Opinion: Talk with the Doctor, Listen to the Doctor and Hope They do the Same

Opinion: Talk with the Doctor, Listen to the Doctor and Hope They do the Same

By Krissy Anderson

Kristine (Krissy) Anderson

Kristine (Krissy) Anderson

I don’t like to see doctors blamed for things that have happened because of government and private insurance company interferences. It seems like there is change around every corner today in healthcare, which can easily interrupt the job doctors are supposed to be doing, caring for patients in the best way they can.

I like to sympathize with doctors most of the time. It’s usually not the doctor’s fault when a patient has miles of hoops to jump through to get something done, like fill a prescription. On the other hand, some doctors could explain a little more to patients about conditions, medications, prognoses, etc. I’m sure we’ve all walked out of a doctor’s office with our heads cocked like puppies at least once.

My frustration with doctors is that there aren’t nearly enough who speak out in defense of themselves and their patients. Their voices are missing in so many timely conversations patients are having right now on social media and informative websites such as the National Pain Report. Their voices are needed to loudly defend their methods and their patients against insurance and governmental decisions that are ridiculous, and decisions about medicine made by over-titled suits who happen to have jobs they believe make them some sort of reigning kings and queens of prescribing regulations and testing limitations.

As I was organizing some thoughts in my mind about this, I started in on a long list of unread emails that have piled up lately. The first email I chose to open was the latest KevinMD.com newsletter.

An article titled, “Doctors and patients: We’re on the same side!” caught my attention first. Dr. Kevin begins talking to medical students in a video he made, but what he is saying is attributable to patients also.

Sarah Kliff, who writes for VOX.com states a very good example of why and how we need to interact with our doctors so they understand us and we understand them. We need to let them know what we go through to get prescriptions filled, get lab work done and receive reports, and those “sometimes days” when one has to spend hours and hours in one day, for example, just communicating back and forth with the doc’s office and a pharmacy.

Sarah’s article is called, “Unpaid, Stressed and Confused: Patients are the Healthcare system’s free labor”.

Kliff stresses the work we  patients go through to get done what our doctors ask us to do with lab tests, MRIs, etc., getting a prescription filled or a specialist’s appointment  approved and scheduled.

Did you know that a  fellow at Mayo Clinic whose job it is to study the patient’s role, or job, in his or her own healthcare?

Sometimes patients have to spend hours, even days, trying to get a communication going among  doctor, patient, lab and/or pharmacy. And many times, when it comes to pain or other urgent medication fills, time is of the essence so that a patient doesn’t run out of meds, which could cause serious side effects.

Kliff’s idea of having our doctors, labs, therapies and pharmacies set up on a computer platform so that all parties, including patients, could access information and get complicated processes solved easily, is brilliant.

Most doctor’s office are not so technologically inclined.

Remember those appointments that, while we sat in a chair in silence, the doctor or nurse input information into the computer, all the while complaining how new and difficult systemizing things have become? There was indeed training for these people, but obviously not enough practice time. I was so very impressed that finally things were going to be computerized and that communications would improve. I was patient with the time they needed to get through an appointment, knowing the world was getting better beneath my feet. But did it? The “My Chart” system, and others like it, was going to be great! But the last MD I had didn’t bother to use it, while her staff kept telling me to get online to get my emails answered.

I got nothing.

As an example, when I tell a nurse who is going over my meds on the computer and asks if I have any allergies, that I need her to put into my record that I cannot, at any time ever, have an antibiotic. “Which antibiotics are you allergic to?” is the next question I always hear. I reiterate, I cannot take any antibiotics including OTC creams. Then I have to explain: You must refer to the Mayo Clinic’s Infectious Diseases department if I ever need an antibiotic. I have to be in a life-threatening situation. But every single time, the nurse says, “I don’t have a field on my program to put in that information.”

What?

No field for notes or special situations?

Who wrote this software?

The government?

I just sigh.

