Is the Missouri Chronic Pain Community Being Heard?

Is the Missouri Chronic Pain Community Being Heard?

By Ed Coghlan.

A Missouri legislator is urging chronic pain patients to contact new Missouri Governor Mike Parson to repeal an executive order issued by his predecessor that may be worsening the treatment for chronic pain patients in the state.

State Representative Mike Moon thinks the action by former Governor Eric Greitens is not addressing the opioid problem in Missouri because prescription drugs are not the problem.

Greitens was forced to resign earlier this year after allegations surfaced of sexual coercion, blackmail, invasion of privacy, and misuse of charity resources to fund his campaign.

Moon thinks the executive order has done “plenty” of harm to chronic pain patients in Missouri. He writes:

Over 8,000 letters were mailed to Missouri physicians and pharmacists demanding them to curtail the prescription of, and dispensing of, opioids.  (Remember, according to the CDC, the rise in deaths due to opioids is not/was not due to the over prescribed drugs!)  The result of these letters (this attempt to take away the physician’s ability to treat their patient(s) in a manner deemed best by the doctor) has all but emasculated the physicians receiving the letters.  Doctors are afraid of potential discipline meted out, by the state, against them.

Mary Cremer of Jefferson City, Missouri has been meeting with Representative Moon and others in the Missouri Legislature to educate them about the harm the emphasis on opioids is doing to patients like herself.

“We are hopeful that Governor Parson is hearing the message of thousands of Missourians who take their prescription medicine responsibly in order to fight their chronic pain,” she said. “We hope that people from Missouri and from around the country will contact the Governor and urge him to rescind this wrong-headed executive order.”

To contact Governor Parson:

Phone: 573-751-3222

E-mail: mo.gov/contact-us

Snail mail: Room 216

201 West Capitol Avenue

Jefferson City, 65101

Follow on Twitter:

@NatPainReport

@edcoghlan

@mary_cremer

Subscribe to our blog via email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Authored by: Ed Coghlan

19
Leave a Reply

2000
19 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
18 Comment authors
  Subscribe  
newest oldest
Notify of
Kel b

Please join us, in your state, for a National Rally for Dont Punish Pain Patients.
Nationwide, September 18, 2018
Each state, multiple cities, etc. Wisconsin has 3, Appleton, Milwaukee & Madison.
Visit Facebook or website for more info: DontPunishPain.com
Thank you!

treeo

Mike Moon, go!

cindy

This is a reply to Scott’s comment when he suggested the govt’ treat opioid abusers the way they treated crack cocaine abusers.

The answer is simple — crack cocaine users were mostly black, and so the white establishment had no empathy and prison seemed the correct solution. But the opioid abusers are mostly white; and lots of them live in GOP country. Unskilled laborers out of work due to globalization and who have turned to drugs. So, these white people get viewed differently and the govt wants to save them and spend $ on them for treatment instead of $ for prison. It’s disgusting, and, btw, I’m white.

I’ve been using opioids responsibly for 10 years and I firmly believe I’d have committed suicide long ago without them due to the endless horrific pain. Even with them, there are so many days that I can’t even shower or make a microwave dinner.

Due to the upcoming CDC rule reducing available Rx’s, for about 5 days last week, I reduced one of my Rx’s by 1/3. My pain got so much worse as did my mood. I wasnt’ quite suicidal, but was close to it. As soon as I went back to my full dose, my mood improved 100%.

If the new federal CDC rule goes into effect as planned on Jan 1, I really don’t know if I’ll be alive at this time next year.

Maybe I’ll have some luck with medical marijuana (MMJ), but my prior attempts failed and were extremely expensive. Jeff Sessions’ war on the only hopeful alternative really puts us in a box. Aside from the fact that using MMJ legally in a state that permits it still could put us at risk of federal arrest, the federal illegality means that no insurance can cover it, and credit cards can’t accept payments for it, and the post office cant’ deliver it, and more.

