NIH Pain Task Completes Its Opening Session

NIH Pain Task Completes Its Opening Session

by Ed Coghlan.

The NIH Pain Management Best Practices Inter-Agency Task Force concluded its initial two day meeting on Thursday adopting an aggressive timeline to recommend updates to best practices in pain management to federal agencies.

A final report is due in 364 days.

The 28-member group, comprised of academics, practitioners and a pain patient advocate, will draft recommendations that the public will see in early January before the final adoption.

Between now and then, a lot of work must be done.

Three subcommittees were formed;

·         One will work on treatment:  medication, physical therapy and surgical procedures

·         Another will deal with psychological and stigma issues

·         A third will look at complementary and alternative medicine, education and access to care.

While these areas are distinct areas of study, they also interrelate which was not lost on any of the participants.

Dr. Howard Field Professor Emeritus of Neurology and Physiology at UC San Francisco addressed the federal bureaucracy issue when he said the CDC has guidelines, the VA has guidelines and the FDA is going to develop guidelines and now the NIH is going to create some guidance.

“It’s a nightmare scenario,” he said. “We need one set of guidelines.”

Dr. Vanila Singh, the Pain Task Force Chair who is the HHS Chief Medical Officer reassured the group that the impact of this work will mean that federal agencies, “will be working in concert and not in silos.”

The task force has been charged with the following:

  • Propose updates to pain management best practices
  • Issue recommendations that address gaps or inconsistencies for managing chronic and acute pain
  • Provide the public with an opportunity to comment on any proposed updates and recommendations
  • Develop a strategy for disseminating such proposed updates and recommendations to relevant Federal agencies and general public
  • Provide expert advice and recommendations for pain management and prescribing pain medication

While the two days were rich in content with presentations on clinical topics, prevention and treatment, mental health and addiction, special populations and the need for more research, the most interesting moments were when the public was allowed to speak or the Task Force members talked among themselves.

Many members of the public were either chronic pain patients or representatives of organizations that represents groups that suffer from chronic pain.

The impact of the reduction of opioid prescriptions was mentioned several times both by persons who attended the meeting or were on the phone.

As one said, “for those of us with chronic disease, navigating the health care system before the opioid crisis was very difficult. Now, it’s nearly impossible.”

The group will be working in their subcommittees over the next several months and will gather again in Washington, probably in late September.

Subscribe to our blog via email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Authored by: Ed Coghlan

38
Leave a Reply

2500
38 Comment threads
0 Thread replies
1 Followers
 
Most reacted comment
Hottest comment thread
31 Comment authors
  Subscribe  
newest oldest
Notify of
HOWARD HEROLD

IVE BEEN DEALING WITH CHRONIC PAI FOR OVER TWENTY YEARS, I TAKE OPIOIDS, AND THEY ARE NOT ABUSED !!!!! IM TIRED OF THE GOVERNMENT TELLING ME WHAT KIND OF PAIN MEDICINE I CAN TAKE !!!! I CAN NOT TAKE NSAIAD’S, THEY MAKE ME SICK, SO LET US CHRONIC PAIN PATIENT’S DECIDE WHAT TYPE OF PAIN MEDS WORK FOR US. THANK-YOU

Melissa Gressman

Here’s an idea. Stay out of my doctor/patient relationship. I was better before you got involved.

Joe K

I listened to the committee and unless they throw out the CDC fake guidlines , they will be making recommendations on false and misleading information. The 90 mme is just wrong, one size does not fit all. Opiates work great for pain wether long term or short. The cherry picked studies are the biggest failure yet how do you come to a honest truth finding if you cherry pick studies. What a sham, and the group at the CDC that did this should all be fired. They have caused more suffering and abuse to women , because I think they are the biggest group effected and most of them over 40 years old and the last thing any pain sufferer needs is to have there pain care upended. Tell me they didn’t know this, What a travesty,this needs to be addressed now. Let’s see what this committee will do, probably nothing good unless they get honest, pull the guidlines and start over. We can hope cant we?