I could die easily because there isn’t a field for my insane allergies and resistances to antibiotics. There is NO computerized nor organized method of how this information gets from one doctor to another except by my own word. But the last time I saw my records (they were printed, not online), my doctor at that time wrote by hand in the column next to my antibiotic problem, “I doubt this.” (Patient beware – you may not be believed about a serious allergy or condition.) What was that third cause of death again? Medical errors!

I would hope that as the medical world further computerizes and streamlines our medical information, and keeps us better connected, that this will all iron out in time. But if it doesn’t happen, I picture in my head a satirical cartoon: Computer and body parts are blowing up in the air with word bubbles saying, “FRUSTRATION, AGAIN!”

In this mix of thoughts, I believe we do need to recognize our doctors as humans, get to know them and make it so they get to know us. Praise them for good work, complain about bad experiences, and for goodness sakes, encourage these three things, 1) computerization of the medical system, 2) doctors need to speak out more 3) the pressure and stress we have when our doctors don’t believe us. I suspect a lot could be added to this list!

Don’t forget to thank your medical team.

Krissy Anderson is an award-winning freelance writer who has several life-long pain conditions. Her work has been published for more than 30 years, and translated into 17 languages.

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Authored by: Krissy Anderson

There are 19 comments for this article
  1. Sara V. at 9:53 am

    Thank you for the informativearticle. I need a face to face with the “MD” above to laugh in his face. I had a cervical fusion with plates, screws, and CADAVER bone from a RN Community Health full size baby scale & medical shouldertwist pop burn left arm pulled into body comp injury that adducted my left arm – my PT told me that TRYING to “straighten my nerve was like wrestling a corpse”. I have since demolished my right foot with a log splitter, couple hundred lb log, & a steel toed boot that collapsed & CRUSHED my right hallux AND foot. THE Infectious disease MD saved my foot (hopefully the osteomyelitis is completely gone) even though it was supposed to be a BKA………although he later apolized when he found out I have RSD in it which has spread to my left leg (BLE knees down) & right hand fingertips. The pain is severe & intractable and most pain meds don’t work so I AM going to have a spinal stimulator next. My right hallux was broken SIDEWAYS until they fused it. So, yes, I’d love to meet you & laugh my DJD (cervical discs crumbled when he TRIED to screw into C5-C6), generalized juvenile osteoarthritis (with both knees rebuilt at 15 & 16 by Dr Shrock in Rochester NY), severe spinal stenosis, multiple broken bones over the years, very pain tolerant, tougher than most males (per my husband) 51 yr old ass AND my pain tolerant 25 yr old youngest child who has moderate scoliosis so that we both can giggle & roar with laughter at the profoundly silly BS you wrote trying to baffle/impress someone…….and it was NOT me. I COULD but will not state the many different SPECIALISTS, but will not) that are very well known nationally that I’ve seen assorted times over my life – thank God our family had monies & excellent medical insurance growing up
    or I’d really have MAJOR medical issues now……. You have got to be joking if you blindly beleve in all the cr*p you spewed……..We are people, not perfect textbook cases, NOONE IS!!! Get off you high horse & actually HEAR you patients, for they’re your best educational tool. You expect them to listen to you so you MUST listen to them IF you want them as compliant as possible.

  2. Krissy at 5:49 pm

    Thank you for your time and information.

  3. Stephen Rodrigues, MD at 3:58 pm

    If one is to solve any problem related to the human experience, body, or situations, it is imperative that the treatment plan of actions remain practical, logical and grounded in what works.

    “The forces of nature from within are the true healer of diseases.” – Hippocrates. These natural healing forces work diligently throughout our lifetime to repair all of your wounds completely and thoroughly. These Natural Forces on occasion will require our assistance in the repair process.

    The skeleton is a loyal and obedient servant beholding on you and your muscles to keep them solid. NO parts of the skeleton ever wears out and needs to be replaced like a part in a car. Thus these words are improbable and impossible in reality: bone-on-bone, worn cartilage, worn-out, messed up, needs to be replaced sooner than later, surgery is your only option etc

    Joint replacement, spinal fusion and craniotomies to treat pain are all bold faced lies – once you know how the human body works.

