November is Complex Regional Pain Syndrome (CRPS) awareness month, and National Pain Response is asking for those suffering from CRPS to share your stories and comments – especially stories and comments that may help others going through similar situations.
While CRPS is debilitating, CRPS sufferers share a trait that seems to be common many chronic pain patients – an (often silent) underestimated strength; despite the constant pain, despite the loss of social empathy that comes from a chronic pain/illness that is invisible to the outside world, despite the uphill battle for a respectful conversation regarding access to the very medication that keeps the pain at barely-bearable levels. A strength that CRPS sufferers and all chronic pain patients know and share amongst themselves – a strength that the “outside” world cannot, and sometimes chooses not to, understand.
Here are a few excerpts of comments from a recent National Pain Report story on National CPRS Awareness Month:
“I’m going to spread the word by contacting my senators and congressman and talk only about this horrible condition called CRPS. What have I got to lose? We gotta start somewhere...CRPS in my experience is the MOST painful condition I’ve ever felt. God bless my chronic pain brothers and sisters.”
“Overall, we are thankful for his improvements and progress these past 5 years. I pray for anyone suffering from his invisible and misunderstood illness!”
“After 8 years, 3 months and 27 days, of this paper trail, I admit that I am exhausted.
Not ready to stop, but ready to ‘start’. Instead of sowing seeds of dispersion and depression from dealing and not dealing with CRPS, I would like to harvest from my experiences a platform to navigate better.”
These are not comments of self-pity, nor pleas for handouts or sympathy – but rather statements of strength and support that deserve awareness and respect.
As National CRPS Awareness Month often attracts an increase of news stories, we hope each and every news story helps raise awareness not ONLY of CRPS, but of all those who deal with chronic pain – and that these stories may introduce a few more people to the vast impact of CRPS and chronic pain. Perhaps then, there can be a better conversation about the political battle, or “crisis”, that impacts (but without consideration for) those living with chronic pain.
Keep wearing orange, spreading the word, and sharing thoughts and tips you may have that can help others living with CRPS and chronic pain.