Richard Reifsnyder

Hello,How generous the committee is to give our fellow CPP,S 3 minutes to speak.Like Maureen posted 8 members are related to Substance Abuse or OD Deaths.To me,I certainly hope Iam wrong,but this committee looks biased a window dressing just to pacify is.With me,I have failed back syndrome,severe nerve damage,degeneration of spine and instrumentation in lower back,chronic pain syndrome etc.What really bothers me is NarxCare,Iam prescribed ambien for insomnia and 0.25mg Xanax for anxiety.I presume for me to get what little relief I receive from my pain meds I can’t take any other medication Iam legally prescribed.PM decreased oxycodone from 160mg/day to 60mg/day.I have had a decent quality of life since 1998 since I started on pain meds.So the new game in town is Red Flag CPP,S that have other medical conditions.I read these post every day and it is so sad and ******* disgusting what is going on.If we find a Human Rights Lawyer I will donate like most of our people would.It seems like every week the CDC/DEA come up with something new to jam down our throats to make us inhumanly suffer more.This is like someone who got a DUI and the government turns around and takes 100 million of our driver licenses away.For 1% of Abuse or Diversion Of Opiods the other responsible 99% gets inhumanly tortured and hammered on for 2 years now over lies and fictitious numbers.

1oldbroad

Carl, you are a person who abused your pain meds for how long? And you have the nerve to tell those of us who actually take out meds responsibly to just wean off the opioids we need & use correctly? Are you kidding me? Oh, and we can do it thru a methadone program. Well, gee whiz, thank you for that advice. I will tell you that because you decided to abuse your meds does not mean we are drug addicts like you were! I have been dealing with a multitude of medical issues and chronic pain since 1986. I have done any and all things I could to help myself try to do anything besides take pain meds, nothing helped me. Nothing. And most pain patients, unlike you I might add, do not abuse our pain medications. We need them so we can function and lead somewhat of a life. Shame on you for thinking because you can function without them that we can too. Just tells me you might of dealt with pain, but do not understand the depths of many other people’s pain. So, excuse me for being so ticked off by your attitude about how we should just get ourselves of pain meds since you view us as addicts like you… because sir, I myself, am nothing like you. So you keep preaching what you “feel” will help all of us “drug addicts” but for me, I will say I am not or will ever be like you and misuse my pain medications. So please, get off your soapbox and just don’t try to tell us what we need or call us such derogatory names like you call yourself. No disrespect, but it just irritates me to be talked to like you felt the need to do. Have a good day.

Rich Reifsnyder

Hello,Read Maureen’s comment.This sounds like a Biased Commitee to me.Numerous people worked on government committees and 8 members were related to substance abuse and overdose deaths.Wow we need a biased committee that takes 364 days,I really feel ******g Great now.It really can’t get worse for us,yea sure!!!!’

Kim

I wanted 2 response 2 Heather. Having a chronic illness & alot of pain, Prednisone was my go 2 drug 4 pain & fatigue. I was on it for yrs until my addreal gland failed. I wasn’t addicted to it , but it was the only drug that made me feel as close 2 the person I once was. I wish MDs would have explained more 2 me regarding the long term side effects of it. Looking back I made a big mistake . I can’t change what I did but I hope my story will make others think b 4 they use steroids. I still have a chroinc illness but also need knee replacements, spinal fusion & neck surgery which I am unable 2 b appoved 4 until my addreal gland is fulling working again. My system is still not normal after 4 yrs.

Tabitha

I’ve been on long term opioid treatment for almost 20 years and it has allowed me to live my life, make over 100k a year where without it I would be on disability . They have been reducing my meds and with each reduction I am.in more pain and am less active . I am to the point where I k kk have enough meds to make it through the work day and the remaining time I am in bed and they want to reduce me even more. I am someone with a clear MRI with a diagnosis verifies I have multiple very painful diseases and they do not care because some politicians are attacking pills I stead ot stopping heroin. I have begun planning my suicide . When they ultimately take away my medications I will first go to the street until i am caught and from there i will need to do what needs to be done because i will never go back to living in that kind of pain again . These people are irresponsible monsters making people on opioids legally synonymous with heroin addicts stigmatizing our doctors and us. We need the chronic pain patients protection act. If and when I do need to take my life do to the pain I will make sure my body is found on the steps of the lesglitive body for my state with a sign that says “you are all.murderers ” sign CP SUFFERER NOT A HEROIN ADDICT

