Pain Acceptance, The New Lie

Pain Acceptance, The New Lie

By Suzanne Stewart.

As I was listening to the Vox.com podcast a few days ago, I heard the voice of PROP’s president, Jane Ballentyne, surprised and complaining about how she’s been treated recently. After hearing about her belief regarding the “acceptance of pain”; several pain patients wrote negatively to her in the comments of articles and a podcast. Some people even wrote to her employer at the University of Washington and wanted her fired, she says. I’m wondering, why she is so surprised? But obviously those who agree with her and think this is a good idea, have not lived with daily, unrelenting, horrible pain such as the kind that comes with illnesses like: CRPS, Ehlers-Danlos Syndrome, Ankylosing Spondylitis and many others.

What I don’t understand is that in these modern liberal days of persons not having to accept anything else about themselves, why are pain patients being forced to “accept” their pain? Today in 2017, people are allowed to change their gender, nationality and their bodies. There’s nothing wrong with a man becoming a woman, or a Caucasian man becoming a Filipino woman; as I saw on the news the other night. In 2017, there’s nothing wrong with a woman getting liposuction on her hips, if she feels they are too big, or breast implants if she feels those are too small. If other human beings are “allowed” to do all of this, then why are chronic pain patients supposed to or urged now, to accept their torturous, horrific daily 24/7/365 state of living with chronic pain? Now days nobody has to “just accept” anything about themselves. Something is really “fishy” here? In my own personal opinion, I feel like the United States is trying to kill off it’s weakest and most vulnerable chronic pain patients. Why do you think this might be the case? Again, my thoughts are that it is because they are concerned that the “baby boomers” are going to deplete the Medicare/Medicaid system and there won’t be anything left soon. Why not “get rid of” the sickest and most weak of Americans to save some money? I don’t know this of course, but it sure is a scary thought when everyone else is allowed to surgically change everything about their gender, race and body; but the chronic pain patients are now not allowed to have the simplest pill that can help to lower their chronic pain.  Suddenly, opioids are now being considered evil and all must be destroyed.  We must learn to “accept our pain”. I don’t want to just accept my pain, anymore than someone who feels that they were born the wrong gender, should have to stay that way forever and just “accept” it.

So I’ve been researching other countries and reaching out to other chronic pain patients around the world, thanks to the internet. I was discussing the “opioid crisis” with my friend in Israel.  He sent me a piece of information about a University of Michigan Coursera. You can look at what I looked at here: Teach-Out: Solving the Opioid Crisis/Coursera. He told me that he had been seeing what’s happening in the USA and how concerned we are about the topic of Opioids. He wanted to know if this was truth or not?  Naturally, you must take the course to learn about what they want you to know. But just from the introduction that I read, it is packed full of disinformation. They tell the same “lies” that were exposed in Andrew Kolodny’s article “The Opioid Epidemic in 6 Charts”. Josh Bloom, a journalist and PHD, exposes how Kolodny, those that follow him, and some of the media (it seems), are changing the truth to their advantage. In his article, The Opioid Epidemic In 6 Charts Designed To Deceive You, Josh proves how in Kolodny’s orginial article, The Opioid Epidemic in 6 Charts, deceives us with false numbers. The first sentence that Kolodny writes in his editorial states “drug overdose deaths” are about 60,000 annually. When we see that we immediately think that he’s talking about prescription pain medication overdoses. But, Josh Bloom points out that actually 30,000 people were killed. This included all opioids including heroin. The actual true number of deaths just from prescription pain medications or opioids used for chronic pain; was about 17,000.  Also, in Mr. Blooms article as cited above, he states that the number of 17,000 is “half the number of accidental falls”. But 17,000 is not exactly right either, because that includes all opioid overdose deaths which were in combination with other medications. The true death by Opioid pain medications is about 5,000, according to this same article. That is much less than Kolodny’s original “60,000 deaths”, scare tactic, from drug overdose.

Also, why are we not looking into the deaths by alcohol? According to the NIH (National Institute of Health), the NIAAA (National Institute on Alcohol Abuse and Alcoholism) and this article: Alcohol Facts and Statistics, “88,000 (62,000 men and 26,000 women) people die from alcohol-related causes annually”. This makes alcohol the third preventable cause of death in the United States. Do you know that the first and second causes of preventable deaths are from tobacco and poor diet/physical inactivity? So why are we not talking about the Alcohol and/or tobacco related death epidemic? Do you want to know why? I know I sure would like to know the answer. I know that my friends in other countries are telling me to come and live there. They don’t understand why this is happening over here in the USA? The friend that I was referring to earlier on, who lives in Israel; cannot believe that this is happening to the people he knows here in the USA.  He even said that he sent me the information regarding the Coursera, because he “had a feeling they were lying”. He asked me “Do you have any guess why they are doing all of these things to hurt all of you?” The only answer that I could come up with is, “Money”. The reason that I stated above, regarding Medicare/Medicaid and the baby boomers. I was embarrassed to say that to my friend, but I still did. His response was “this is horrible”. He said that “in Israel you can get as much as you need; as long as it is opioids and not medical marijuana”. It is totally opposite of that here in the USA. In Israel, the primary care doc can prescribe what he believes will help the diagnosis of his patients. Imagine that! Oh wait, that is how it used to be here in the USA also! But not anymore! I asked my friend if his primary or pain Dr. helps him more? He told me “My primary helps me, of course! She helps the most. She is nice, caring and gave me the pain medication with out any pain doctors advice. On her own, because she is a DOCTOR herself…..you know? As it should be“! Also, as I and many others feel it should be in the United States once again.

