By Ed Coghlan.
Because pain is very personal and subjective, it sometimes defies description. One person’s “five” is another person’s “10”.
And patients, and even providers, often express frustration at the inability to accurately describe and measure a person’s pain.
A group of patient advocates is advising a pharmaceutical company that wants to find out how a person in pain visualizes it by using words directly from people in pain.
As Jim Broatch, long-time Executive Director of the RSDSA told his members in an email:
“The idea is that this project might have an impact on how people communicate with their doctors and how doctors can better understand the experience to create treatment plans that align with the patient’s quality of life treatment.”
Grünenthal USA is the pharmaceutical company that is working with RSDSA and other pain advocacy groups on the project.
“I’m very excited to be working with a number of other patient advocacy organizations to collect descriptions of how individuals with CRPS, vulvodynia, and other chronic pain syndromes visual their pain using words or images,” Broatch told the National Pain Report. “By collecting this data, we hope that we eventually can help individuals with chronic pain better communicate their symptoms to their health care professionals. Certain symptoms can suggest different underlying pain-generating mechanism which can then be targeted.”
Kathleen Kraus works for the ad agency that is accumulating the responses. They’d love to hear from you. You may reach out directly to her by clicking here for more information about how your submissions will be used and in what format.
If you decide to share your thoughts with Ms. Kraus, let us also know how you described your pain in the comments section of this news site.
Follow us on Twitter: