more »

Anne

Why must we chronic pain sufferers beg for and rarely receive narcotics to ease our suffering but the alcoholic can get their “medicine” pretty much anywhere and anytime they want to but they are a major danger to society. I can take my pain medicine and drive fine, in fact, you’d never know I even took anything. I should be able to walk into a store and order what I need for my pain also..Why doesn’t the government open opiate stores?? I agree with the person who said “You can bet the politician’s wife gets all the narcotics she needs for her MS (or she’s an alky) and you can also be sure the wealthy aren’t suffering either.

Pauly

Thank God in our state we can still get “some narcotic” pain relief and there are still a few “mom & pop” type pharmacies who will fill our prescriptions without refusing and/or looking down their noses at us. I am afraid to say what state I live in for fear the gestapo will bust in and put a stop to it….

LouisVA

Doc Anonymous said: “And nowhere is the lack of humanity more prevalent than in the treatment of chronic pain sufferers. But it may be wishful thinking to expect the government to open the door for more humane approaches to chronic pain. It seems to me that there is very little information being published about the reality of pain management for doctors.” And “Until federal and state policy changes and doctors are no longer persecuted for putting humanity into pain treatment, patients will continue to see the inhuman side of medicine. It is the safe way for doctors.”

This is sadly true, Doc; but I think that changes can be made if we acquire power as patients through advocacy and building a large enough group of vocal people that will write, call, or better yet visit their members of Congress and ask for changes. There is something you can do RIGHT NOW to help. You could help support bills before Congress that The National Fibromyalgia and Chronic Pain Association, an advocacy group of which I am a member, considers a strong bill to support the chronic pain patient perspective. Specifically, the report will identify obstacles to legitimate patient access to controlled substances; (2) issues with diversion of controlled substances; and (3) how collaboration between Federal, State, local, and tribal law enforcement agencies and the pharmaceutical industry can benefit patients and prevent diversion and abuse of controlled substances.

Bills titled “Ensuring Patient Access and Effective Drug Enforcement Act of 2015” have been introduced in both the Senate and the House. The Senate version is S. 483; the House bill is H.R. 471. If passed, this legislation will require the Secretary of HHS and Administrator of the DEA to submit a report to Congress assessing how drug enforcement activities impact patient access to pain care. Patient advocacy groups will have the opportunity to provide input and recommendations as the report to Congress is developed. This is exactly the kind of action we need to help many chronic pain patients have access to the pain medications they need. Please help us by speaking out now. YOUR VOICE MATTERS!

Members of Congress generally provide on their websites a means to submit your comments online, or you can call or write a letter. Find contact info for your senators and representative in Congress at the following links:

http://www.senate.gov/general/contact_information/senators_cfm.cfm

http://www.house.gov/representatives/find/

http://www.pharmaciststeve.com/?p=9694
Matt Grant has done several 3-4 minute reports over the last month on pts not getting their medications because of Pharmacists “not comfortable”.. looking for people in the Orlando area to send him a video for him to use on this expose special… Matt is an investigative reporter for channel 2 http://www.wesh.com in Orlando. If you can do this and don’t.. the next time that you can’t get your meds … look in the mirror to see who contributed to your problem… YOU DO NOTHING…. YOU GET NOTHING …

IMPORTANT – Attention ALL Chronic Pain Patients who have problems getting scripts filled. Matt Grant the investigative reporter for WESH 2 NEWS contacted me with this request. PLEASE HELP HIM OUT by making a video if this pertains to you or anyone you know. Here’s the message –
Hey I need a favor
I need as many pain patients who are being rejected as you can get to email me a 20 second video something like “hi my name is __ I suffer from__and I can’t get my medication ..”
We‘re going to use it for an upcoming 30 minute special we’re putting together
I need lots of these – hundreds ideally – please pass the word around
Email: mjgrant@hearst.com

LouisVA

First I would like to address an error in the article. The second paragraph reads:

“A firestorm of criticism for the U.S. government decision to crack down on opioid prescribing . The result of that government decision they believe is that chronic pain patients are not receiving”

Obviously something has been left out at the end of the paragraph.

Secondly – NSAIDS are known to damage organs and every doctor should know that there is an upper limit for Tylenol consumption per day. There are many pain medications do NOT contain Tylenol; thus, poisoning people with NSAIDS is unconscionable.

Doc Anonymous

Your article commented that the HUMANITY is gone from the health care climate and you are so right!!!! And nowhere is the lack of humanity more prevalent than in the treatment of chronic pain sufferers. But it may be wishful thinking to expect the government to open the door for more humane approaches to chronic pain. It seems to me that there is very little information being published about the reality of pain management for doctors. Doctors who have treated chronic pain patients with dignity and humanity have often been driven out of business by state and federal regulators. The message is not lost on other docs: Treat chronic pain with opioids at your own risk…..and a very real risk it is! Even if you prevail against trumped up charges it will cost you a fortune.

Until federal and state policy changes and doctors are no longer persecuted for putting humanity into pain treatment, patients will continue to see the inhuman side of medicine. It is the safe way for doctors.

We do have a long way to go before pain sufferers are given their rightful place in American society.