Suzanne has lived with a Systemic CRPS & several other chronic pain illnesses since a MVA in 2002. Prior to being disabled from chronic pain, she was an Interpreter for the Deaf at a hospital & worked with Deaf children. Since 2005, Suzanne’s been a patient Health advocate, support group leader & Mentor.  She continues doing these things today, but also does public speaking, awareness events and she’s a Writer/blogger & an Ambassador for the U.S. Pain Foundation. The statements and opinions that she provides are her own and should not be taken as the stance, position or viewpoint of the U.S. Pain Foundation. For entertainment she creates advocacy videos & uplifting ASL cover song videos on You tube and she writes in her own blog Tears Of Truth. You can follow her here: TearsofTruth.com

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Authored by: Suzanne Stewart

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47 Comments on "Pain Acceptance, The New Lie"

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Jeremy Goodwin, MS, MD
We have here the same sort of problem extant in politics right now. No middle road. We are looking to and digesting only that which is in line with our already determined beliefs. It is called confirmation bias. And where pain management is concerned that creates a serious problem. First, I understand well the fear, frustration and anger that many feel toward those who have suddenly and very poorly indeed and often without concern for individual differences, taken away the only treatment that seems to have had a significant affect on the intractable pain of others. Second, given the committee’s lack of expertise in creating the state and national opioid Rx ‘guidelines’ and their obviously ill-thought out structure based on a misuse of statistics and their enforcement as ‘law’, it is at least increasing pressure on insurance companies and government health care plans to cover previously refused modalities that may not substitute for opioids but can at least diminish their dosage and increase efficacy and, in a number of cases, work well enough to replace them even if, as with taking opioids, pain is not altogether eliminated. The intent by some to force treatments on others while pretending that they have a solution, wether psychological, surgical or otherwise, even if they don’t genuinely believe in them, is indeed infuriating. But that isn’t everyone. It certainly isn’t Jane Balentyne. It also doesn’t means that alternatives will work or fail. They might work in part and even quite well in some! At least give them an honest try regardless of previous experience gained under different circumstances and with different practitioners at different times. ‘Embracing ones pain’ would infuriate me too. I think it a dubious choice of words although I understand the rationale, and the data available make it worth a try in an interdisciplinary and multi modal therapeutic setting. Relaxation, adequate sleep, a positive attitude and such ( plus those mentioned below) can all decrease stress which in turn helps to down-regulate pain and suffering (at least to a degree in many and under a reasonable range of circumstances). To fight and scream against pain creates much conflict, distress, stress, poor sleep, etc., and revs up the sympathetic nervous system thereby worsening pain. Adopting mindfulness and other psychologically based coping mechanisms has physiological consequences just as physiological ones affect one’s psyche. Those systems are always working together and they cannot be separated except temporarily by dissociative drugs or by emotional defence mechanisms that are altering the relationship but not truly separating them. Therefore, as there is a legitimate reason to strongly push the ‘authorities’ in a certain direction, so too is there reason to educate patients suffering chronic pain in techniques that might help, if minimally so and worth a try. If four approaches each drop the level of pain by 1 point on a 0-10 point scale, then the cumulative affect of al hour could diminish the total degree of pain by 3-5 points depending on how they work and… Read more »

CDC AND DEA DECLARES WAR OON DIABLED CHRONIC PAIN PATIENTS the most helpless and weakest people in americas population the natzes did the same thing to the jewish people what happed to the compaionate care act for disabled this is a law being broken by the cdc-dea causing disabled pain patients pushed to sucide by with holding our life saving medicine shouldnt the cdc-dea be charged with breaking the law and charged with murder for forceing suicide by preventing diabled from attaining life savingmedicine this seem peident their communist guidelines have caused this war on disabled pain patients it seems this would be enforcemeat breaking the law that is on the books am i right or does the laws apply to the cdc-dea or are they exzemt from folling the law like disabled pain patients do as law abiding citizans just wondering

NOTICE TO PATIENTS OF ANY PAIN CLINIC, ANYWHERE. We are being advised that in some instances where DEA has stepped up their activities regarding targeting of pain clinics and physicians, that patients are also being approached in their homes. BE AWARE, that unless you are presented with a WARRANT signed by a Judge with YOUR NAME on it, you are under no obligation to allow anyone into your home under any circumstances no matter how much they attempt to convince you that they have a right to enter your home. They have NO RIGHT or AUTHORITY to enter your home, inspect your medications, search your home or COUNT YOUR MEDICATIONS. Do not get into an argument. Be firm, polite, and send them on their way. You are patients, not criminals.

I just don’t see how it is not a civil rights violation for a governmental agency such as the dea to force our doctors into denying us medications that work and forcing very expensive and invasive procedures on us as opposed to cheap and non invasive ones. I am now left bed ridden as I cannot afford these expensive unnecessary procedures.

Thanks Robert and thanks Mel

I have been presribed narcotics from the age of 15- 42 years ago. I have taken them on a daily basis (Oxycontin) plus prn (Percocet originally, Oxycodone IR) for the last dozen years…EXCEPT for a two and a half year period of PURE HELL I lived thru when I was improperly cut off ALL restricted meds (Oxycodone, Oxycontin, Valium, & Adderall). I have NEVER overused, mis-used, abused my prescibed meds or ANY illegal drugs…EVER! Yet some doctor at a hospital unfamiliar with my history (congenital, severe use, accidents, life threatening post surgical infections & sepsis, a dozen plus operations in the prior 5 years post MVA…courtesy of an underage drunk driver), saw all the meds I was taking (23+ daily & PRN) & labelled me a narcotics addicted drug abuser. This label got me “Black Listed” with my GP regarding my existing narcotics agreement. I had NEVER failed a med count or drug screen…OVER THE PRIOR 15 YEAR SPAN! EVER! They put on my official record that I had broken a narcotics agreement-I hadn’t, had a narcotics & benzodiazepines overdose- which I DID NOT, and had respiratory failure-which hadn’t happened. I have still not been able to have my record corrected-even though the official records from my hospitalization contradicts theirs. I STILL followed the rules, never turned to street drugs, and RE-took all the steps necessary to enter a new pain management practice. They have told me I am a “dream patient”. I am not only seeking drugs, but full pain management. I already make use of other types of treatment…chiropractic, massage, counseling, non- narcotic meds(meloxicam, gabapentin, metaxalone, prozac, baclofen, amitriptyline, etc.). They helped me get back into PT, got me a new TENS, get a back brace,and do injections into my arthritic joints. This post has taken me forever to make…my spinal issues (& general ineptitude) make me somewhat keyboard challenged. I would love to be able to talk with others who are like me. State College PA is still lacking in any type of support network. I am glad to have found this site.

Fedup,
I immediately signed the petition. So did Mel Gibson.

Few have so far. It only takes a few minutes.

Allan,
I switched to Walgreens 3 years ago because of the attitude I saw at CVS. I have had problems with the NON 24 hour Walgreens but I have found two 24 hour Walgreens that are great.
It was almost like CVS did not want my business. The last straw with them: I wanted to call the doctor and verify the Rx was legit…Two months in a row.

I think they ought to put the pharmacy BACK in the Pain Management Clinic.
It is pretty bad when they make going to the pharmacy a painful experience as well.

I was “given” the gift of pain by a Navy Dr who performed 2 surgeries within a 9 month span. I was 25 by the start of my second surgery. It was 1986. I have written & rewritten this post so many times… But the bottom line is this. We are so worried about everybody having rights and so against those who desperately need opiods to continue to lead a life with also having a right to live without excruciating pain that effects every single facet of our daily life. How is this fair? How can so many folks in positions that matter lie so profusely about statistics that say so little about the real opiod crisis… that there isn’t one? Why aren’t they actually saying that most who are dying are abusing opiods? And most are buying illegally obtained opiods? There will always be drugs deaths. But how many are by pain patients with contracts with their pain management Drs? And put next to that the number of pain patients currently taking meds, opiods, responsibly? I’d love to see those stats!
I saw a show about parents upset because their son had overdosed, a young man who had gone thru drug rehab more then once. He bought illegal opiods off the street. These folks say we have a crisis. I say they had a drug addict as a son, I know that is harsh but that is what he was. There are countless numbers of them, and they will do whatever they need to to chase their high that will never be enough till they lose this battle or they finally best their addiction. Thing is, we’re not addicts. We’re chronic pain sufferers and to me that’s a big difference. We’re not trying to get our head bad were trying to live our lives with some regard to the number on our pain level chart. This has gotten to a point I truly never saw coming, not in our country. Because I foolishly believed that as honest folks just trying to lead our lives with regard to our pain that we had nothing to fear. And how dare any state in our Nation make pain patients attend classes on how we should learn… well anything for 8 weeks or have their pain meds taken away, how-what-who the hell came up with that crap?! And how is that even allowed without going against our rights?? I can barely make it to my medical appts, there would be no way I would be able to go thru 1 day of classes, much less 8 weeks! I’m now scared at the fact my life is in the hands of non medical… who have way more power then they should of ever been given with zero medical schooling and no chronic pain knowledge like my very well schooled Dr does. We are still in America, aren’t we?

NEWSFLASH. NEWSFLASH NEWSFLASH
Scott Gottlieb the lead for our FDA has just said that the FDA has new measures to curb this HEROIN-FENTANYL EPIDEMIC oops IAM sorry I mean the opioid epidemic.He is quoted to saying that the FDA has “NEW HOOPS FOR DOCTORS TO JUMP THRU” IN ORDER TO PERSCRIBE OPIOIDS FOR A PATIENT THEY DEEM IS IN NEED OF THEM!

WHY WOULD A FEDERAL GOVERNMENT AGENCY THAT IS DESIGNED TO PROTECT US,THE PPL OF THIS COUNTRY AND THE PAYERS OF TAXES THAT MAKE THE FDA ANYTHING BUT THREE LETTERS IN OUR ALPHABET.
WHY PPL WHY??????? Please no comments inline with Mel Gibson in the conspiracy theory.lol

The petition is under the post made by Gracie Lenore Anyone who cares about the issue can support it,have everyone you know SIGN PLEASE

PLEASE SIGN THE “WE ARE THE PEOPLE” PETITION FOR CPPS TO BE HEARD BY CONGRESS.IT TAKES SECONDS AND IT WILL NOT AFFECT YOU IN A NEGITIVE WAY.PLEASE,PLEASE SIGN,THE SITE IS ANOVE IN THE COMMENTS.

Suzanne, the difference between transgender and how pain patients are treated is that transgender used to be considered a mental disorder—a health problem. Once it was taken out of that context, it was normalized. Pain patients have health problems, therefore they are untouchable. There are a few sympathetic health issues, but mostly our culture hates the ill.

The dire situation of pain management in the English speaking countries have now beome moral not legal. Humane or inhumane.

I was attacked last week by a head pharmacist at cvs.”How long have you been taking these drugs!”. She said, ‘you will die because of lortab and xanax’. Well, she was wrong since 1971. She actually screamed in anger at me. I got off a few medical facts and some of God’s Word and she ran off shouting “I am just looking after your health!”

One problem, she didn’t know my health. She ignored the fact I was alive, very sober, but in grave pain. Some there at that pharmacy know I have cerebral palsy which with spasticity can and does pull me down to the ground screaming. Xanax or most any cheap
benzodiazepine stops this at an effective dose. The lortab which was lowered 25 percent a year ago, worked well for ankylosing spondylitis until the dosage drop left me nearly housebound and unable to exercise.

