My Story: Tackling the Stigma of Low Back Pain

My Story: Tackling the Stigma of Low Back Pain

As a registered nurse who had overcome several injuries and fractured bones, I arrogantly believed I knew everything about pain and assumed my back pain would be a quick fix. I was dead wrong!

I started having back pain about six and a half years ago. At the time, I was very active – I did martial arts and participated in volleyball and softball leagues around my hometown of Bourbonnais, Illinois. Then my pain became so consuming I had to limit, then eventually quit, all physical activities. I began seeing a specialist and was told I had a bulging disc. I started getting injections in the L4-S1 region of my back, but unfortunately this did not bring relief. The pain was so bad that I gave up looking for solutions. I allowed the pain to dictate my life and began to lose hope until my ex-wife asked me, “Why aren’t you doing anything for yourself? You’re a strong, educated, tireless advocate for others who never takes no for an answer.”

I began seeing another specialist, and underwent more injections as well as physical therapy. I was eventually prescribed pain medication, despite my wishes to manage my pain without it. The pain meds offered some relief, but not enough – sleeping, sitting and driving became nearly impossible. That led to my cycle of torment and mental anguish, and the realization I was maxed out on pain pills, patches and injections while increasing my debt without any relief or hope. The medications were expensive and masking, but not treating, my pain. The “stigma” associated with chronic pain began to consume my life.

Throughout that time, I faced the stigma of chronic pain. Before I would do anything, I would count the number of pain pills I had and think, “Do I have enough to cope with the pain? What if I run out early?” My doctor and pharmacist began suggesting I was a drug seeker. Even my ex-wife began to believe them. For three years, I was tormented with the anxiety of calling for a refill, fearing I would confirm what they already thought. My relationships with my ex-wife and children became strained. I isolated myself from my friends and refused to do any physical activities.

Eventually my doctor agreed to do another MRI, this time with contrast material, which helps make certain tissues or abnormalities more visible. The MRI revealed bulging discs and annular tears in multiple areas and my doctor told me I would need drastic surgery. While others in my immediate family have had back surgery, I wanted another opinion.

SI joint anatomy

SI joint anatomy

I finally sought the advice of a neurosurgeon, who reviewed my recent MRI and confirmed I did in fact have bulging discs and annular tears, which were relatively common among active men my age. But he suspected there was something else contributing to my back pain – my sacroiliac (SI) joint. He conducted a simple test to confirm the diagnosis, and I learned I could qualify for a new surgery that stabilizes and fuses the SI joint.

For the first time in years, I felt hopeful. I was enrolled in a clinical trial and was treated not like a hypochondriac or drug user, but like someone suffering from real pain. In order to have good comparison data for the study, patients were randomly assigned into one of two groups: one that got surgery right away, the other that had to wait six months and continue non-surgical treatment. Unfortunately, I had to wait the six months. When the doctor told me I had to wait, I broke down and cried. I was overwhelmed with the thought of enduring six more months of chronic pain and facing the stigma from the pharmacy.

Kyle McCord

Kyle McCord, shown with his youngest daughter, Brynn, after he had his surgery.

The six month wait could not end soon enough. I finally had the surgery on September 17, 2014, and I told myself, my family and my doctor I wanted to be off of pain meds within three months. My doctors expected my recovery would be longer and that I would be on pain meds for another six to nine months. But I was determined to end that part of my journey and wanted to control my own life.

Three weeks after my surgery, I was pain free and back at work without any restrictions. I can’t say SI joint fusion is the answer for everyone, nor does it bring the same results for everyone, but I am proud to say I have been pain free for eleven months. I am now an even stronger advocate for my patients and strangers alike who are in a similar position searching for answers. My advice is to never take no for an answer, and never let someone label you something you’re not.

Authored by: Kyle McCord

There are 6 comments for this article
  1. margaret at 11:02 am

    I am happy to hear that you are, now, a strong advocate for your back pain patients but your patients and those of others needed that strong advocate from the beginning. Too many health care providers lack the knowledge of the placebo effect in treatment. Part of that includes the psychological/emotional part of the patient/provider interaction which requires a lot of knowledge and personal experience. If a provider has not groveled around in their own *#^$ and learned to take back their projections on the world and not to take the world…in this case their patients…personally, then, the encounter for the patient can be more painful than the initial pain. The talented healthcare provider understands just how much healing can occur within the relationship itself. But, today, we hear that there is no time…then, there are the litany of reasons the patient is not being a good enough patient. What happened to curiosity and a general appreciation and acceptance for the human condition, As you must know, patients are routinely criticized, laughed at, and generally disparaged. The most caring physicians and nurses are the ones who have been a serious patient themselves. We need better training and each provider should have in depth therapy. Even though the mind/body connection is addressed in countless articles and books, etc…in practice it is not there and doctors and nurses are the first to ignore its power. Thanks.

  2. Kyle McCord at 9:44 am

    Thank you for the nice feedback
    Not sure if I can advertise other products and such. You can find all the info on my social media sites.

  3. Barry Triestman D.C. at 1:24 pm

    In the case of back pain we need a paradigm shift in how we look at it. We need to look at what is not working and moving correctly. Not so focused on the pathology. We need to access the direct area of pain a long with anywhere in what is known as the kinetic chain. ( these are the joints and muscle that effect painful area The closest to the S/I jt are lumbar spine, core (esp the Transverse abdominus, pelvic floor and deep spinal muscles), hip joint, knee, thoracic spine, foot, cervical spine. The closer the greater the effect. So that anybody that has an injury and wants a long term solution needs to address the kinetic chain. A chiropractor or physical therapist that is trained in the selective functional movement assessment should be the best person to help us figure it out. http://truckeechiropractor.com/node/48

  4. Terry Long at 8:04 pm

    So proud to have you as a friend and see you back to normal. Your article and story are amazing but an area not written about is your devotion to not only people with physical pain but to those with mental disabilities as well. Your career prior to being an RN is an area you should be commended in as well. Nice job, Kyle.

  5. Patti at 4:15 pm

    can you say what sij implant/ procedure you had and with what surgeon? There are now 13-14 different sij implants / fixation / fusion methods on the market and most of them are relatively new so it’s difficult to navigate.