I AM ASKING THE NPR TO PUBLISH ALL INFO IT HAS ON THE NEW CDC RULE MANDATING OPIOID REDUCTION AS OF JAN 1, AS WELL AS ALL ORGANIZED FIGHTS AGAINST IT.

I HAVENT’ BEEN ABLE TO FIND MUCH AT ALL. AND YESTERDAY, ONE OF MY DOCTORS TOLD ME THAT THE RULE ISNT’ DEFINITE, EVEN THOUGH MY PAIN DOC TOLD ME LAST WEEK THAT IT IS.

WE NEED INFO AND ORGANIZED LOBBYING.

The general public does’t understand the need for pain medication but the ones who are in pain our lives are lost without the Opioids. I am a Vietnam Vet , I wasn’t wounded by any enemy fire but American government did its part with using Agent Orange and I was a Engineman who worked in the engineering parts of the ship which had Abestos . My lungs have scar tissue from the asbestos. My lungs are in constant pain the muscles around them.
And when I start coughing it won’t stop until I take my pain med. The cough is dry and it has been there for over thirty years. Just think if my Opioid med was taken away they would sign my death certificate. The American government is stupid about the idiots that OD on these meds, it’s not the people that needs these it’s the people that abuse our use. I have been taking these Opioids since 1985 and not once have I abused these.

Stephen

My sister recently passed fron stage 4 small cell lung cancer in Oklahoma City. Her oncologist would not prescribe morphine, unless she was in ER, hospitalized, or in his chemotherapy treatment center. They tried opdivo even though it is only effective on non-small cell lung cancer. All it did was destroy her digestive system and cause extreme pain, nausea, vomiting, and was unable to eat most of the time. She had to go on home hospice before she was allowed to have morphine in her home. Disgraceful. In hospice she was allowed excellent pain management. Why did she have to suffer for months and have to make repeated Er visits, hospitalizations, and chemo center visits just to get pain relief?

Susan

I think alot of patients with Chronic pain are suffering with deep depression due to lack of pain medication monitored & taken as needed for their Chronic illnesses!

William Dorn

I am a chronic pain patient in Tennessee and I will contact Governor Parson. Please everyone contact Tennessee Governor and help us. All pain patients in America must unite to overturn this human rights violation. Keep writing and calling our state reps and let them know we the voters wont stand for this genocide.

Sharon

Finally, someone is beginning the wagon-train slowly but surely for chronic pain sufferers. With 6 back fractures, I can say injections, therapy and expensive trips to Pain Management don’t bring results. I took my Opioid pain pills responsibly for the last few years and now due to attics, doctor’s are scared to death to write an RX. I’m in Texas, I believe this goes on everywhere. If an attic can’t get Opioids they will get possibly a more dangerous drug on a corner. Each patient should be treated by the doctor that knows them, and can recognize if they are abusing the pain med. Live with chronic pain, and your common sense will kick in on this issue.

Kim glassnrr

I too was talking my meds as percribed and had my dose lowered by over half and now I’m suicideal and lost my quality of life and live on the couch my life sucks I’m missing out out on family function s my daughter s band football games due to my disability and the doctor wants to try stuff that I’m afraid of or I won’t get the lower dose they will take all of them away

June

I do not live in Missouri but the replies say to respond anyway,first I think what the new Governor is doing ,to at least listen to the doctors & chronic pain patients is a good start.i am a cop for over 20 years I had been on a certain dose if fentanyl but was forced to wean down to lowest dose there is,now before I found the doctor that treated me I was at the point of not being able to bear the pain any longer but all any doctor or pharmacist has to do is look at my record for 20+ years I was on the same dose never asked for increase & got it from one doctor,refilled exactly every 30 days why can’t that tell these other people making these.laws that are not doctors but I have not abused opiods & although it did not take my pain away I had quality if life