Pharmacists are now practicing medicine. This is illegal and immoral since they attack persons who take the aforementioned specifically. As does Ballantyne and Kolodny.

I know my medical history, condition, pain level and molecules I ingest to function better than they. But put things on a level they don’t phathom, the moral, and they run.

I have pain meds and benzodiazepines filled tomorrow. Will pray for help against the pharmacists who have tried to hurt me so many times. It is getting bad and dangerous because of a few elites wanting to control those who are in severe chronic pain or eliminating them.

How to spot fake health news http://www.healthline.com/health-news/spot-fake-health-news?utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=generalhealth

copy and paste the link above in you browser window. This article explains the who, what and why of fake, misleading health news. These are the “ethics’ from which Jane and Andrew operate.
Yahoo is good at posting this garbage. Here is the deal. If someone writes buys an ad on Yahoo, they are privileged to write any garbage they want.

Re: second preventable cause of death – Poor diet and/or lack of activity generally lead to being overweight or outright obese…which we are not “allowed” to criticize because it’s “shaming.” Yet if you need painkillers to treat a chronic condition that is totally beyond your control, you’re fair game for any and all to judge!

Suzanne, you hit the nail on the head right at the beginning of your post — those who say this have never lived with chronic pain. If they had, they would NEVER say such a thing.

Thanks so much for this article. Makes me feel justified. I posted a petition on my Facebook page about this, however it mainly went mostly ignored. I did however, receive a couple of comments. One was in my favor, the other one not so much. It was a classmate that more or less told me that I need to quite taking the opioids. (And this particular person says that he as MS, and that he quit taking opioids after 8 years.) I have had CRPS for 21 years and have been taking opiods for all of these years. It makes me so hurt and angry to be judged from a fellow classmate that I went to school with in the 80’s. Especially since he told me he has MS. It’s hard of enough having to go to a pain clinic every month just so I can get refills and to be treated like a common criminal in the process.

Well said!something fishy is what’s it’s all about. Your article touches on so many levels .

Please sign Chronic Pain denial of care petition against acceptance and share like crazy ..just started by VET Robert Rose Jr. who was denied treatment and filed suit against VA for refusing to allow vets with chronic pain access to care and telling them to accept and live with it.. and Civilian who is is being denied benefits for care,..

. https://petitions.whitehouse.gov/petition/help-stop-torture-so-many-american-civilians-and-american-veterans-who-are-suffering-severe-non-cancer-pain

I too TOTALLY think its money, they dont want to pay for opiods & they are hoping we kill ourselves. As awful as that is but then not only does medicare not pay out but they can keep our social security. I know once my wean off opiods is done I will have to take my life. My pain is so bad as it is I only see my family in summer. My husband works in Chicago & cant find a comparible job in SW yet so last 2 years i have been forced away to NV fall, winter & spring & thats with my opiods i do that. I already am cut by half & I feel it. I am not sure how much more I can take but I want to be at my only daughters wedding next year & she will try for a baby right away in hopes I might see one grandchild. I am not sure I can last that long. My TN was caused by severe trauma to my nerves & them being tangled with the artwries & such in my skull from the trauma. Severe domestic violence from my ex. I hate the thought of ending my life & letting him win like that. I have had every brsin surgery. Have a stimulator in my brain & battery in my chest so I have tried other things to not take opiods but its all that works. I am terrified. I would leave tbe country in a heart beat if i thought i could get a visa being disabled I cant see any country taking me in , not when my own is trying to kill me!!

Hello , Thank you to all of you who understand where Im coming from. I want Judy, the person who commented about “being so mad that she wanted to throw her laptop out the window”; to understand something. I “accept” a certain amount of daily horrible pain. My medication only brings my Severe systemic CRPS, Degenerative Disc disease, R.A.,EDS Type-4 Vascular, Gastrparesis & more down to a 6 or so on the pain scale. When my pain medication is taken away, as is happening to others; I will not want to accept that amount of pain. But then I will have no choice, as you are stating that you have no choice. THATS the kind of pain I’m saying that no human should have to endure. The WHO says that this is “in-humane treatment and torture”! I wasn’t saying that anyone who chooses to “accept” their own pain, is bad. I said that the persons, such as Ballentyne & PROP; who don’t know what living with chronic daily pain is like, should not be FORCING people to “accept” it. I’m not going to go for street drugs or kill Myself, Judy. I’m going to have to accept my pain at a 9 or 10 instead of a 6 or 7 or sometimes a 4 or 5 on a good day with pain meds. But I will be back in a hospital bed in my living room, like I was the first two years after my car accident; but prior to the severe systemic CRPS, RA & EDS-4 diagnosis. I won’t be able to be a grandma anymore or be the mom that I want to be & have been. I won’t be able to Advocate or write articles anymore! I won’t be functional anymore! But I will be forced to “accept that”! I refused pain meds the first 2 years because I was “afraid” to “need” or “depend” on anyone for anything! But the Drs kept telling me to “take the opioids & to trust them!” I finally did & now look where we are only 15 years later! I’ve lived with chronic pain every day since 8-11-02, when that guy ran the red light! I happened to be in the wrong place at the wrong time! You did not take my article the way that I meant it, I’m afraid. You’re very angry & I can’t say that I blame you, if you’ve been living with uncontrolled pain for such a long time! I only meant that none of us in 2017, in the USA or anyplace, should have to live without “accept” the horrible torture of daily chronic pain when there are medications available to help us all!

Suzanne:
Great, thought-provoking article. I can tell you if breast implants Lightbow suction or gender reassignment surgery were tied to a $2 trillion failed investment in improving health, they would be unavailable also.
And we would have an organization called positions for responsible breast augmentation (PRBA)
And or the Liposuction enforcement administration(LEA)
Or the FBA (Federal Bureau of augmentation)
It gets hilarious at the extremes does it not?