    It is impossible for the skeleton to need to be removed for any reason except for cancer, tumors or infection.

    Degeneration of the skeleton or joint are directly related to not being offered corrective PT options. Simply add in PT and the body will correct itself despite the degeneration.
    Remember, A beat up joint that is alive is 100 Xs better that dead cold metal.

    OTW. It is impossible to see the exact location of pain on an image, Xray, MRI, in a theory or in your brain. This is a fallacy or lie. So whatever your docs are telling you about pain in the body and surgery, take it with a huge grain of salt.

    I cannot give any recommendations anymore.
    What you can do is recruit a loyal and honest PT team from friends and family.
    Here are your Hands-on PT w and w/o needles?

    Hands-on PT options @ 2-3 x per week: a) Massage. b) Tissue release options. c) Strain and counterstrain. d) Joint and spinal adjustment and manipulations. e) Spray and Stretch. d)Balls, Bars and knobs many others.
    Thin intramuscular needling options @ 2-3 x per week: a) Dry needling b) GunnIMS c) Chinese, Japanese, French Energetic and various other “Acupuncture.”
    Hypodermic intramuscular needling options @ 1-2 x per week: a) Wet Needling aka Tender Point Stimulative Needling. b) Tendon and Ligament Injections. c) Autohemotherapy, Prolotherapy, biopuncture, Stem Cell and PRP.
    The goal is active innate healing process so that these natural forces can to “whittle down” as much of the intramuscular damages so the tissues can rebuild back to health. This is not a quick fix, it will take 6 to 24 months or up to 2-4 years.

    I’ve learn all of those over the past 18 yrs and they work perfectly to treat pain in the body.

    Medicare has deemed all of the above curative options “untested and of no value” so they will not cover them.

    Medicare will cover a $100, 000 joint replacement if you sneeze. These profits go to the ½ of 1%er on Wall Street, leaving you with a cold huge of metal that cannot solve your pain problem. The profits keep rolling in so now you are set up to for a redo in about 10 yrs. Be careful.

  4. Krissy at 3:30 pm

    Thank you, I am seeing what you mean now, where before I felt like I was back in Latin classes.

    One more question and I won’t bother you (unless you practice in SW FL). How do you treat a knee that has been completely shattered and crushed?

    That will give me a little more perspective. I want to learn things because for the first time in 30 years I believe I have found out what happened to me and why I am so sick.

    Thanks

  5. Stephen Rodrigues, MD at 5:42 pm

    Pain Facts:
    Pain perceptions are any sense that is felt to be outside of the patient’s personal comfort zone. An itch is the exact sensation of the perceptions of pain.

    Pain is 100% invisible electrical sensations which must not be negated, ignored, marginalized by any person, institution or authority.

    Pain; long-term, chronic or acute-on-chronic are all primarily located deep within the soft tissues of the body between the skin and bone.

    The active tissue within these layers are the 700 or so muscles which drive pain signals.
    Muscular derived pain is 100% caused by trials, tribulations, falls, slips, accidents and fractures of life, living, fun work and play.

    The pathology of muscular derived pain is embedded infinitely throughout the muscular system as microscopic scars. I call this Intramuscular Pain or IMP.

    Physical Therapy PT is the only way to treat pain within the muscular system or IMP. The reason why PT is important is that IMP can only heal by the natural forces from within or the Healing cascade of wound repair.

    PT comes in 3 varieties depending on what you use to apply the therapy:
    1. On the skin as in walking, yoga, Zumba, range of motion, massage, rolfing, tissue release and spinal unwinding manipulation.
    2. Intramuscularly with thin needling aka Thin Needling-IMS.
    3. IM with hypodermic needles aka Wet Needling or Hypodermic-IMS.

    Skin, subcutaneous tissues, nerves roots or ending, veins, arteries, capillaries, lymphatic, immune and skeletal structures are rarely if ever is the primary source or location of pain.