Lynda Hillebrenner

It really is time for those of us who suffer with chronic pain to be heard. I urge everyone to fill out the survey from the FDA before June 17, 2018. If we don’t speak up nothing will change, and many of us can’t live with the way things are today. I will be contacting my state and federal congressmen, again! The last time I did, I got a letter that said that they were going to push as hard as they could for opioid reform to keep people from overdosing and misusing them. Not one of them was empathetic to the plight of chronic pain patients. I am also going to try to contact my local television stations to see if they would be interested in listening to the “other side” of the debate on opioid restrictions. I’m pretty sure no one will be interested, but I’m still going to try. Another avenue to try is to write letters to newspapers explaining our dilemma. It may not get much attention, but at least I’ll feel like I’m doing something to help instead of just sitting back and waiting for the end of my quality of life. If anyone knows of a chronic pain group that is taking donations to inform the public about chronic pain patients needs and what the current situation is doing to us, please let me know. We need to be heard!

Heather

Carl (continued)…
Now I’m on an opioid. I still have pain, but I went from barely being able to work (which was why I was going to commit suicide…) to making it through the day. I often don’t take my maximum daiIy dose. I’m aware of tolerance… You need a higher dose over time because of tolerance. That’s your body “gets used to” a dose. It’s not addiction and it’s a natural body response. Now, if I suddenly discontinue my meds, I might go through withdrawal. Some people confuse this with addiction, but it isn’t.

I also take prednisone from time to time because of asthma. It lets me breathe, which also gives me quality of life (keeps me alive and usually out of the hospital!). When I’ve been on prednisone for longer than a few days, we have to taper the dose down the dose. My body becomes dependent upon it. With a sudden stoppage, my body doesn’t produce its own natural chemicals the right way and I go through what’s equivalent to withdrawal. Am I addicted to prednisone? I don’t crave it. I wouldn’t lie to get it. I wouldn’t steal to get it. I don’t think about it when I don’t need it. My life doesn’t revolve around it. But my body has to adjust when I stop taking it. The same thing happened with a muscle relaxant… The same thing happens with anti-depressants. Yet, I’ve discontinued muscle relaxants without looking back. I turned Soma into the police station for drug take-back day because I didn’t intend to continue using it. I had some withdrawal from it… but I turned it in without a second thought.

Opioids have a function in allowing me to get myself out of bed, letting me work full-time (almost… it’s a struggle for sure), letting me do a little physical activity to try to reduce my weight so that I’m at less risk for diabetes (runs in the family) and I don’t end up taking MORE meds to manage other chronic conditions that are held at bay by me having some ability to exercise and cook healthier meals. I don’t even know if I’d make it to the grocery store regularly without opioids. Without opioids, I couldn’t work… I couldn’t support myself. I couldn’t afford health insurance. I wouldn’t get out of the house much. I would put on weight and become less mobile. Those aren’t a psychological need for the medication. I’m not addicted. I was heading in that direction when I was in my mid-20’s and planning my suicide.

Please try to understand the difference between addiction and dependence and tolerance. Please. Thank you for listening.

Heather

carl,
I am not addicted. Before I was taking an opioid, I had chronic pain to the point that when doctors turned me away, I was almost ready to end my life. I had one more thing to do: Say good-bye to my parents over my Christmas vacation. Then, that would be it.

On my way to visit my parents in 2009, we were in a car accident. I insisted that my mother get checked out at the scene because she had spine surgery not too long before the accident. In the ambulance, they asked me if I was OK. I thought, “It doesn’t matter… They won’t believe me about my pain. Nobody has. I was having numbness in my hand that was new, but who cares… I wasn’t going to be alive much longer.”

The next day, I admitted to my mother that the numbness had begun affecting both hands. I was indifferent to it, but she told me she won’t get checked at her doctor’s office (as she’d been advised by the paramedics) if I didn’t go, too. She dragged me along, basically.

Her doctor started asking me questions about my sleep… Do I wake up feeling like my sleep wasn’t restful, restorative? He was touching points all over my body. I was surprised that they hurt, but annoyed because I was there for the car accident and my hands. I didn’t understand why he wasn’t asking about the accident.

Fibromyalgia. My mother has it. So do I, he said.

Get my medical records gathered up and find a specialist for fibro where I live.