It is sad but people will believe what the government says……..most are sheep. It is about $$$ and getting rid of the sick and useless. If the sheep would wake up and realize real “drug addicts” don’t get prescriptions, they can always find what they need. If you really believe all of this hype……..don’t be surprised when your medication may taken away, like your high blood pressure meds or diabetes meds……. because you are abusing them or your diet is your problem and if you were eating the right things you would not need that prescription so change your diet and deal with it, without your meds. God help us all because this is only the beginning!! What country can we go to, where we can be treated humanely? Thank you Suzanne!

I must implore you to read the suboxone treatement web site, it’s absolutely insane, everything that is written is a lie and or contradicting everything tbey ate saying about pain medication, it’s truly eye shocking to read it, and realize just how bad there product is and just how much money they are trying to make, nothing makes sense when prescribing for opiode dependence. Tbey state anyone who ever took a pain pill is addicted(well opiode depence) but then in the warnings for suboxone it states ALL THE SAME outcomes they state happens on pain pills? Opiode dependence seems to be Ok as long as it’s with suboxone and even death, but Opiode dependence (addiction) they say is not ok with prescribed pain pills,? I was angry reading it but also had to laugh after reading, it’s like a kid asking “why do we spell Cat with a K mommy?

Kudos to you for speaking the truth! 24 yrs. if
“Acceptance”. does not a happy person make.
Happy Holidays…..

I live in Qld. Australia and I’ve been on the merry-go-round with severe Chronic pain since I was young. It’s the same here as in the states where going to a specialist for help makes a person feel like I should pick up with constant spinal and nerve pain and don’t bother people. I’m a baby boomer, 61, and I always thought I would be looked after. What I feel like is that I am in the way and have been put in the too-hard-basket. My drug intake is high and I am being told through the media that I, and others like me, cost the government too much money and we should feel guilty for getting any kind of help, that being, medication or surgery. Sometimes I go to a psycoligist to help me manage my depression. At least the govt. pays for all the things I need but many a time I’ve been made to feel as if I am a burden by that same govt., doctors and Specialists in the public system.

Author of Entics Violation

Dr Ballantyne is not being truthful when she says “patients tried to get me fired from U of W”.

A complaint was sent to the university for an ethics violation due to her not disclosing all of her associations with law firms litigation , PROP, Phoenix House Drug Treatment Center. and pharmaceutical companies in all of her research. These disclosures are University policy.

She violated this policy when she neglected to disclose such connections. University of Washington asked her to leave or I presume she would have been disciplined.

The University reported to me that she had separated from them.

I know this because I authored the complaint.

Thank you Suzanne,
I simply cannot compliment you enough for stating what was completely obvious to me from day one. I know that most cannot wrap their minds around a concept that our own government could possibly conspire to eliminate so many of us.

I have been posting/saying for such a long time now, that I believe our government is behind a nefarious plot to deliberately euthanize the disabled. In a similar fashion Adolf Hitler did with disabled and those suffering from mental disorders. Those that refuse to learn from history are destined to repeat it.

In a healthcare system that literally cannot support everyone, Baby Boomers now make up an inordinately large portion of the population. Elder retirees no longer contribute to healthcare by payroll deductions, but suck from the system. Drug addict ne’er-do-wells will die off by attrition, while those that survive can be enrolled into Drug Rehab Clinics making Bain Capital, Goldman Sachs filthy rich.
Pain patients who are suffering incredible amounts of pain will either succumb by heart attacks or suicide, could potentially seek out street drugs. They also could declare themselves addicts, affording them access to Drug Rehab Clinics.

If we simply extrapolate from history such as CIA cooperation with drug cartels during Vietnam (Air America – Golden Triangle) to Iran-Contra, to Fast & Furious, its not difficult to answer the question why we are still in Afghanistan.

Bottom line, it’s not a question of protecting pain patients from themselves, it’s all about the money and Dr. Andrew Kolodny has a vested interest in pushing his agenda to ban access of pain medication to legitimate medically recognized chronic, persistent pain patients.

Are you aware that Opium production in Afghanistan has almost doubled this year over 2016, according to a United Nations survey?

The UN’s drug and crime agency reports an 87 percent increase in opium production in Afghanistan, at a record level of 9,000 tons so far in 2017, compared to 4,800 tons in 2016.


To put this into prospective, 16 years ago when we invaded Afghanistan, the opium crop yielded 218 tons. May I repeat this once again? In 2001 under Taliban control, the opium production was 218 tons, compared to 9,000 tons in 2017. Where do you believe the destination of this incredible amount of opium is going?



Once again Suzanne, thank you for this beautifully articulated article. It’s about time we truly understand who the enemy is.