    Thus, it is illogical, incomplete and incorrect thus malpractice:
    To assume that IMP can be accurately and precisely visualized only with radiologic means; X-ray or MRI.
    To solely treat this IMP with opiates, NSAIDs, and surgery.
    To remove skeletal components in an attempt to treat what you see on the MRI.
    To delay treatments with PT.
    To deny the existence of IMP.

    Thus: Pain in the body or IMP + Physical Therapy with and without Needle-IMS + Prevention + ProAction = Resolution of the original IMP.

    Gunn is the physician who took the acupuncture needle and distilled out the idea that IMS is a form of PT
    http://www.istop.org/

    More info will require >1100 words.
    You are free to google myofasical pain and dysfunction
    trigger point injections
    dry needling
    janet travell
    richard simons
    Ed rachlin
    S. Hackett prolotherapy

  6. Krissy at 10:41 am

    Hello Dr. R.

    I read your posts and see that you are passionate about something you believe to be the only truth. I can’t speak that language because I am a writer/researcher, not a doctor. But I have asked you many times to enlighten me a little. I am serious about that!

    So answer please: how do you apply what you believe to a degenerated set of bones that no longer work because of the amount of loss that has happened in my body. If I would stand or sit weird or whatever too long, I would collapse, but not because my muscles aren’t strong, because I don’t have enough bone to hold me up.

    I am a huge believer in physical therapy and God only know how much I’ve had. In the old days, the therapists were all rushing to get into the NEW sports medicine arena, but they were working on me — a fiber, RA, DDD, Lupus patient, so I got hurt by them every time. For years I refused to go to PT because of that unless it was water-based PT.

    Now, therapists have been so well trained I love them. I love traction and learning exercises (which work!) and all that. But I can’t get past your insistence that ALL PAIN is fixable with PT.

    I have never had back surgery. (I am told there is nothing they can do for me; I’m “too far gone.”) My friends around me — same age — similar ailments, are having rods put in their backs, shots of whatever, chiropractice (that hurts me too much except for the water bed), etc. And they come out of this surgery standing up straight, off of opioids and doing well because their pain has lessened so much.

    So, before you state the same thing over and over, please explain to me, as a non-medical pro, what is the answer to my burning question?

    Thanks

  7. Stephen Rodrigues, MD at 9:43 am

    Thank you.

    The reasons why our health insurance, systems, industry, policies, practices, benefits, clinical outcomes all broken to pieces and not working for US of A is simply because the “care” has been removed from ALL of the mission statements.

    Godspeed

  8. Stephen Rodrigues, MD at 5:55 pm

    I do not like to see doctors blamed either. BUT. General practice providers are technical “gatekeepers.” Fortunately, I was trained before the “gatekeeper” concept. I have decades of clinical experiences before degrading what physicians have to do so I consider my training was well-rounded. I know what it was like any 80s. Being in primary care for 33 years when it comes to clinical outcomes, I’ve discovered that the buck stops the person who touches the patient last, the general practice providers. Me.

    But I must say I’ve discovered something frightening. So frightening that no one can “see” the breach, no one wants to know about the violation and no one stepping up to take responsibility. I’ve researched and uncovered in 1968 a group of doctors did something that violated a natural law of biology. They replaced a knee joint for knee pain. One might think that was phenomenal. One might believe that our technology powerist of going to the moon had reached the point where we as human beings cracked the barrier and could merge science + technology + mechanical + flesh and blood = bionics. The Bionic Man proved to Millions of television viewers that this was So. NO!!!

    This point in time is when honor and integrity in the field of medicine died. Without honesty and integrity, any system will crumble into corruption, destruction, betrayal, malpractice, waste, fraud, abuses and human sacrifices for-profits. If you look around, this is what we have designed.

    However, those doctors got permission to do such an unnatural, untested, illogical and radical procedure to treat pain in the leg is beyond my present imagination. The fact that no one stopped this cruelty is another. The fact that no one looked back to see why patients do so poorly because of these surgeries is a tragedy.

    From that point in time, there has been a slow, systematic, organized, privatized attempt to perpetrate the most unnatural way to treat pain and negate the safest and natural way to treat pain.