After the appointment, I was in the car, and I broke out in tears. I didn’t tell my parents that the doctor may have saved my life. I had a direction. I had documentation that would be harder for doctors to ignore.

I didn’t know that I already had documentation. And that doctors did ignore it. A rhuematologist had diagnosed me 6 months before the accident. He wrote it in my records, copied my PCP but didn’t tell me. My PCP told me I was “just depressed” and denied me a sleep study when I asked (I also have sleep apnea, and now I know I have widespread osteoarthritis and cervical spondylosis and some neuropathy).

Continued…

Nancy H

The more I think about this, the more upset I get. It is outrageous to think that this committee set a “364” days
timeline. I quote Dr. Field, this is a “nightmare scenario.” How many more lives have to be lost before the chronic pain patient is heard and treated? Until a workable alternative treatment is found, medication that works should NOT be withheld because of the CDC guidelines. Let the doctors treat their patients NOT the government. Heroine addicts are treated with more respect than the chronic pain patient. This is INSANE.

Sue

As sad and ridiculous this whole mess is, I find the the “364 days” Humorous. However, not surprising considering the source.

Sue

This is exactly why I, personally did not spend my time filling out the survey. What was the purpose? Maybe it just created a job for someone in government.

Sherry

The stigma associated with chronic pain patients will never stop unless the media is forced to deal with the exaggerations and lies they spread. They started all of this. They have continue to place chronic pain patients in the same category as people that are struggling with addictions. Why can’t they see that these are two completely different diseases?! I fear that chronic pain patients that continue to endure and fight every single minute of every single day will never be respected or taken seriously. We have already lost so many of us simply because no one cared enough to help them. What happened to first do no harm? All we are crying out for is help. Help us stop hurting, please! I pray everyday that
this country will wake up see this for what it really is. Please, please help us stop the pain so we can live again.

P.S-A huge thank you to those patients who gave us all a voice in front of this task force. You covered everything I, and I am sure many others, go through in our lives. So, thank you so much.

*Sending thoughts and prayers out to the silent majority suffering endlessly in silence. You are not forgotten. 🙏

Nancy

Chronic Pain patients don’t have another 364 days to wait for more guidelines. This is insane. It is wrong to deprive people of medication when the medicine has been developed to help the pain. Chronic pain patients were not the abusers, yet they are now being treated like criminals. What happened to “Do No Harm”? The CDC guidelines have taken away the quality of life for so many people. This is inhumane!

carl s. dunn

Hate to repeat myself folks but every time I suggest a fix for your problem I am not published. I do have one! Methadone clinics for those of you addicted to opioids. You can wean off this drug at your own pace like I did. I am afraid this will not be published as CPP’s are not heroin users generally, but addicted to pills. Still, that is considered addiction, correct? So, N/P, I dare you to publish my remarks. I realize that many of the CCP’s are in pain and are medically labeled as such, but addiction is still addiction. You may find that after weaning off this drug, your pain levels are reduced as being on medication for pain actually raises your thresh-hold level, (1-10), and you may find you really don’t need so much as your mind tells you. As a recovered addict of pain pills using them for 30+ years and off all narcotics, I think I know what I am talking about, but, as all of us are different, this may not apply the same to all, just be aware of that. The leaders of the movement to reduce opioids across the broad spectrum of all patients using any narcotic for any pain reason has unfortunately gained a life of it’s own. You will not be able to stop it or dramatically change it’s direction. So you must find other alternatives or suffer extinction. It is a crime and a shame what our leaders are doing to the most vulnerable of American citizens but there it is. Now you must deal or die. I sincerely hope you are able to read this online if it is published so lets see what happens to this little bit of advice hard earned through the school of hard knocks.

Very sick

Welcome to the ‘NEW WORLD ORDER’. Government is in charge.

Maureen L Repmann

I went to the HHS Task force meeting and testified before committee. They only have patients 3 minutes to speak . I am a Chronic Illness & Disease patient but prior to getting sick I had a 26 year executive career in healthcare I Pain Management. I was not impressed with the balance of professionals on this committee. Most of them are or have been on numerous government committees this we have the same people peddling the same bias and ineffective recommendations. Also, at least 8 members had direct connections to substance abuse and overdose death. It begs the question why that bias would be an automatic disqualification when having to be objective about opioids for pain. I agree that this committee I tend to limit opioids and push treatments and protocols that are opioid free. This is dangerous as many interventional procedures carry risks and have not been proven effective. If we don’t stand up for our constitutional right to opioid treatment our government is going to take it.

