Chronic Pain Sufferers: Take Our Survey

Chronic Pain Sufferers: Take Our Survey

Since we’ve started the National Pain Report, all of us have been struck by how important it is for people who suffer from pain and their families to speak out. Our stories are not only read by thousands of people, but they are often the topic of much commentary — both on the stories themselves and on the National Pain Report’s Facebook page.

NationalPain&Report_logosWe want to formalize and expand that ability for chronic pain sufferers to be able to speak out. That’s why we are working with our friends at the newly re-launched National Pain Foundation to conduct global online surveys that can tell us what sufferers are thinking and what they think ought to happen in order to better diagnose and treat chronic pain patients.

We are launching a series of surveys on specific topics of interest to chronic pain patients. The first one (which we invite you take here) is to find out how you’ve been treated by your healthcare providers. The surveys are designed to be short and will only take a minute or two of your time.

What we are asking this month is what happens and how you feel when you encounter your medical providers (physicians, nurses, pharmacists). We will report the results of this survey on the National Pain Report and elsewhere in March.

We’re also planning other survey topics in the months to come. If you have ideas about topics, please let us know. We are already looking at fibromyalgia, cancer pain and women’s pain as possible survey topics.

As we reported, The National Pain Foundation is aiming to create a “digital footprint of pain” and to build a global community of pain patients, families, providers and others who believe that we can do better in treating chronic pain.

According to Dr. Dan Bennett of Denver, who is the head of NPF as well as a practicing physician, the NPF will concentrate its energy on the following objectives:

  1. Bring about a true understanding of what pain is and whom it affects
  2. Enable researchers to advance pain treatments across socioeconomic and ethnic differences
  3. Develop true best practices for healthcare providers to deliver better care
  4. Uncover reasons for increased vulnerability to pain that considers income, education, gender, race and other factors
  5. Educate the public and bring about better understanding of people with pain
  6. Provide intelligence to the healthcare industry on what products and treatment people in pain want and need

The National Pain Report is enthusiastic about this new opportunity to give a voice to chronic pain sufferers, their families and friends.

We invite you to take the survey.

Authored by: Ed Coghlan

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There will always be substance abuse, addicts, and people who misuse medication. That’s life. Banning pain meds or dropping the hammer on doctors who prescribe them just makes life worse for pain sufferers. There will be more people on disability because we can’t get through the day due to pain and can’t get any relief. We should not be punished because other people get hooked. Not to mention… If you need it for pain anyhow, who cares if your hooked?! People get hooked on friggin coffee, cigarettes, booze, and Pepsi. Should we ban it all? Bottom line is I’m in pain and I can’t get treatment. We need to be more vocal and push back against those who are campaigning against pain meds.

JUST WAS INFORMED BY MY PAIN MANAGMENT DR. THAT MY HYDROCODONE WILL BE TAKEN AWAY, AND GIVEN SOMETHING ELSE FOR MY CRONIC PAIN IN MY ARM DUE TO A LARGE PLATE AND 12 SCREWS – BECAUSE I HAVE WHAT THEY CALL NON-UNION, RATHER THE BONE WILL NOT HEAL BACK. YES WE TRIED EVERYTHING IN THE MEDICAL FIELD POSSIBLE TO HELP, NOTHING WORKED, ONLY MY MEDS EACH DAY FOR 6 YEARS, WITH NO PROBLEMS FROM MEDICATION. NOW WHAT? THIS IS JUST WRONG, PLAIN AND SIMPLE. THEY ARE BLAMMING THE WRONG PEOPLE. I FEEL FROM THIS CHANGE THAT THERE WILL BE MORE AND MORE PEOPLE COMMITING SUICIDE RATHER THAN LIVE WITH HORRIBLE PAIN, MORE SHOOTINGS, ROBBERIES, YOU NAME IT, IT WILL BE. THIS IS JUST SAD

I had a liver transplant and a medical-error induced stroke in 2006 at Portland VA hospital.I had chronic pain from then til present. Also I have suffered 3 falls,breaking the upper arm of my stroke affected right side, my right knee, right 3toes, torn right acl and broken left middle finger. These surgeries and injuries keep me feeling bad. I was doing fine with 4mg. Hydromorphone per 6 hrs. About 2 months back I was assigned a new MD. resh out of Med school,who w/o meeting or examing me, unanouncedly cut my dose in half.I inquired thru the proper channels and was shut out by a wall of silence.I’m forced down to 1_1/2 pills per day with promise to be stopped soon entirely! My pain and quality of life have degraded pretty badly leaving me to dread the future and wonder angerly why? I’ve had zero problems with my “pain contract” and cannot take OTC meds due to certain liver harm

Mr. Lawson, you have piqued my interest as to what you envision would be different if doctors were free to treat people in pain any way they chose.

I believe the very first thing we need to do is have Doctors back in control of their profession! It should not be “over viewed” by pharmacists, as it is in some states. They do not have training in other factors that go into prescribing medications. If they wanted to do this-they should have gone to Med School instead!
Politicians have absolutely NO business being involved in it!! All they have in unscientific knowledge based on rumors, old wives’ tales, religious beliefs, & stories they have heard from misc sources about addiction, addicts, & ties to criminals. Many assume if you take opiates & are not terminally ill, that you are an addict. If they had not allowed insurance companies to cut substance abuse programs from the older, much more successful, 3,6, & 9 month programs, to 10 day & outpatient programs-the drug problems they think they are fighting would not exist in the numbers currently experienced! They helped screw this up in the first place. As usual-they refuse to take responsibility!