National Pain Report Investigates Financial Burden of Chronic Pain with 2017 Survey

National Pain Report Investigates Financial Burden of Chronic Pain with 2017 Survey

National Pain Report conducted a large survey of people who suffer in chronic pain back in 2015.  The results were devastating, although not surprising.

The survey told us that over 68% said chronic pain has “an enormous influence” on their economic situation.  Nearly 79% were unemployed and 63% were unable to secure credit.  Slightly over 34% had filed for bankruptcy.

Much has changed since the survey was first conducted, including new pain medicines and treatments, as well as an enormous movement to curb the use of opioids that has been driven by government and the drug addiction industry.  The insurance landscape has also dramatically evolved as the ACA (“Obamacare”) has resulted in more people having health insurance, but also enormous increases in out-of-pocket costs. We have also seen changes in the overall economy in the U.S.

We are conducting the 2017 Financial Burden of Pain Survey to see what has changed, if things have improved, or if they have worsened.  Our goal is to partner with experts in the financial industry to determine what products or services National Pain Report can co-develop to help ease the financial stresses of our readers and of the chronic pain community as a whole.

If you, or a family member, have chronic pain, please take the survey.

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Authored by: Staff

There are 14 comments for this article
  1. Caryn at 8:35 pm

    Nana,

    In response to your remarks that this is not a Politucal Fight? Your very wrong! Sorry.
    When it’s the CDC dictating what medication and how much your allowed to have, if any at all and how many days and what criteria says your allowed to have that medication, I would call that a whole lot of “Political Crud”, as you described it. Your position that all of this is a Non Political crisus is based on what? The fact that a Government Agency has destroyed so many Chronic Pain Patients lives.
    It’s always a Political Crud issue, always!!
    What Politicians have you reached out to either via e-mail or calling their offices? I can tell you that we have been absolutely crucified by the Gov’t both Democrates and Republicans. The comments I’m reading are supporting my position that no one is listening to the facts anymore. If you studied history back when the Gov’t decided that alcohol was the evil destroying our Country and signed Prohibition into law, in no short order, the people pushed back hard, while at the same time drinking in illegal bars and making bootleg booze in their backyards in homemade stills.
    And when finally the Gov’t came to realize they cannot legislate morality and tell people how to live their lives and Prohibition was overturned, people didn’t go out and abuse alcohol. They drank as they always had. Sure, there will always be those that abuse alcohol, and have an addiction they must struggle with, but the responsibility falls on the individual to be a responsible consumer of alcohol.
    With the CDC taking the rights of Pain Patients and throwing them
    In the trash and making a terrible assumption that all Pain Patients are Drug Addicts and we have caused the downfall of America into deep hole of addiction and death.
    We know that these assumptions are false and we also know that we are NOT THE REASON that there is a severe problem with Drugs in this Country. But the problem statically is not with Pain Patients, it’s with illegal narcotics such as Heroin that are killing thousands of first time users throughout our whole Country.
    I still strongly maintain that the CDC and Gov. Christy and the NJ Legislature are all Gov’t Agencies or Elected Officials.
    As far as Christy moving up to Washington DC to head up Trumps Drug War Policy, I knew we were screwed far worse than already. Gov.Christy had promised the Pain Community and its leaders in NJ that the New Drug Bill that was being drawn up by the State legislature would NOT EFFECT
    Chronic Pain Patients care & access to medications thru their Pain Mgmt. Doctors.
    Well as we learned in NJ the hard way, he is a god damed liar, as we have all seen in New Jersey. We are loosing our Doctors, we are being forced down to doses of medication that is basically useless, and you still think the gov’t isn’t the driving force for our suffering?