Perhaps we should start “Accepting” parasites, and a little Cancer. This country sees to be accepting the unnecessary deaths of young Mothers, the Elderly and all of those Rust Belt Workers. Our “News’ is full of disparaging stores about “those people.” The “News'”and Internet is full of Health Factoids, seemingly “Health News” meant to sell a products or Ideology. It is as if they have Weaponized these terms, like “Acceptance.” Many of us have had to already accept that we are limited by our Pain of underlying Physical Condition. The ongoing theme in any “News” Articles about this, to conflate the Numbers and the Duration and Severity. These Psychological Terms are really nebulous. They sound really good, as if they mean something. In a Fact Free World all of this makes sense. The Healthcare, Insurance and Pharma Industries came up with a narrative about the “Opiate Epidemic.” One that avoided the existence of people with Pain. Each and every popular Article about any of this, is meant to deceive, distract and hide the real numbers. At the same time the want to peddle the idea that there is a simple psychological Intervention, for Intractable Lifelong Chronic Pain. Each and every Institution has not only sold us out, they sold out everyone in America. We won’t see any Psychologists or Psychiatrist sticking their necks out and explaining “Acceptance.” That might interfere with their Profits, and they could be accused of enabling “Drug Abuse.” Reasonable people used to know this was supposed to be in context. Now that is not true anymore. They will latch on to any idea that allows them to continue Billing, and promote their careers. If that means “believing” that people with pain, just need acceptance, they will peddle that too. The Advertisement for Laser Spine Institute just came on my TV. If people with Back Pain or Injuries just “Accepted” things, they would be out of business. There is no valid way to calculate the Odds of a good outcome there. One has to set the appointment, and then find out who on the rotating schedule of Surgeons, might be the one. They won’t even tell a perspective patient how much it will cost. They want a big check up front on top of the insurance. Then they expect if anything else comes up, the Patient can authorize further payments on the table. They do an expensive credit background check in advance. “Acceptance” is just another scheme. Another Psychological Term, that the New Age Community absorbed. We can put it right here with Mindfulness, Catastrophizing, and other nonsense they have weaponized to dissemble and obfuscate the Facts. This way they can claim that pain does not exist. The people who came up with this to endorse the Industries Profitability there are not real scientists. This is just another term, they use to explain all of this away. We are in New Territory here, the land of Alternative Facts.

Here in France, when there is no straightforward diagnosis or solution at hand, the pain center medics also propose to learn to accept and live with your chronic pain. Also, from the beginning, you are invited to talk about your pain problem with a psychologist or psychiatrist.
But it isn’t so bad as in the U.S. where people are denied the necessary pain meds.
Being myself in chronic pain, I wish there was something we Europeans could do for the American pain patients! It is horrible to suffer and feel as if nobody acknowledges your suffering.

Suzanne, SPOT ON!
“Do you have any guess why they are doing all of these things to hurt all of you?” The only answer that I could come up with is, “Money”

Add to the above statement “Narcissist Personality Disorder” of Kolodny and others that seek to make a name for themselves.
Unfortunately, many people like Kolodny and Jane do not have a realistic view of chronic pain because they have not experienced it for themselves.

There was a time in my life (late teens) when I did not see understand the gray headed people moving slowly at the grocery store, or asking for their bags of groceries to be lighter.
I guess God opened my eyes when I ran out in front of a 1965 Ford Sedan and found myself plastered on the windshield like an insect. With numerous broken bones and concussion, I spent the next three months flat on my back taking blood thinners. From then on, I was know as the guy that walked funny.
These charlatans are merely working in an area where sound scientific data will prevail. They will soon be found out like the “Gropers” are today.
I am fond of that saying “Give someone enough rope and they will hang themselves”
“Time and Tide Wait for No Man” “Water and Electricity are no respecter of persons”

With the work that you are doing, National Pain Report, Alliance for the Treatment of Intractable Pain (ATIP) and individual groups in Social Media associated with specific diseases, we are winning!

Dear Suzanne Stewart.:

I am one of those ( Chronic Pain ) people in WA State and I was told that if I do not attend classes for 8 weeks on embracing my pain, making it my friend, I will no longer be able to get my pain medications. What is wrong with people, it;s like saying to a women in the worse part of labor to embrace the pain, do not tighten up but let your friend PAIN talk to you and embrace it because it is a gift from GOD to know that your body is working correctly. I can’t believe this craziness, I hurt so bad, that the thought of having to get dressed and go to class when my pain levels are crazy high, is NUT’S. I am in bed 24.7 because I have been lowered so low that I can no longer enjoy the life I had which was about 30% off what I had before my car accident left me with Central Pain Syndrome. At least at 30%, I can help my spouse some, today I depend on my family for almost everything, which is so hard for me to accept even after 16 years in pain. I wish that my State was forced to sign a contract with me saying we promise to make sure that we will not leave you in severe pain, not let you go through withdrawals and we promise to medicate you enough so not to suffer from pain past 5 on the pain scale. But No, they won’t do that, but as for me, if I do not do as I am told, I break my pain contract. I am also going through terrible withdrawals from clonazepam being tapered down because I can not be on both pain medications and benzos. I wish that I could make up my mind and tell them that I know the risks of taking benzos but that it is on me and I need to stay on them because I need to sleep at night and when I have panic attacks, it helps to lower my stress because as we all know, stress makes our pain so much worse. Thanks for listening to me whining and crying. But these classes might work for some people but most of us, we are at our limits and the thought of getting dressed and going to class gives us needless stress which in turn makes more chronic pain. As for me, please do not make me go to a class that will bring on more pain, if I have to go this week, why can’t I watch it on skype or the internet, why make us take on more pain. The answer, They don’t care!!!!!!!!!

I think it is just another government agency that does not want to do their job right and go after the drug dealers,I think the DEA is afraid of them because they carry guns and they may get hurt.It is so much easier to look up a doctors name and see how many pills he prescribed and if it is over their number they go after the doctor and take his or her license away and they are out of a job.But the guy from the DEA still has his job and it is so much easier now he doesn’t have to worry about getting hurt or even getting off his ass to do anything just look at what doctor helped too many people and get them fired.I think I read they are making another agency just for that(going after doctors)more money the government will spend of our money.But now they have the chronic pain patients committing suicide because we can’t stand the pain 24/7/365.Now look how much they can save with all the CPP dying because you can only take so much pain.And you lose everything social life,working,sleeping.I got to clean the snow off my car today the first snowfall of the season and then had to come right back in the house to lay down in to much pain to get to the store for food,I will try again in 2 days once I can walk again.(just hope we don’t get more snow or I am in trouble again. I am already paying someone to clean my house and do my laundry.There are no kids around to clean off the car.But I bet if anyone in the government,Congress,Senate,House of Rep. or anyone else that has power over us are all feeling fine.Do you think that they have to suffer,I wonder how many of their Doctors are being watched.I hope we hear about them.(but that will get hidden) I do not like the Dea and the insurance companies being my doctor,that is not their job.I think they are practicing medicine without a license,they are the ones that we should be watching not the doctors.Doctors do not prescribe heroin and that is what is causing all the overdoses. ONLY IN AMERICA CAN THIS BE HAPPENING!