Everyone who suffers from chronic pain, suffers more and more each day. The only expert in the 28 member group is the chronic pain patient. Is the member in charge from India? If he is ,how can he phathom people in the United states suffering when he is from a country where people are dying in the streets? Use cannabis for pain management and opioids for (break through) intense pain, end of story. Or ten more years of research for the other 27 members.

Gasper Patrico

I would hope the organization is addressing the ridiculous guidelines set by the goverment. Many of us chronic pain suffers are being sujected to unessesary strict guidelines regarding the use of opiate pain relievers.We are not the problem. Quality of life issuses for chronic pain sufferers need to be addressed and not swept under the rug because of bad doctors and recreational drug users.

Cheri Furr

I watched both days, and I don’t think anyone had a clue except the woman with chronic pain and the former veteran. When they heard the public comments, however, I think it opened their eyes a bit. I only wish they had allowed more people to testify before the committee. There was no one who had CRPS, for example. They discussed the need for a team approach thst includes alternative treatments such as accupuncture and massage plus mental health, but CMS, private insurers, and providers have to get on board. There is already a shortage of therapists with an MSW., Ph.d. or M.S. in psychology or any kind of credentials that take Medicare, and the co-pay is higher. I myself live in a metropolitan area and could only find ONE provider who took Medicare and was accepting new patients. My psychiatrist takes Medicare, but stopped accepting the mental health insurance that Aetna (my secondary insurance) provides. They did not address transportation needs. Those of us on disability who can’t drive can’t afford to just take an Uber or a taxi to appointments. There is no public transportation in a lot of areas, especially rural areas or neighborhoods away from business areas that sren’t close to a bus line. I think the doctor from Maine touched on that point, and it would be great if we could teleconference to doctors on a “team” who could provide several specialty consultations at once (once a patient had been examined physically and was an established patient). That wouldn’t work for the physical “alternative treatments,” of course. It was great when several members agreed that there needed to be pain management incorporated into medical school curriculums, which is needed, including education on rare and complex pain diseases. Treating a patient with dignity and compassion should also be included. But this committee won’t even make its final report for a year. Things like medical school curriculum changes, even if made today starting with first-year students would mean these specialty doctors would not even be in practice for eleven years. Even after a report is made in a year, there will be Congressional, DOJ and Presidential reviews. That could also take years, even if recommendations are adopted. In the meantime, what are we pain patients who have been cut off or tapered down from medication that worked for them supposed to do? The FDA needs to put a stop of raiding doctors’ offices so they’re all not afraid to prescribe! Pharmacies need to fill our Rx’s!

Sharon E Murray

Yeah, right. My pain meds are cut in half by Express Scripts so they can report “favorable” action to DEA, FDA, CDC and so forth. In the meantime I am paying out of pocket for the rest of my pain medications. It was 3 months of yelling and screaming on my part to get no where. I emailed all agencies without answer from any of them. This is discrimination and I complained to HHS about it and they have yet to answer my formal complaint. The DEA can’t do their job on the streets so they are attacking us the voiceless. Between the news and the commercials I have turned into a drug addicted criminal who will stop at nothing to get “high”. I used to be a grandmother who suffers greatly with arthritis, has meds that help me play with my grandkids and tolerate cooking and making cookies with the kids. Now your making me into a drug addict who will stop at nothing to get a fix. What!?! Express Scripts has no doctor asking me how my pain is today and they have no idea my circumstance or what I suffer with each and every day. I will stop myself from letting out what I really feel about them all, it’s unbecoming a grandmother to say publicly.

Rich Reifsnyder

Hello Again,I don’t know if the Chronic Pain Patients Community read this, but the government hired a company called NarxCare.This company has a data base of all prescribed medications and our criminal past.If there is a conflict we can be Red Flagged from our medications.Boy there is an awful lot of regulations and time and effort keeping a very watchful eye 👁 on CPP,S.Now every part of our life is being scrutinized to get a decent quality of life taking Opiod Pain Meds.I sure hope the Human Rights Watch knows about this.This whole issue is now totally out of hand.For the fictitious OD Death numbers by CDC there is a tremendous amount Time and Effort devoted to us Disabled Chronic Pain Patients and Veterans and it isn’t to help us or for our wellbeing.

