National Pain Report readers continue to have strong disagreement with the federal government and its role on the supply and dispensing of pain medication. Some recent letters to the National Pain Report indicate a desire for action.
Kelly Wadsworth is a CRPS patient who says that her local pharmacies are telling her they don’t have the supply to fill legitimate prescriptions.
She wants action: “I would like to know which public officials need to be contacted to get some action taken about the short supply of hydrocodone in our cities…there are more chronic pain patients needing this medication than the regulated supplies given to the pharmacies each month! I had to go to 5 different pharmacies to fill my legitimate triplicate prescription and was told that this is an ongoing epidemic.”
Gerard Genovese is a 66 year old Las Vegas man who sent us a long thoughtful note. His problem has been finding doctor.
He was an active youth and man – who played football baseball and ran marathons. In 2003 he was involved in a head-on auto accident in which he fractured four vertebrae, all his ribs and both his ankles among other things.
His pain doctor “released him” and he’s not been able to find another pain doctor who will take him as a patient.
His frustration was palpable. “I need a doctor that will listen to me,” he wrote. “Not one who tells that I don’t hurt.” Gerard has been on disability since 2007 and thanked us for our work at the National Pain Report.
“I just want to be believed,” he said.
Heidi Winkler is a 50 year old woman who is also from Las Vegas and says she has “faced humiliation, the same looks, the same monthly stress” when she picks up her medication. It’s at the pharmacy where she feels uncomfortable.
Her doctor has been “working with me”, she says, calling them “compassionate, understanding and wanting to help.” The doctor even writes her prescriptions early.
But her pharmacy (a CVS store) – where she’s been going for ten years – has changed its policy, she says and will no longer fill prescriptions at the 28 days point.
She’s looking for a new pharmacy.
The National Pain Report has been promoting a survey being conducted by Terri Lewis Ph.D. Dr. Lewis indicates that many of the issues our readers were talking about are surfacing in that survey as well, which she says has some very interesting results. We’ll be publishing this as she gets the data developed and analyzed. Here’s the survey link if you want to take it.
For another of our readers, Australian Elizabeth Gilhooley, it wasn’t access to physicians or pharmacists. It was simply a thank you.
“I have read them all, your articles with great interest and they have helped me greatly. Each one has been very useful indeed. Thank you for all your articles. I have shared all your findings with friends in a similar position with me as regards to pain. Thank you once again for all the information and insights they have given me.”
Thank you, Elizabeth and all of our National Pain Report readers.
These responses came from readers who received our monthly newsletter. If you’d like to join that list, you can subscribe to our monthly newsletter at the top of this page.
If you have comments or story ideas, let us know by emailing me.
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