    Maybe you feel that Trump and Christy and Sessions and the CDC are not involved in the fight we are in now, but most people do know that these people along with other elected officials and other Gov’t & State Agencies are making policies that are denying us our civil rights. We have a right to life liberty and the persuit of Happiness along with many other Civil
    Rights.
    Tell me, how can any of us have quality of life while suffering in horrible acute chronic pain?
    The answer is YOU CANNOT.
    And yes, it is a very Political Charged Assault against everyone suffering in pain knows who in Washington D.C just declared a ” Drug Emergency” that now gives Trump and his partners the legal ability to do anything he wants without Congressional oversight or Intervention or Imput.
    This has now become a even more dangerous and difficult situation for pain patients.
    I stand by what I first wrote and I stand by it even more strongly with this post.
    The Gov’t has become our biggest adversary and only going through legal challenges to the CDC flawed data & criteria can we hope to push back against this WAR ON PAIN PATIENTS, vs a WAR ON ILLEGAL DRUGS which is what it should be.

    To everyone I wish you all strength and support to get through your very long and difficult days and nights. I know as I am suffering right there with you and I hope we can all stand strong together and do whst they did during Prohibition. Push back hard and fight till everyone comes to their senses. In these days of a Trump Presidency, our issues are being pushed to the back on social media, news coverage and medical publications. This is a very difficult time to get anyone to hear our voices. But we must fight the random unjustified Government Intrusion into our private medical decisions that should only be between our doctors and ourselves.
    Period!

  2. Rochelle at 6:22 am

    I have been saying for months pain patients need to unite in a non partisan voting block. If there are 100 million Americans in pain across the country, thinknof the voting power we possess? Simply start voting these idiots out and in short order it wouldn’t take long for elected unofficial a to realize their comfy elected spot may not be long term!

  3. scott michaels at 3:18 pm

    We hear you but nobody cares.
    If we gather like the friggin natzis did, maybe we will get coverage. The difference is well be in wheel chairs crutches and hospital beds
    THIS IS THE ONLY WAY TO BE LISTENED TOO. 3/4 SPOTS AROUND THE COUNTRY. CDC OFFICE CAPITAL BLD OND KAISER CORP..
    WE JUST NEED TO PICK A DAY HAVE THE PAIN MAGAZINES THAT LET US COMMENT SPREAD THE WORD. ASK A FEW PAIN RELIEVER MANUFACTURERS SPONSER THOSE THAT CANT AFFORD TO GET THERE AND NOTIFY ALL TV STATIONS THAT A MAJOR PROTEST IS HAPPENING. THERE ARE 30 MILLIONS OF US BEING TORTURED IF ONE TENTH OF ONE PERCENT SHOW UP THATS 30000 PEOPLE.
    THAT IS OUR ONLY SOLUTION AT THIS POINT..FIGHT OR FLIGHT

  4. nana at 10:34 am

    Caryn,

    This is not about political crud.

    Please let’s keep this on topic and leave the Presidential/Administration slurs out of it. Fights of any kind are seldom one sided. I think he is trying to bring some semblance of balance so the rhetoric/fighting will stop altogether. I pray it will stop. There should be peace ON BOTH SIDES.

    There is enough on both sides of the isle that if this were a political forum we could go to town.
    But it is not.

  5. Mark W Helfand, DDS at 10:12 pm

    I’ve done that. Insurance companies are in business to make money, not help people. As long as the medication isn’t indicated for chronic pain, they won’t pay.

  6. Caryn Abrams at 9:39 pm

    Dear Pain Patient Community.
    It has become very clear to me after reading the recent actions taken by Sessions, Christy and Trump we are facing a much bigger battle than we ever could imagine.
    It’s hard to maintain hope and a fighting spirit when I read every day their WAR IN CHRONIC PATIENTS along with two other big issues, one Sen. Booker pushing for legalization of pot on the Federal
    Level but There’s again Sessions pushing back and looking to make pot even
    A higher criminal
    Offense than it already is and targeting states that have legalizing it.
    I have fought very hard, but I do not see a way to win this.
    If I had to live my life in Severe Chronic Pain with no access to Medications,( as I’m hearing more and more ) my quality of life would not be worth living.
    I would consider suicide as a last measure because of my religious beliefs.
    But I will not suffer as we all see this Nazi Corrupted Gov’t being run by a corrupt NJ Gov Christy sitting on the Oppid Panel, Keff Sessions, a known man with a history a
    Of Racists
    With a racist element in our White House and a President who cannot call a bunch Nazi worshipping and
    Jew and black hating White Supremacists taking a car and in a terrorist act ran down and Millie’s an innocent young woman in the streets of Virginia yesterday. Along with her death, two police officers died after their chopper crashed.
    So what did Trump not say?
    Trump could not even call them what they were.
    White Supremacists, Nazi Jew haters, black haters and sickos who believe that the Jews and the blacks are stealing their Country!!
    Do you all really believe that we have a chance in this fight for the truth re Opioids and the actual decline in fact that the number of scripts written in the last 5 years has gone down significantly?