Mike

Simple…
Opioids, like guns when in the wring hands are dangerous. Pain relievers offer people the ability to live a quality life. Many must have high doses because of thier metabolism and conditions, some need low doses. This is for a PAINdoctor to determine, NOT AN ADDICTION DR. OR A POLITICIAN. THESE POLITICIANS ARE COMMITING CRIMES AGAINST HUMANITY IN THE FORM OF BOTH PHYSICAL AND PSYCHOLOGICAL
TIRTURE. THE MEDUCINE WORKS AND HAS WORKED FOR MILLIONS OF PEOPLE FOR YEARS. TAKING IT AWAY FROM THEM AND CREATING THIS INHUMANE TORTURE MUST BE STOPPED AT ONCE! WHAT HAS BECOME OF AMERICA, SINCE WHEN TO WE CONDONE TORTURE ON OUR OWN CITIZENS. BELUEVE ME JUNKIES WILL ALWAYS GET THIER HEROIN, UTS BEEN AROUND IVER A HUNDRED YEARS. PAIN PATIENTS DONT WANT HEROIN, BUT IF IT BECOMES THIER ONLY CHOICE TO RELUEVE THIER PAIN, THIER SELF PRESERVATION GENE WILL KICK IN AND MANYY WILL USE IT. A STARVING PERSON WILL LOOK IN TRASH CANS FOR FOOD. WHY WOULDNT A PERSON IN EXTREME LIFE LONG PAIN USE ILLEGAL DRUGS WHEN THIER DOCTORS CANT AND WONT GIVE THEM THE MEDICINE THAT WORKS, BECAUSE THE FEAR THE DEA. [edit]

Scott M

Why is he the only one that knows the truth and is actually doing something about it. I sure hope he continues the battle and encourages other politicians to see our side. We OUT NUMBER DRUG ADDICTS 1000 TO 1, YET WE ARE LAYING IN BED, UNABLE TO ENJOY LIFE AS WE DID WHEN WE WERE GETTING THE PROPER DOSES OF OUR PAIN MEDICATIONS. OPIOID ARE ONLY BAD WHEN IN THE WRING HANDS. HOW MANY PARENTS JUST LET THIER TEENAGE KIDS CONTROL THIER OWN MEDICINE IF THEY WERE INJURED OR HAD ANOTHER ONGOING PAINFUL CONDITION? TOO MANY! IF PARENTS USED THIER HEADS THEY WOULD HAVE DOLLED OUT THIER MEDICATION AS NEEDED. INSTEAD THEY GIVE THEM THE ENTIRE BOTTLE AND HE SHOWS IT TO FRIENDS AND THEY GET BOIZE AND OR OTHER DRUGS AND PARTY UNTIL THEYRE WASTED. SOME HAVE OVERDOSED AND DIED. UTS NOT ANY DOCTORS FAULT AND LEGITIMATE PAIN PATIENTS OF ANY KIND ACUTE OR CHRONIC DO NOT ABUSE THE MEDICATION. THEY BEVER HAVE AND NEVER WOULD. UNTIL NOW WHEN PEOPLE ARE CUT OFF AND ARE FORCED TO SELF MEDICATE. MANY ARE DRINKING TOO MUCH, ON LINE BUYING WHO KNOWS WHAT, GOING TO THE STREETS AND USING HEROIN FOR THE FIRST TIME IR JUST KILLING THEM SELVES. IS THAT A BETTER RESULT? IS IT BETTER FOR PATIENTS TO GET THE PAIN MEDICATION THEY NEED FROM THE STREETS OR THIER DOCTORS.
OUR GOVT MUST HAVE A HAND IN THE HEROIN MARKET AS THEY DID WITH CRACK COCAINE. THA SOUND LIKE THE MOST LOGICAL ANSWER.