As always great article suzanne. Thank you!

Paving the way for euthanasis? Bottom line…..$$$&

It is unbelievable that, of all groups, chronic pain patients have become the most victimized, lower even than people who, perhaps, sell their children for drugs like methamphetamine. Fake morality? Someone making money from reducing current opiates? It’s a bad time to have chronic pain in America.

It’s nice when you hear other people going thru the same thing I’m going. My doctor took my meds down and has been a terrible thing going thru it not to mention all the stuff I read about in the paper how people die from street drugs why is this happening ?? Why do they take our meds away and makes us live in agony????

It is beyond reasoning why, an entire populous of people, patients with lifetime “verified” pain issues, vetted patients, have been declared”drug addicts” Accused, judged, and sentenced without due process. I, we, HAVE documentation of the beneficial use of medication that has exceeded current guidelines for opioid mediction prescribing physicians……for 23 years. I have not requested a dosage increase for 6 years! if you are treated at a pain management specialist, documentation, drug screening every 4 to 8 weeks is practiced and the providers are held accountable for dosage levels. Even GP’s are held accountable for prescribing medication and d well better have a reason to do so but, no longer at the physicians discretion. I have never considered myself an addict but, I do depend on the last, effective medication available to be prescribed or otherwise in order to help manage lifetime, incurable spine issues! It is not a “witch” hunt, it is mass elimination!

Every chronic pain patient needs to be VERY concerned about HR 4482, the Meadows-Renacci “Opioid Abuse Deterrence, Research, and Recovery Act of 2017” https://www.congress.gov/bill/115th-congress/house-bill/4482/committees?r=6 .

Contact your US Representatives, especially members of the Energy & Commerce Committee https://energycommerce.house.gov/about/ and Judiciary Committee https://judiciary.house.gov/wp-content/uploads/2017/12/115th-House-Judiciary-Committee-Updated-120517.pdf .

I’ve tried so hard to think pretty thoughts, listened to babbling brooks and New Age music and guess what? I still hurt! CBT was a joke as well – both iterations!

JUST ACCEPT SEVERE PAIN IS NO DIFFERENT THEN SAYING ACCEPT CANCER, ALTZHIEMERS, ALS, DIABETES ETC. JUST ACCEPT IT. IF THERE WERE CURES, WE COULD. SEVERE PAIN CAN BE CAUSED BY MANY THINGS. WE ALL KNOW THIS. WE , THE CHRONIC PAUM COMMUNITY KNOW THAT LONG TERM OPIOID THERAPY DOES WORK, IS NOT HARMFUL, ALLOWS PEOPLE OTHERWISE BEDRIDDEN AN OPPORTUNITYTO LIVE A LIFE OF QUALITY AS LONG AS THE DOSE IT CORRECT AND THE PATIENT TAKES THE MEDICATION AS DIRECTED. THIS WOMAN THAT I REFUSE TO CALL DR. ALONG WITH HER ACCOMPLISS ANDREW KOLODNEY HAVE PUSHED THIER AGENDA FOR REASONS I DONT KNOW. THE HEROIN AND ILLEGAL DRUG BUSINESS HAS GROWN EXPONENTIALLY. A VERY SMALL % ARE CHRONIC PAIN PATIENTS THAT WERE FORCED OFF MEDICATION WITH OUT WHEANING AND THEY CHOSE TO TRY THAT ROUTE. SOME WERE PEOPLE THAT ABUSED PAIN RELIEVERS JUST TO GET HIGH. THEY STOLE THEM OR LIED TO DRS. NOW THAT ITS EASIER TO GET HEROIN THEN PAIN RELIEVERS THE ABUSER,JUNKIE DONT WANT PAIN PILLS. WHY WOULD THEY? NOW THE MAJORITY OVER 40 MILLION OF US SUFFER FROM SEVERE FOREVER PAIN. THIS IS PAIN THAT CANT BE PERMANENTLY CURED BY SURGERY OR PHYS THERAPY. ITS JUST GETS WORSE AS THE CONDITION DOES. IT ALSO CAUSES MORE PROBLEMS BECAUSE SEVERE PAIN IF UNTREATED CAUSES HEART ISSUES, SEVERE DEPRESSION, HIGH BLOOD PRESSURE, NEW PAIN AND NOW THANKS TO BALANTYNE AND KOLODNEY SUICIDE. THE SUICIDE RATE AMONG UNDERTREATED PAIN PATIENTS HAS GROWN EXPONENTIALLY. NOBOBY TALKS ABOUT THAT IN THE MEDIA. THERE ARE JUNKIES AND THEY WILL GET HIGH OFF ANYTHING RTO GET OUT OF THIER HEAD. I CALL THEM GARBAGE PAILS, BECAUSE THEYLL TAKE ANY ANY EVERYTHING TO GET LOADED AND CHASE THE HIGH. THEN US CHRONIC PAIN SUFFEREERS, WE TOOK OUR MEDICINE AS DIRECTED, PASSED EVERY URINE TEST AND PILL COUNT. THESE PEOPLE ALONG WITH THE DEA ATTACKED US AND OUR DRS. YES , IN THE PAST THERE WERE BAD DRS AND BAD PATIENTS. THE BAD DRS ARE GONE. THE GOOD DRS LIVE IN DAILY FEAR OF ARREST AND LOOSING LICENSE. WHY ? BECAUSE ITS EASIER FOR THE DEA TO GO AFTER A DR OR A PATIENT THAT LIVES ON DISABILITY THEN A DRUG DEALER OR CARTELL THAT ARE USUALLY HEAVILY ARMED. THEY LIE ABOUT THE AMOUNT OF PILLS PRESCRIBED AND THE AMOUNT OF PEOPLE THAT DIED FROM JUST PAIN RELIEVERS. IF ONE PERSON TAKES 4 PILLS A DAY THATS 120 A MONTH. THATS 1440 A YR. LETS EVEN SAY ONLY 20 MILLION LIVE IN THOS SEVERE PAIN, Thats 3 BILLION PILLS. SOUNDS MUCH WORSE THEN IT ACTUALLY IS. WE HAVE THE OLDEST POPULATION WE EVER HAVE. ALSO THEY DONT EQUATE THE FACT THAT EVERY ONE OF IS WERE FORCED TO TRY EXPENSIVE TREATMENTS FIRST. I HAD 3 EPOIDURALS, 4 FACETS INJESTIONS, DOZENS OF TRIGGER POINT INJECTION ALL IN HOPES OF AVOIDING THE OPIOID THERAPY. GUESS WHAT, AFTER THOUSANDS OF DOLLARS SPENT, TGOSE PROCEDURES DID NOT WORK. THE PHYSICAL THERAPY ACTUALLY MADE THINGS WORSE.. FINALLY I SAID OK. IT… Read more »