    Who do I blame? I have the privilege of blaming whomever I decide. I was the one who spent 12 years being brain trained with these lies to send my family of patients to their death. I calculate that there were thousands of my patients who were mismanaged and guided to having surgery when in reality all they needed was physical therapy.

    I blame everyone: the AMA and the specialist particular surgeons who found and support this organization. The surgical specialist mostly, along with academics, designers of medical school curricula, big Pharma, device manufacturers, hospital associations, greedy capitalist and Wall Street, deep pocket lobbyist then went on to infest this stupidity and insanity into all aspects of medical education, the government, the media and innocent Americans.

    Now there is a general acceptance that surgery for pain is a valid, reasonable, logical, science-based, proven safe first choice. NO, surgery should never be on the table as a first choice in the millions of cases of long-term pain!! I consider this one of the biggest lies and betrayals of the 20th century.

    I’ve done some investigating and have not found a single person, organization, entity in society state and local government who has been given the responsibility to guard the integrity of science, evidence and protect patients from being sacrificed for profits. There is no one in charge. So you and I are left to wallow in this routine-tooting Wild Wild West of a cruel for-profit healthcare system.

    The simple reality that is being cloaked over by this façade is that the most common primary location for pain in the body is in the soft tissues and muscular system. The treatment of choice is physical therapy. Physical therapy can be view in a spectrum from simple massage, “spray and stretch,” chiropractic adjustment, range-of-motion exercises, ah-she acupuncture, dry needling, Gunn Intramuscular Stimulation aka GunIMS, Travell-Simons’ trigger point injections, Rachlin Intramuscular stimulative injections along with proactive care and preventative education.

  9. Krissy at 9:42 am

    Matt, I am with you on that! I have a great doc who listens, subscribes my two opioids and really treats his patients the way any doc should. My advocacy is a passion for doing what ever I can for those who aren’t as lucky, even though I am but one mini voice, and to spread the news about what our government does in the name of the dollar bill.

    I have been writing to doctors — who are currently either writing articles and/or commenting on them — to try and get them to help us. They must keep speaking out in defense of their jobs (to “do no harm”) and in defense of their patients, and just as importantly, to urge their fellow doctors to come out of their frightened mind set and make noise. If our doctors don’t get in on this now, it is disastrous to leave us hanging, because the government is way too powerful over us as patients. Gov’t doesn’t care. I never used to like when someone said that, but the deeper I dig, the more I see an entirely corrupt, controlling, money-driven bunch of people who are laughing behind closed doors about how much they’ve scammed us. I cannot imagine working among these people as an honest and passionate elected official without going crazy.

    Another thing I’m doing is to peek at specific groups (such as Lyme patients and organizations) to find out how badly they’ve been lied to and what solutions, if any, have made any impact. And I will go so far as to looking at unrelated groups fighting government to find ideas.

    This article ties into my research work by suggesting we don’t become enemies with the healthcare world, but that we treat them with respect (with the exception of the “bad guys” we’ve all run into), and form a bond that (while it may put us out of our comfort zones), will aid in the mission to get the gov’t out of the exam room. I see too many people blaming doctors, and while you are correct in your statement — “I just can’t understand the mindset of a doctor who knows full well that their patient who had demonstrated total responsible use of opiod based medication during their relationship could possibly place their patients in such harm.” — the fact is too many docs are tired of all this and just want out, or they are scared and just won’t stand up for us and themselves. More burden on us, but maybe we have to play a role in asking them to read our stories, get on social media and see what we are saying, and step up to the plate. I don’t even care if we have to butter the plate; docs need to see us in numbers, not just as individuals. We don’t have any idea how many of them are paying attention.

    Sorry I am running on, but there is a lot to talk about, as you well know.

  10. Matt at 1:38 am

    The Hyppocratic Oath is part of the past. It certainly does not exist today.
    For a Physician to discharge immediately a long term patient who suffers from CP is unconscionable.

