I was a healthy 22-year-old, I worked 50 hours a week on night shifts at a heavy job that I enjoyed because it kept me in shape. On the weekends I walked pretty much everywhere. I wasn’t a fitness fanatic but I had the energy to look after myself, now I am the opposite.
I remember my symptoms. At first, I had this pain in my left arm up to my chest, like a burning sensation and it was so painful I went to bed to rest.
I couldn’t take it I didn’t understand why I felt the way I did I couldn’t explain it and I was sending myself into overdrive worrying. I went to hospital the next day, I apparently had tennis elbow but I felt so weak.
That same night I went to a different hospital who said I may have pulled a muscle at work. I didn’t believe them either, I knew something wasn’t right.
Over the weekend it got worse the pain moved all through my body, when one part of body felt better, another part began to feel on fire.
Later on, that week I went to my doctors. My doctor never faults me on anything he thought I had a trapped nerve. I took his advice on board then I ended up going back to see him.
I had constant pins and needles in my feet, my eyes were a little blurry, my legs and back ached, my chest was shooting, and my jaw hurt so I would sit with cream on my body and a hot water bottle under my chin.
After two weeks my doctor printed me off some information on fibromyalgia. I’d never heard it but considering there was over 20 symptoms I matched every one of them.
I then had to go to see a nerve specialist. I have a nerve in my elbow that occasionally will play up.
Living with Fibro since my diagnosis –
I now listen to my body instead of fighting against it. If I need to rest, I do. I don’t over work myself; I have nothing to prove to anybody. What needs to get done, will get done, in my own time.
My doctor advised me to be careful about having a child as my body was weak, I wanted a baby, I was 24 and ready for the challenge.
I now have a 10-month old healthy daughter, a true blessing. So, I need to look after myself for her.
I’m soon to be 26. Since diagnosis nothing has changed, I still get bad days–sometimes those days lead to weeks. Mornings are the hardest especially throughout winter.
My concentration isn’t the best and my memory well, what can I say? Why am I so forgetful?! This for me is the worst most frustrating symptom of them all. I forget everything.
I have to put all my appointments, shopping lists and dates of outgoing bills into my calendar.
I don’t talk to people about my condition unless I am asked, for two reasons.
- They’ve never heard of it
- I don’t look sick when I have a flare up so they don’t take much of an interest
I wanted to share my story with you.
I hope it helps you all and remember you are not alone!