Since we’ve started the National Pain Report, all of us have been struck by how important it is for people who suffer from pain and their families to speak out. Our stories are not only read by thousands of people, but they are often the topic of much commentary — both on the stories themselves and on the National Pain Report’s Facebook page.
We want to formalize and expand that ability for chronic pain sufferers to be able to speak out. That’s why we are working with our friends at the newly re-launched National Pain Foundation to conduct global online surveys that can tell us what sufferers are thinking and what they think ought to happen in order to better diagnose and treat chronic pain patients.
We are launching a series of surveys on specific topics of interest to chronic pain patients. The first one (which we invite you take here) is to find out how you’ve been treated by your healthcare providers. The surveys are designed to be short and will only take a minute or two of your time.
What we are asking this month is what happens and how you feel when you encounter your medical providers (physicians, nurses, pharmacists). We will report the results of this survey on the National Pain Report and elsewhere in March.
We’re also planning other survey topics in the months to come. If you have ideas about topics, please let us know. We are already looking at fibromyalgia, cancer pain and women’s pain as possible survey topics.
As we reported, The National Pain Foundation is aiming to create a “digital footprint of pain” and to build a global community of pain patients, families, providers and others who believe that we can do better in treating chronic pain.
According to Dr. Dan Bennett of Denver, who is the head of NPF as well as a practicing physician, the NPF will concentrate its energy on the following objectives:
- Bring about a true understanding of what pain is and whom it affects
- Enable researchers to advance pain treatments across socioeconomic and ethnic differences
- Develop true best practices for healthcare providers to deliver better care
- Uncover reasons for increased vulnerability to pain that considers income, education, gender, race and other factors
- Educate the public and bring about better understanding of people with pain
- Provide intelligence to the healthcare industry on what products and treatment people in pain want and need
The National Pain Report is enthusiastic about this new opportunity to give a voice to chronic pain sufferers, their families and friends.
We invite you to take the survey.