Susan L.

Check out Reason TV’s most recent video on YouTube: it deals with this very issue (CP patients’ inability to receive adequate care.)

William Dorn

This sounds like a run round to me. Why should this take a year just to kill off thousands more pain patients. Come on everybody raise cane we do not have a year. We need a ad on tv showing real pain patients so the public can see the truth that we are not crazed drug addicts just everyday people in pain.

Paula K

As always things will be more difficult for us who need the meds for severe chronic pain, yet somehow the folks that don’t need them, can get them to sell. I have approximately 11 compression fractures between my lumbar and thoracic spine, spinal stenosis, and that’s just the beginning.

Lisa Hess

Though it stated that for Chronic Pain and Chronic Illness patients, being able to get medicine is nearly impossible these days. Yet, in your descriptions of respected duties per group, I see no mention of removing the CDC Guideline of 90MME before January 1, 2019. This is where concentration needs to be addressed and fixed ASAP. 364 days is too long for so many of us to wait! Devastation will be the result if nothing is done prior to the January 1 CDC MME Mandatory Guidelines. I guarantee that probably more than 75% of the Chronic Pain patients will suffer unless something is completed within the Government and get our medications back so we can have some type of quality of life, and for those are still working outside of the home will most likely end after January 1, 2019. These changes to the CDC need to be done now!!!!

Holly

I thought the same thing……..364 days????? God help us!

Right ! Federal Agencies all working together to solve a problem. Stop the presses the Appocolypse is here.

This is all for show or will be. Never in the history of our Nation has there been a GTOUP that consisted of multiple Federal agencies all working towards one common goal.

5 different Chefs will not bake the same cake.

Rich Reifsnyder

Hello,Wow,364 days!!Thats after Medicare wants to limit our pain meds on 1-1-2019.These Opiod Guidelines Are inhumanly making millions of disabled chronic pain patients and veterans suffer tremendous pain,stress,anxiety,high blood pressure etc.Iam 61 and documented from court that Iam disabled,a stack of MRI,S and X-Rays and have been taking Opiod Medication since 1998 and my quality of life was pretty good considering my conditions with lower back from 3 surgeries,failed back syndrome,severe nerve damage,chronic pain syndrome etc.I have had my pain meds decreased from 160mg/day to 60mg/day-oxycodone.Every month I get stressed going to PM doctor.With all my documentation these PM Doctors are trying to manipulate and intimidate you into ESI,which aren’t FDA approved,and all kinds of other meds and treatments.Everthing was fine until 2016 when my PCP wouldn’t prescribe pain meds any longer and gave me a script for 2 weeks of pain meds.I had to find a PM Doctor in the 2 weeks,thank God I did.I had ESI years ago and it made my pain worse.As for my severe nerve damage,scar tissue and bulging disks in back and neck and stainless steel rods and screws in back my Neurosurgeon basically said baby it and just take pain meds.Thats where PM Doctor is scared to death of the DEA.When I had my meds decreased the last time to 60mg/day he said his hands were tied and to Thank My Government For This.So basically he wants to try or give me everything for my pain,except he don’t like giving Opiod Meds to Patients if he could manipulate or intimidate you.So the pain is bad enough but add the stress to the equation and then it keeps building up worrying about what is next in my nightmare that Dr.Kolony and PROP started.So 364 days is a lot of time for a plan,while millions of CPP,S and Veterans are inhumanly Suffering and Dying.