    If you can tell me who is
    Listening to all of us and will help us to fix these NEW horrific actions Jeff Sessions had taken against us, the Pain Community and have a direct effective plan to push back hard and fast, count me in.
    My meds have been lowered, I’m in in pain every day and I still will fight.
    But we need Politicians willing to listen to the truth in this fabricated numbers thrown out by the CDC that Prompted a DRUG EMERGENCY THROUGHOUT OUR COUNTRY.
    By doing that, it gives Christy and Sessions and Trump The Legal right WITHOUT CONGRESS Being brought in TO ENACT ANYTHING THEY feel
    Is right, let the science be Dammed all done by executive actions, Trumps Favorite way to Govern.
    It’s [edit] and it’s a lie and Trump and Christy are shoving our rights right down our throats.
    We have no rights anymore!!
    We need Politicians on our side with the political wisdom and strength and education to be willing to re-analyysize the faulty CDC facts used to write the terribly false and inaccurate Recomendations that have DESTROYED and is now killing Pain Patients in every State. now, not Our controlled pain meds.
    I am willing to let anyone tell me if we have the strength to win this fight?
    Do we have anyone in Washington who is listening to our TRUTH?
    Speak TRUTH TO IGNORANCE, FALSE DATA, Fake Stars, speak truth to power and fakes them to recant the 2016 Rec. And everything that has happened since then!!
    Tell me yes and I’ll fight like hell.
    This is a war and we are the enemy and your Totally ignorant POTUS Trump, and a factually correct racist attny General spitting out new very strong restrictions directed at Opioids when Street drugs are killing people at break neck speed, the first use and dead. Who is stopping and attacking the Heroin addicts in the streets? Illegal drugs will always be easy to get.
    No tracking, no insurance, no pre-authorizations, no CDC INVOLVEMENT, on & on!!
    Please write back and tell me what we are doing and who will help us fight? Which Senators which Nembers i of congress m, anyone? As I see no one sticking their necjs out to Bring and Fight Truth to Power. No where.
    Thank you everyone who is pissed off and being scapegoated for the ILLEGAL DRUG CRISUS IN AMERICA.
    I am tired of writing letters that NO ONE EVEN READS!!
    Help me to believe we have a chance I hell to win back the care & meds we need to function in our lives while suffering in Chronic Pain?
    By name is Caryn and my e-mail address is below. Tell me why I should not just give up?
    Is there a VIABLE PLAN?
    Tell me what it is! I would LOVE TO KNOW WHO IS OUT THERE CARING TO BRING THE TRUTH INTO LIGHT!!
    Good Nite fellow pain Warriors, sleep
    If you can, I know it’s hard.

  7. scott michaels at 8:39 am

    Shop insurance conpanies. No medicare covers high dose opioids again. Ask them …

  8. scott michaels at 4:43 pm

    If opioids reduced your oain you must find acdoctor to help you. Ive tried so many things. Nothing works.its all snakeoil.
    Or its a operation that causes even more pain.
    OPIOIDS WORK FOR US. THE CDC EXPERIMENT FAILED. JUNKIES GET LOADED USE HEROIN AND PARTY. WE JUST WANT TO GO TO THE MARKET