    First, the corrupt CDC issued guidelines. This is not law. Doctors retain full autonomy to prescribe medication they deem necessary to enhance their patient’s life. But one day in March, they see a booklet with beautiful graphics and subliminal statements that their medical licence could be in jeopardy. AGAIN, IT IS NOT LAW.
    If it were, it would be unconstitutional. I am waiting to see this brought before the courts.

    I just can’t understand the mindset of a doctor who knows full well that their patient who had demonstrated total responsible use of opiod based medication during their relationship could possibly place their patients in such harm.

    Understand that you could potentially be responsible for heart attacks and strokes because of the stress placed on their bodies.

    For the love of God, take a stand against this corruption. The government went from privatized healthcare to government control. Now they intend to take these patients to privatized addiction centers.

  11. Therese at 11:16 am

    HJ, this is a fantastic point: “Who take an oath to “Do No Harm” but may not recognize that being complacent about the state of the War on Opioids is equivalent to denying care to patients who legitimately need it. Don’t “Do Nothing.” If you “Do Nothing,” then you’re going to someday do harm. You can’t lament that you had your hands tied when you put your hands behind your back to let them tie your hands.” I found myself reading it over and over several times.

  12. HJ at 8:00 am

    Ha, records. I love how doctors write that the had a “detailed conversation about…”

    At times, these were things that I’d swear weren’t mentioned. Is it so they can cover their butts?

    I’ve found diagnoses in my medical records that weren’t given to me. Fibromyalgia is an example. My mother and I both went to an appointment with a rheumatologist who told me to exercise more and take naproxen sodium. It’s a long story… But I was in a car accident out of town… got diagnosed away from home and was advised to collect my records to see a specialist.

    Surprise! I had the fibromyalgia diagnosis already and didn’t know it. And my primary care doctor who offered me antidepressants when I told her I was tired and wanted a sleep study also got a letter saying it was fibromyalgia. Oh, and several years after I asked for the sleep study, I learned I had sleep apnea… when all the sedating meds for fibro had lost effectiveness.

    Same thing happened with a torn disc in my back. I only found out what was going on because I asked for a copy of my records. The neurologist said, “It’s just fibromyalgia, go back to your rheumatologist.”

    I have wonderful doctors now. I don’t take that for granted. I hate this paternalism where doctors don’t tell you your diagnosis (does my female gender have something to do with it?). It’s insulting, it causes despair, it keeps me from finding information to help myself,and it’s deeply and intensely frustrating. I mistrust new doctors before I learn I can trust them.

    Thank God for the good doctors. We need them more than ever and we need their voices added to ours. The doctors are the ones who go to school, who are trained how to prescribe, who know medications and diseases… but it’s the politicians and enforcement agencies that run the show.

    Doctors may someday face a backlash from the other side of things… patients who are harmed by the inaction forced upon them by legislators and regulatory agencies… who are angry at the doctor because he or she is the nearest target… is the “face” of medicine. Who take an oath to “Do No Harm” but may not recognize that being complacent about the state of the War on Opiods is equivalent to denying care to patients who legitimately need it. Don’t “Do Nothing.” If you “Do Nothing,” then you’re going to someday do harm. You can’t lament that you had your hands tied when you put your hands behind your back to let them tie your hands.

    Bless those doctors who are making efforts to advocate and who continue to regard the words of the media and politicians with critical thought and hesitancy. Sadly, some doctors just parrot what they’ve heard on the news.

  13. Kim Miller at 3:51 pm

    Krissy,

    Another great article that makes us, the patients, think. I know my doctor is an advocate for pain patients, having gone out on a limb numerous times to speak up for those who need opioids for pain relief. I also recognize that many doctors do not have a high profile and with good reason. It’s a catch 22 for sure. I’m lucky to have a doctor who’s also an advocate, but I know he’s the rarest amongst his peers.

    I have a great appreciation for the staff at my doctor’s office, all of them. They truly have a daunting job these days, especially the pain management office.

    As far as EMRs go, with the inconsistencies between systems, all is not as smooth as it could be. Maybe in the future there will be better communication between systems and less rigid input for the users allowing for your special circumstances and so many others. With the “prompting” and fill-in the blanks type process, much can be left out that would have made it into a handwritten chart. This is concerning for patients with multiple problems and issues that don’t fit in a neat little box.