Terry

Is this suppose to make me feel good? Like hey, finally, someone is doing something to help the chronic pain community, thank God, we’re saved! What a bunch of beaurocratic [edit]! There are hundreds of thousands of chronic pain patients who need help NOW! How about coming up with some temporary guidelines for legitimate chronic pain patients with stellar records and perfect urine tests, because there’s a bunch of us who are suffering tremendously right now, people are suicidal, they can’t play with their kids, grandkids, they can’t work, they can’t sleep, their bodies are racked with pain 24 hours a day, they literally can’t function anymore, all because the government got involved and screwed everything up for everybody. They just need to set temporary guidelines for chronic pain patients that can keep us going until they come up with realistic guidelines that make sense for everyone. How many chronic pain patients are on any committees trying to come up with new guidelines? I’ll tell you how many, ZERO, that’s how many. I guess what I’m saying is, it’s so frustrating hoping and waiting for our government to not screw something up for people, read and study the “real” statistics of overdoses and deaths for legitimate chronic pain patients because they would find that it’s less than 1% of all deaths and overdoses. I would love the opportunity to speak with someone who’s in charge and can make quick, decisive decisions RIGHT NOW so we can stop going through withdrawals, live normal lives, end our depression, stop killing ourselves because we can’t take anymore pain. All they have to do is help the chronic pain community first, then they can come up with new guidelines for everyone else. Most of the overdoses and deaths from opioids come from people using illegal heroin and fentanyl, those are the opioids that are the problem, not the pain meds that are prescribed legally by pain management doctors, so technically chronic pain patients should NOT even be any part of any new guidelines. How about this? If you are currently a chronic pain patient and your meds are prescribed by a legitimate pain doctor, your urine tests are perfect, you don’t run out of your meds early, and basically you’re a perfect patient in every way then you should be able to continue taking your pain meds and/or have your pain meds reinstated to the amount that you were taking before the new guidelines were put in place. I know personally it would save my life!

Kat Koe

This whole situation is out of hand and worthless!! What they needed to do was issue an immediate, temporary stay for chronic, intractable pain patients and allow us to, once again, have our opioid pain medication pre-CDC guidelines!!!!!!?? Or at least tell the pharmacies to stop harassing the chronic, intractable pain patients and just fill our prescriptions; and what about this 90mme junk? We WON’T survive until they get their s*** together. So Yes I’m angry!!!! How are we to make it until they figure it out????? For it to take a year for the three sub-committees to figure out what they need to do, then they’ll probably need to get approval before it’s implemented; oh boy, it could take forever before we see any changes!!! Plus they’ll need to get the insurance company’s and pharmacy’s on board, we’re looking at another year for those groups to implement their policies; so at least two more years!!! How many more people have to die and/or suffer in excruciating pain? They obviously don’t understand the urgency of the situation!!!! This is a joke!!!!

Kelli Davidson

I will not survive another 364 days…

Heather

Is there a recording of the sessions available online? I was unable to watch the sessions as they took place during my working hours, but am intensely interested in more details about what was discussed. This is so hopeful and relevant! It’s hard to be so optimistic and be patient. I remind myself that I have to be careful with my optimism, unfortunately.

Randy

It’s obvious yo any lay person, let alone any doctor that cares. That with three, and now a fourth discipline on how to treat chronic pain. Is to deny opoids pain medication from those people who have found a modicum of relief of thier pain via opoids.

To any one or family member caring for a chronic pain relative or patient. That a CO patient is not going to see any relief from opoids in the near future.

It’s hard to believe that any one in pain can not obtain a prescription from a licensed MD. Most if not all pain patients have went through a multidisciplinary action just to get the pain medication in the first place.

With follow up visits 1 to 3 months apart, subjected to random drug testing along with pill counts.

If there are doctors prescribing pain meds that violate these rules
Why punish the chronic pain patients who are jumping through hoops just to get thier medication.

364 days just to come up with a plan all four agencies can agree too. Is ridiculous. I urge all CP PATIENTS OR THIER ADVOCATES to rise up and give voice to this injustice we are having forced down our throats. A person in constant pain without any relief is cruel and unusual treatmemt.

I take a blood pressure medication, a blood thinners for AFIB, water pill with potassium for edema, all of which have warnings on them. If abused could cause death. There are so many Oct medications that could and have resulted in an overdose.
But you can get a prescription or just go to mist stores and buy them, no prescription needed.

I’d I never had to take a pill for anything I would be the happiest person alive. No I’m one of the most miserable.

Tammy

So mean while this June 1st is going to rake havic anyway over us pain patients…..

Steven

Does anyone really believe that there will be any pain medicine a year from now and therefore nobody still around that needs pain medication?