Fighting the Chronic Pain on Many Fronts

Fighting the Chronic Pain on Many Fronts

It was nice to catch up with Claudia Merandi, the Rhode Island woman who launched the Don’t Punish Pain Rally group that has been growing in influence.

The idea is simple…take a day and plan local rallies around the country (and the world) that are designed to bring the media to cover the rallies and bring awareness to the issues facing the chronic pain community.

It’s been working—the rallies have been growing in influence. In fact, Merandi told us today that she’s added a chapter in the United Kingdom in addition to Canada and Australia who are already participating in the DPPR.

There’s another rally planned…on March 20th…and Merandi expects it to have activity in each state, although she wonders about the lack of activity in the “Dakotas”. There hasn’t been much activity in those two states, so if you live in Mandan, Bismarck, or Fargo in North Dakota or in Rapid City, Pierre or Brookings in South Dakota, you can get involved.

By the way, if you are in any of the other 48 states—and most of you are—make sure you participate if you can.

Start here—here’s the Facebook page that has attracted some 12,000+ folks—and see how you can participate.

(DPPR Facebook Page)

In addition, Merandi has been making progress to re-introduce legislation in her home state of Rhode Island. To remind you, a bill that would allow chronic intractable pain patients to be able to access opioid therapy and that pharmacists must fill the prescriptions is back in play.

Last year, the bill passed the Rhode Island House but died because the State Senate didn’t act in time.

“I’ve learned some things and met more people,” said Merandi. She expects that the House will pass the bill rather quickly which gives her and her colleagues more time to identify the best strategies to pass the bill and move it to the Governor for signature.

But as Merandi said, the real strategy if how do we get an answer at the federal level.

More on what she’s doing to ensure that strategy in a future report.

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Authored by: Ed Coghlan

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I like watching the series The Walking Dead. It shows two parallels the mean people and the people who want to take care of each other. The series is showing reruns right now. One of them it’s called the cell that’s where Daryl is in a closet strip naked and starving and they had beat the Daylights out of him. Well the bad people that did this to Daryl, they are playing music to torture him and the song is called living on Easy Street. The words to the song Go (living on Easy Street life is but a treat , we’re breaking out the good champagne) the song is trying to psychologically work on Daryl. The song doesn’t represent how I feel. I feel more like Daryl who is in a dark closet hurting from the physical pain and need a bath. Sometimes I wonder if the song represents the people who put in these opiate guidelines. They can live on easy street because they don’t feel chronic daily pain. They just closed the closet door and leave us in there. What they don’t see doesn’t bother them.

Holly

Kudos to Claudia! She is one hard working woman who is trying to help so many of us. God bless her!

Maureen M.

Claudia is the best! She has worked endlessly and exhaustively for us and has become a crucial part in gaining some changes for our CP community!! Please keep her and all involved in your prayers for outrageously poignant rallies to happen in March!
Goooo Claudia and DPPR!

Harley

GOD BLESS YOU CLAUDIA for standing up for those of us that suffer, needlessly… I have lived with intractable pain for 30 years, I have Interstitial cystitis AKA I.C. of the bladder… an incurable Non-Stop burning pain that can literally take your breath away sometimes when you’re in a major “flare” as they call it… I don’t know what I would have done without my prescription pain medications all those years… I had amazing doctors, and amazing treatments on and off and now at my senior status in life… I’m being treated as if I have done something wrong, why is that? What do we do for in 2020? far as medical marijuana goes…edibles, tinctures, creams & lotions and smoking a few times… those alternative pain treatments does not seem to regulate my pain as well as my prescription MS Contin used to. I was removed 2 years ago… medical marijuana is not legal in every state… so if you have relatives or friends that live outside of your state where it is legal… what are you supposed to do about keeping your pain management routine, ongoing? if you can get into trouble taking your medicine as they call prescription medical marijuana into another state where you can be jailed… what do you do? And you’re not supposed to eat an edible or smoke and drive so how does a chronic pain patient that’s been in pain for 30 years control their pain when there’s so many strict laws? people are confused… Re this upcoming billion dollar industry this going forward in our country now regarding medical marijuana so my question again is how does a chronic pain patient control their pain now? they’re even making Kratom illegal in some states the only thing Kratom does for me just give me energy… I’ve tried at least eight different strains… please tell me, if we participate in pain rallies how do we answer those questions if someone should ask us as a chronic pain patient? Signed: DESPERATE & WASTING AWAY FROM PAIN!

Cindy too

I’m so amazed that CPP’s can testify before Congress, do all types of advocacy, and attend rallies. When I’m not at some sort of medical appt, I’m home resting, struggling to get laundry and dirty dishes done and bills paid on time, and occasional errands.

David Dax

We’re screwed!

Mary

Thank you! We need to keep our voices heard! I’m in in NC