By Ed Coghlan.
November is CRPS Awareness Month as a month-long effort to raise awareness of Complex Pain Regional Syndrome.
Monday, November 5th is #CRPSOrangeDay as people with CRPS and their loved are urged to do something special—everything from dressing orange, decorating your office in orange, or just about anything else.
It is among the cruelest of the chronic pain syndromes. It was hard not to notice a tweet over the weekend from a person identified as “Life of a Spoonie” who plaintively posted:
Has anyone got tips for alleviating #CRPS Pain?!
I can’t even eat because I’m sick and in pain right through to my stomach. How do you keep your eyes open?
Is there something that can put out these invisible flames?!
Send Help Please
The National Institutes of Health describes CRPS as Complex regional pain syndrome (CRPS) is a chronic (lasting greater than six months) pain condition that most often affects one limb (arm, leg, hand, or foot) usually after an injury. CRPS is believed to be caused by damage to, or malfunction of, the peripheral and central nervous systems. The central nervous system is composed of the brain and spinal cord; the peripheral nervous system involves nerve signaling from the brain and spinal cord to the rest of the body. CRPS is characterized by prolonged or excessive pain and changes in skin color, temperature, and/or swelling in the affected area.
There is more awareness of CRPS than in past years. More doctors are being educated and patients are forming support groups, not to mention the outstanding work that the RSDSA, a Connecticut-based non-profit is doing to educate.
During the month, we will be featuring stories about what’s new, what research is being conducted and, importantly, stories from CRPS patients who are living with the syndrome.
If you CRPS and you have a story to tell, please go to our commentary section and leave your story.
In the meantime, wear some orange!
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