What is believed to be the largest-ever patient survey on chronic pain is being kept open. Over 3,000 chronic pain patients and loved ones have filled it out in the last year.
“There’s nothing like it out there,” said Terri Lewis, Ph.D., who is the study author.
She told the National Pain Report this week that the survey has generated over 200,000 lines of comment data which she and her team are busy tabulating.
One thing she told us really stood out—that respondents have tried 262 different alternatives to treat their chronic pain.
If you have not yet filled out the survey, you can do so here.
You’ll note that this survey originally was designed to present data to the FDA for its Public Meeting for Patient-Focused Drug Development on Chronic Pain last summer. But Dr. Lewis has kept the survey active because of the vast information it’s generating.
She said that the data collected will be able to use in three basic ways.
- “What the survey results can be are a weapon for people to take to their doctors, to their fellow patients and to their state legislature.”
- “The data will also give clinicians the confidence to change their behaviors and not be cowed by the government.”
- “It should also be a driver in helping change and create uniform policy which ultimately will hold people accountable to do the right thing.”
Dr. Lewis points out that a big number of people who are responding would otherwise be in the prime of their working and economic lives were it not for injury and illness that they endure.
“They are very unhappy with the system they have to rely on. They are extraordinarily negatively impacted by shrinking footprint of healthcare and public policy,” she pointed out.
Many of the respondents have been dealing with their illnesses and injuries for many years and had achieved some degree of stability of care until the opioid wars destabilized their provider system.
If you have not yet added your voice to this—please do.
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To follow Dr. Lewis, and to keep up on her on behalf of chronic pain patients, find her @tal7291