100 is our goal! There are 10+ million people living with Fibromyalgia in the USA and we need 100 people to contact me ASAP. I will tell you why later.
44-year old Mildred Velez was diagnosed with fibromyalgia in 2007. The New York woman, like many, is bothered by the fact that fibromyalgia is often not diagnosed correctly. The problem she (and many) believes is that doctors don’t often know what to look for.
Mildred is not a woman who lies around and suffers in silence. In fact, much to the contrary, she has attacked the disease using yoga, massage, walking (lots of walking) and even just trying to slow her life down, as she says “taking a break from the world”.
And oh yes, she also has started a non-profit organization designed to build awareness and encourage more research into the disease.
It’s called the Fibromyalgia Care Society of America. Here’s their Facebook page.
As I mentioned she does lots of walking to help manage her disease, for which by the way she no longer uses any medication to manage. She has a full-time job and is a very busy woman.
Why we asked her, would you start a non-profit?
As she said in an open letter to the Fibromyalgia community:
There are many terrific groups doing different things to help advance our cause. Some are focusing on awareness and/or research. I am appreciative of all the scientists, doctors and advocates; yet I continue to hear horrible stories of how chronic illness destroys so many lives. I hear stories of people contemplating suicide due to the unbearable pain; I hear stories of people not eating for days because they are bedridden and do not have a support system; I hear stories of people’s dreams and goals coming to a halt because fibro has stolen who they once were; I hear stories of people leaving their doctors office in tears because the science has yet to be discovered and the medical community does not know how to help us.
So Mildred’s answer is to do more. She wants your help. No matter where you live if you want to do something to get involved in the battle against fibromyalgia, Mildred’s organization might be a good place to start.
To read her full letter CLICK HERE
To contact her by email: Mildred Velez
To follow on Twitter @Fibrocares
To follow us on Twitter @NatPainReport