By Ed Coghlan.
The National Pain Report is asking patients to share their stories this month, which is Pain Awareness Month.
We’ve received a number emails from people who are frustrated with the crackdown on opioid supplies, believing they are using them responsibly.
Rita Kimbrel is a 57 year old neurogenic pain sufferer whose problems began in 2003. Like many chronic pain patients, it took years to get a diagnosis with many procedures that didn’t help and now is hurting again. Also like many chronic pain patients, the impact on her finances and her family were life changing, and not in a good way.
“I made it this far. I’m not ready to die yet and some may I will get oxycontin back so I can function,” the Pennsylvania woman wrote. “Not even my best friend knew I was taking it.”
For Karen Christensen, a 70 year old retired nurse in Florida says her activity has been curtailed.
“I recently climbed 321 steps at Talula Gorge Falls in Georgia. I can do things like this if I have my pain medications,” she said.
She also said that she wrote Florida Attorney General Pam Bondi and complained about the opioid reaction and the pills mills that are still operating.
She never heard back.
Ralph Maddox was injured when he was unloading a chemical tanker truck in 1992. He said he is dumbfounded by the CDC. He blames the Veterans Administration for making things worse. He’s been taking opioid medication for 20 years.
Hayden Hamby is a 59 year old native of North Carolina, who has been suffering with “continuous, personal pain since he was 35.
The licensed general contractor has endured numerous procedures that have not been able to work as much since the CDC Guidelines were adopted.
“I have written to the North Carolina Medical Board so many times that I no Longer get a reply,” he wrote.
He also mentioned an item which frustrated chronic pain patients in many states. The North Carolina Board told him that their guideline should not interfere with Hayden’s ability to receive proper care.
“What a lie,” he writes.
Cheri Fur of North Carolina who says 18 years ago she was operated by a surgeon convinced she had a tumor but she work up in extreme pain.
Later she was diagnosed with CRPS.
“There is no alternative for opioids for me. I’ve tried everything else,” she writes. “Travel and golf lessons after retirement will never happen.
I have no hopes or dreams.”
The National Pain Report is interested in hearing from you. If you have chronic pain and have a story about how you are dealing with it, we’ll consider running it as a blog or as part of a story. Send them to firstname.lastname@example.org.