  14. becca at 11:00 am

    Maureen, I completetely agree with you. I’ve been trying to deal with my chronic illnesses for 8 years, on my own, and it’s beyond exhausting! There’s no energy left for anything or anyone else, not even myself. Some days I wish there were two of me…..
    The mistreatment from medical personnel spans back as far as I can recall, to the very first week I got sick. ER visits where I’m writhing in pain, and the doctors and nurses are laughing and joking around at the nurses station. My former family doctor had decided early on that my illness was psychosomatic, sending me to one psychiatrist after another, further delaying my treatment, and tainting my file with inaccurate information. (Most likely because I was a woman and it must be due to “hysteria”, not an actual physically rooted cause. Because of what my patient file said, I was prescribed an anti-psychotic medication, which caused a permanent neurological movement disorder. Thank you very much, doc! I would have been treated better in prison). And while my original symptoms progressed, and my file was further tainted with lies, no doctor would take me seriously, including when I moved to a completely different province. It’s as if I were invisible.

    And so, I quite literally had to stop living, loving anything, or being me. I forgot who I was. The excruciating pain took over, and I lived in my own prison, because medically, I had nowhere to turn. Not only would a doctor not listen to me, or believe what I was saying, I was wait-listed for 16 months, and nearly lost the ability to speak. It was too painful to open my mouth, chew, touch my own face, and be outside when there was the hint of a breeze. I was terrified and losing hope.

    When I did see a neurologist, I was diagnosed with Trigeminal Neuralgia (what I found out later, used to be nicknamed “the suicide disease”). The doctor didn’t make eye contact, couldn’t be bothered to explain what that big long word even meant, and wrote me a prescription and rushed me out the door. *** it was just shy of noon hour, so she probably had a lunch date to get to***

    The medical system is so flawed that it would likely takeyears and a LOT of funding to fix. But it needs to begin somewhere and it needs to start NOW.it shouldn’t matter what country you live in, how old you are or what gender you were born as. I can sympathize with the fact that time is money and doctors are overworked and overwhelmed. But what about patients? Where do we fit in to this ridiculous maze of a healthcare system? When are we going to start to matter? Will we ever? I really hope so……….

  15. Doug at 9:55 am

    The federal government needs to hire Mark Zuckerberg and his team to create a nation wide PMP and medical history recording program. With the success and intricate programing they did with Facebook, a program designed for use only in the medical profession should be very easy for them.

    As far as the Fat Cat health insurance industry goes, the Affordable Health Care Act was supposed to hold insurance companies accountable for all the insurance resistance in patients health care. Obviously, they seem to have found some loopholes in the phrasing so they can do what ever they want. Capitalism at its finest, lots of continuing free cash for the rich and absolutely nothing for the poor and suffering.

    Has anyone ever seen the movies, A Civil Action, Erin Brockovich or John Grisham’s, The Rain Maker? All three are very good movies exposing the fact that Corporate America will cheat the lower income population when it comes to health risks and health care in order to maintain profitability. Until corporations and health insurance companies are prosecuted and held accountable in a court law for crimes like assault with intention, fraud, attempted murder and yes, even murder, these crooks will continue to walk all over the weak, the poor, and the suffering. After the very first corporate executives are prosecuted for a crime like murder, the tone in the way these insurance companies and corporations practice their business.

