CRPS – Awareness Growing But Much to Do

Halfway through November—which is CRPS Awareness Month—people who are working for more understanding about Complex Regional Pain Syndrome think they are making progress.

“But there is an incredible amount of work still to do,” said Jim Broatch, the Executive Director of RSDSA for the past 15 years.

CRPS—which is also known as RSD— is a chronic neuro-inflammatory disorder. It is classified as a rare disorder by the United States Food and Drug Administration. However, up to 200,000 individuals experience this condition in the United States, alone, in any given year.

The theme of awareness this month is “Color the World Orange”—and there have been several events to promote CRPS. One of the most interesting is a virtual walk that will last until November 21st. (click here)

The two year education effort with the emergency room physicians appears to be working, according to Broatch. (Here’s a National Pain Report story on the efforts with the American College of Emergency Physicians)

“They’ve been reading articles and other information that we have provided,” said Broatch. “They are trying to get away from prescribing opioids in the ER, and ketamine is an alternative that makes sense to them since they use it in other settings, particularly involving injuries to children.”

Next target is the American Academy of Family Physicians.

“It makes sense since they see so many people who might have CRPS,” he said.

“We will bring one of the family physicians who knows CRPS to the meeting because doctors like to learn from each other.”

RSDSA will also be working to develop data that can lead to a standardized protocol about the use of IV Ketamine for intractable pain.

“In addition, we believe those efforts can lead to getting insurance coverage for the treatment,”’ he said.

There are still wide practice variations in how CRPS is identified and treated.

“We are still working to identify what is happening in practices and get researchers together,” said Broatch.

He also reminded us of the basic grass roots work that his organization and others are doing to educate doctors.

“Just recently, we were contacted by a woman in the Midwest who had a very troubling encounter with her hospital doctor who was dismissive of her and her symptoms and wrote the visit off as a drug-seeking patient,” said Broatch.

We communicated with the CEO of the hospital to both complain about the treatment the patient received (or didn’t receive) and to educate them about CRPS.

“It’s too bad that this still a part of what we have to do, but it is,” said Broatch.

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Authored by: Ed Coghlan

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Kevin Scardifield

Here in the UK we have managed to form an All Party Parliamentary Group for CRPS to raise awareness and force Government Action. We have brought together a team of the top specialists who will work with the group and devise a training plan for all medical professionals so everyone will be able diagnose the condition. sufferers are joining our group here

IMO, the ultimate goal is to eradicate the pain at its source, the muscle system. This is a fact of life, nature and how the human body works.

All dis-eases, diseases, infections, tumors, cancers, deficiencies, excesses, maladies or aneurysm of the human body must have a cause, source which once removed will allow the body to automatically heal from within thus restore back to a harmonious state of wellbeing.

The most common primary cause of all long term pain (CRPS) are a dysfunction of our own sick, stressed, strained, tired, degenerated and neglected muscles.

The mind and body basic needs are obvious; Fresh foods, vitamins, minerals, managing stress, exercise, stretching and sleep hygiene. That is it. But somehow in the last century we forgot that our muscle system also needs to be cared for in a more aware and proactive manner.

Human muscles need to be kneaded, pulled, stretched, unwinding and heated up on occasion. This is because muscles can only heal from the natural forces from within the body. Life and living ignites and re-ignites natural healing to keep it fueled.

First these neglected muscles will began to whisper for you to help, then they will whimper. Then they will start to cry, yell, scream, holler and then they will began to kill you.

Muscle degrade overtime into about 5 stages. The final stage is that of Complex Regional Pain Syndrome.

The standard treatment for sick, tired and stressed muscles is the same from stage 1 to 5.
Heat, massage, stretching, range of motion movements and spinal adjustments.
Once your muscle reaches a certain point in the advanced stages then the only way to restore the cancer cells is with intramuscular stimulative needling.

IMSN can be accomplished with a thin wire needle as in dry needling, myofascial acupuncture or GunnIMS and with hypodermic needle as per Travell, Hackett or Rachlin injections.

This muscle and connective tissue dis-ease does not like to be neglected. It can not be quickly fixed in the operating room and will not respond well to medications. The muscles cells are so sick and degenerated they can not process chemicals as predicted and will only add to the overall misery factor.
ref: Gunn, Hackett, Travell/Simons and Rachlin all are MDs from the 1950-1990s.