cindy

As a chronic pain sufferer who needs opioids to survive, I dont’ see the point of fighting this Missouri issue since on Jan 1, the CDC will impose a severe opioid Rx reduction nationally.
I have been trying to find groups fighting this travesty, which my pain manager just informed me about last week. That’s how I found out about the NPR, but I haven’t found any type of organized resistance to the upcoming federal law, which will force people like me to become criminals — if we can figure out how to do that which I certainly can’t — or commit suicide, or move out of the country which is not an option for most sick people, or simply never get out of bed again.
The only other alternative is medical marijuana where it’s available, BUT, it is so expensive and so, out of reach for many. And there is so much trial and error involved. I’ve already spent almost $1000 on it, w/o any success. Where I live, doctors take a 2 hour class to learn about asking patients certain questions so that the patients can then apply for a state license; but the docs know nothing about how to prescribe. Patients are on their own to navigate the zillions of strains and doses and methods of ingestion available. The salespeople that I’ve spoken to have not been very helpful.

In short, chronic pain patients being abused by the gov’t is a national crisis. The focus on abusers ignores the many people in dire need, and legitimate patients and their pain managers need to organize and fight back. Of course, most of us are too weak and ill to do much fighting. This is an incredible nightmare. Maybe the gov’t will finally realize its mistake after the suicide rate among pain patients escalates high enough to attract media attention. But that will be too late for those who have taken their lives, and for the rest, those people will have endured huge suffering for no reason.

Brandy Hoover

I will write to him, and I ask that people ALSO write to governor Jim Justice of West Virginia. He and his Republican legislature have done almost exactly the same thing, and worse! No doctor can prescribe more than 1 week’s worth of an opioid–which is a major problem in rural areas, where it’s going to require multiple weeks of pain therapy to get over a surgery, but there is NO public transportation. The poor of the state of West Virginia are the ones doing manual labor, dangerous jobs, like logging, coal mining, and limestone mining. Their bodies are breaking down early. And now, even simply GABAPENTIN has been classified as a narcotic and restricted, here!

Please help us. PLEASE hear us. Some days I don’t even want to wake up. If I manage 3 hours of bad sleep a night, it’s a miracle.

Danny

Even though I am not a Missourian, I wrote the Governor. His predessor was booted out of office because of a wide variety of illegal, immoral and unethical actions. I believe his actions should bring every decision and order he made under intense scrutiny. And the one stifling doctors and pharmacists from RESPONSIBLY treating chronic pain sufferers should definitely be rescinded. Every reader of this article should use the link to contact him and urge him to rescind such a draconian order and help our fellow pain sufferers that live in Missouri.

Kris

Thank you for the opportunity to contact Governor Parson. What happens in Missouri will set precedent for all states and those of us with chronic and pain will suffer. There will be more suicides as we try to live with unrelenting pain. There will be more disability. This issue doesn’t only affect the CPP but it effects the friends and families as well, as they stand by, helpless to ease their loved ones pain.
PLEASE WRITE or EMAIL GOVERNOR PARSON, no matter where you live. His contact info is included in the article. It only takes a few minutes and and could effect all of us with chronic pain.

Debbie Nickels Heck, MD

Good for Rep Moon for standing up for pain patients! Few have the courage to do this. Perhaps he will be an example for others, ESPECIALLY if he is successful in his efforts. We can hope the NEW Governor will listen and do the right thing by giving Drs the right to practice medicine again without the fear of wrongful prosecution & get those in pain back to being productive citizens in their state.

Dragonfly

Hey Nirth Carolina suffering too. I been begging since last October for my pain management back. Been on it 10 years for incurable disease. My quality of life is [edit]. I dont go street for heroin or fentanyl but I’m being punished like I have. You are pushing us to our limit.

I don’t know what it’s coming to anymore. I’m currently living in a small, one horse town you might say here in Tennessee. A couple of days ago I was taking my mother to see her husband and noticed a large billboard about opioids and the harm they caused. I literally couldn’t believe it!! I know one thing, I got up an hour and a half ago…well my knees woke me up. Twenty minutes after I was up I took my pain medication and now I can walk. Let me be the first one to say this morning that they caused absolutely no harm at all…. quite the opposite! I have an 18- hour day in front of me, so walking is going to come in very handy for me today!