  9. Mark W Helfand, DDS at 2:59 pm

    I couldn’t agree more. I’m a retired dentist with Complex Regional Pain Syndrome for 18 years. I have Medicare and a prescription supplement that I pay for. My medications cost over $5700 a month(heart attack, high cholesterol, high blood pressure, depression and pain) , $5100 is for my pain meds. Yes they are opiates and yes I have to pay for them myself. Their primary indication is for terminal cancer pain. Unfortunately, I don’t have cancer and I have to live with this pain for the rest of my life. Since I don’t have cancer, they legally deny to pay for my pain meds. If I was dying, they would pay, Lucky me. Before I got CRPS, I paid for my own disability policy. If not for that, I’d be homeless. Even with that, my expenses exceed my income more months than it should. When my credit cards are maxed, I’m not sure what I will do. Isn’t government help wonderful? ¯\_(ツ)_/¯

  10. nana at 11:24 am

    Do we have a good credit rating>? Yes. Does it cost us? Horribly. Our credit rating is because I have stopped the confrontations. I avoid filling rxs if we don’t have money. We are seniors. Can’t go back to work to re-earn it. . So if our money goes we go on welfare.

    I have gone to only 3 doctors this year. Last year? Fly to Mayo Clinic for 10 days, drive to Salt Lake 3 times (I stopped because I was tired) Drive to Portland Oregon (for treatments or procedures all..) 6 times. One denervation I found out Medicare was crawling through 10 years of approvals and reneging on them. I had to sign that I was willing to pay $14,000.00 for it if this happened. That is right FOURTEEN THOUSAND DOLLARS FOR A PROCEDURE TO ALLEVIATE PAIN IN MY LOWER BACK.Later I found out there is legislation to prevent insurance from having to pay for this.

    It is not an opioid!

    That is why I call it a chronic/persistent pain Holocaust.

    They know it would be cheaper if we died.

  11. Rochelle at 5:16 pm

    The survey is fine if you are working. What about all those that are not working due to disability or age? Those of us on SS haven’t had a money raise in three years. The copays for a medicare advantage plan are outrageous. If one is living on a fixed income and does not quality for medicaid, the costs can be astronomical. Forget about getting equate dental care if you don’t qualify for medicaid. A MA plan covers some dental but not a lot. There are many co pay issues missing from your survey, it is sadly lacking.

  12. Tim Mason at 6:16 pm

    Concerning death and overdose it was stated that 147 people die each day from overdose.
    Actually 153,000 people die each day of something. That overdose death is <0.1%
    reference Searching for Truth ISBN #978-0-615-27694-6

  13. scott michaels at 7:34 am

    Financially things are worse because the insurance companies still get paid yet we now get a lot less medication for the same copay. Epidural are elective so if you want one. THEY NEVER HELLPED ME, IT’S GOING TO COST. I NEED TO PAY PEOPLE TO CLEAN MY HOUSE. WGEN I WAS GETTING THE PROPER DOSE I HAD A LIFE. ALTHOUGH DISABLED I HAD 3/4 HOURS A DAY I CAN BE PRODUCTIVE. GETTING OUT OF BED IS LIME STEPING ON SHARK ROCKS AND MY NECK AND BACK ARE IN A VICE. AS KAISER CONTINUES TO REDUCE THE PAIN GETS WORSE. I START MRDICARE NEXT MONTH. I AM PRAYING MY OLD PAIN MGT DR WILL TREAT ME LIKE HE USED TOO.
    KAISER JUST WANTS ME GONE. IM A STASTISTIC TO THE CATTLE CALL. I NOW UNDERSTAND WHY PEOLE GO TO THE STREETS FOR PAIN MEDSICINE. IF I COULD I WOULD. THE PAIN IS SO BAD. IT’S NOT WORTH IT ANYMORE.

  14. Dr. Mark W. Helfand at 4:32 am

    I think the survey is a great idea. It gives a great deal of information. However, with a few more questions, more insight could be gained. For example with the cost of chronic pain. The dollar amount is informative, but breaking it down a little could tell a much more complete story. Such as: cost of medication, loss of income, hospitalizations, assistance needed and/or technology.

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