  16. Kathy Cooper at 9:22 am

    I really don’t know why I bother to read this stuff. I suppose it might be OK to read about these subjects. Since we can’t really talk about them. “Talking to our Doctors”, is another Industry line, that pre-supposes we can really discuss any of this with our Doctors. The mention of the “Technology” as if it were meant to somehow improve something. Sure we can keep blaming our selves, the government, the Doctors, whatever, but there is an over arching theme here. There is an Industry that makes a lot of money on this “Confusion”, and as long as we keep looking at one aspect we are diluting any action. The Industry has been smart enough to co opt our voices and our experiences. They have used sophisticated Software to monitor these “Groups.” They have unlimited money to hire the Best Public Relations people and Statisticians.
    The Technology was suppose dot improve things, but clearly it is not working. Does anyone think this is an accident. If you follow any of the major Media “News” about anything in the Medical Industry there is one theme. The use of so called Media Described “Breakthroughs” most of which are meaningless, or essentially advertising, cherry picked from thousands of “Studies”, the common theme is that they do not conflict with the Industry narrative. Look at the real Meaning behind the latest information on Health Care, a third of all Patient Interactions, one would think this would be important. It was not covered by the Corporate Media. This Information gets swallowed up. it represents thousand of lives, and Billions of Healthcare Dollars. Yet the Agencies that are supposed be looking out for us are not even collecting any meaningful Data.
    This did not happen overnight. The blame falls on the Industries that are profiting from this. Doctors are not allowed to speak about these issues, in many cases there are Gag Orders. Government is not allowed to collect real meaningful Data. They allow the Industry to decide what information they can collect.
    This has been a well though out campaign by industry to deceive us, while maximizing Profits. Follow any Mainstream Media article or “Opinion” Piece about any Health Care subject. Each one re-iterates a number of Myths, and a story line. The main one is that Health care is just too expensive. It is, but the reason it is expensive is not what they are leading us to believe. The Second one is that these providers are doing the best they can with limited resources. That means that any oversight or criticism will be ignored.
    They have also used the “Non Profits” to inform Policy Makers. Look art any “Discussion” of any aspect of “Healthcare,” The patient groups, whop funds them, and their narratives. The Pain Patients groups have had the narrative channeled into “Telling Our Stories,” Meaningless and pathetic easily dismissed “Stories.” The real Story has been ignored. It does not matter if is is pain or other conditions, there is a pattern. Pain is just more easily dismissed. Pain also drives the patient to seek help, where something else would have them give up or exhaust themselves.
    Doctors are not allowed to talk to us. The Mythology is that Patients are just waiting to sue them, or are beneath their contempt. Most Doctors are blaming the Patients for the “System”. The Insurance Companies are not streamlining anything, they are creating even more levels of confusion.

  17. Barbara at 9:00 am

    The computers that handles our medical records are great ! but the problem is that they change the programs all the time !! the new programs are suppose to be better so after learning one system they ungraded and everyone needs to learn a new system. This has happen 3 times with my doctor . I finally have a program that I can text my doctor and get answers so I am not at the office every month .

  18. Maureen at 7:23 am

    Hi Krissy,
    Another issue with the computers…is that now you can’t get a conversation going with your Pain doc because their heads are buried into the tablet in their hands.
    You can talk until the cows come home but it is obvious that they aren’t hearing you, let alone even look at you through the entire visit, because they are too busy filling in their visit forms and move on to the next patient and do the exact same thing. NEXT…!

    So, how can we even get to know the doc and vice versa?! I’ve tried and tried and tried.
    Next month I’m moving on to my 7th!! new pain doc in 19 months…its a long story filled with insane mistreatments!
    Where I live now there are basically only large groups to go to, who have monopolized this area by buying up all of the small practices.
    You surely are just a # in their practice and its’ all about $. NEXT…!
    Before I moved to Fla…I had the same wonderful doc for many years.
    He is alone in his practice and he was a gem of a caring doctor!
    This change has been very stressful for me.
    And, this is ridiculous, but until I can find one with whom I feel safe with and truly cared for (if at all possible!)…I’m not stopping my search. This is MY health!

    My primary doc is the opposite..he actually acknowledges my presence in the room and discusses why I am there 🙂 Hallelujah.

    Re: Records…every so often I obtain copies of my records to review.
    I am always shocked at see how much ‘mis-information’ the doctors put in there!!
    As if they are describing another person and not me!
    And of course, now the old fashioned ‘dictated’ note has become just a filled in ‘form’ too.
    As we all know, it’s very difficult to be in constant pain and have to deal with all of this. God help us all, we have no other choice but to continue managing our own care 110%!