Right on the “money”….once again, Suzanne. It is unfathonable why, those blessed with “good” health, without disabling pain issues would wish to harm, or neglect patients with intractable pain of medication that we have been successful with….for decades. Documented, recorded history of successful, beneficial use of medication “tailored” to each individual patient from onset of treatment to adjusted medication with the passage of time and treatment. I really hope and pray that something sisnister is not happening on the greatest country on the face of the planet! Loss of mobility, ability, heightened pain sensation, loss of ability to earn our living, suicidal tendencies and suicide IS the cost and result of “pain acceptance”.

This article makes me so MAD I could throw my laptop out the window!!!
ACCEPTANCE IS NOT A LIE!!!
Not when you have no other choices, unless you choose to go to illegal street drugs, or worse, commit suicide!!!!
I’ve been living with chronic pain for 25+ years ago….I’m tired of fighting the good fight & not getting anywhere. I’m not going to use street drugs, I’m not going to commit suicide, I just want some adequate pain management, but that’s not easy these days. Oh sure, the first 5 years I was treated with epidural injections, pain meds & physical therapy, but they had little effect. Then I moved to another state, and new doctor told me to “learn to live with the pain”!!! How the hell do you do that???? Off & on when I had a flare up of sciatica he’d prescribe hydrocodone, but only 20 pills to get me through….non-refillable of course. Living with chronic pain has taken a physical & a mental toll on me….for years I became depressed. ONLY when I ACCEPTED my life of pain was I able to get off those anti-depressant meds. I’m still in pain 24/7/365 and I will be until I’m dead & gone….only by ACCEPTING am I able to face another day.. Don’t try to say those who choose ACCEPTANCE don’t know what chronic pain is. Please try to see the other point of view.

Chronic Pain Patients need to be vocal on a daily basis regarding this discrimination and attack to deny access to patient care. Additionally there needs to be a demand of state regulatory agencies to hold PBM’s like CVS Caremark PBM accountable for practicing medicine without a license without exams of people by mail in an attempt to reduce their costs nationwide by 50%. Currently this is being done with immunity and all regulatory authorities are turning a blind eye as doctors and members have been flooded with letters from anonymous “customer care” teams making unauthorized rx reductions after CVS PBM conducted a nationwide patient profiling purge of their chronic pain patients regardless of their medical conditions or needs. The most vulnerable populations are at risk and those of us who can push back need to do so .

When the Americans With Disabilities Act was being drafted a few decades ago, Congress struggled with this same issue. Should people just “accept” certain limitations upon themselves, or should people fight for their freedom? In trying to understand this challenge of the present, they gained insight from our past. Jefferson did not speak of a right to happiness, but he did speak of a right to pursue happiness. It is not our acceptance of what is, that decides whether we are free, but what we do about it, that matters.

Disabled people can lay in bed and wait to die. Or they can invent ways to help themselves get out of bed and function. Partially-deaf people have hearing aids. Totally-deaf people have Sign Language, and various computerized gadgets that let them use text messages to communicate with folks whose voices they cannot hear. Folks with limbs that don’t work, can learn to use various gadgetry to do their lifting for them. And folks who are limited in their movements by crippling pains, can take medicine to reduce the pain, empowering them to move.

Ballantyne and others like her will insist that nobody is ever perfectly free of all pain, and that’s correct. Everyone experiences discomfort, and everyone learns to accept that the discomfort is real. We also learn to take action to reduce the discomfort and create comfort. Those actions are a part of our human identity. Only a pathological narcissist will demand that we sit perfectly still and suffer, while she lectures to us endlessly about what we must accept. Most humans will take action at some point, and attempt to function.

So the way out of Ballantyne’s conundrum, other than waiting for her to kick the bucket, is to use every means necessary, including, yes, drugs, to preserve our functionality.

Perhaps if enough of us come visit her office on the university campus and make 911 calls to campus police for lift assists, because it hurts us too much to walk any further, the university will figure out that it’s expensive to carry us around and cheaper to allow us to use medicine and be strong enough to walk by ourselves. Perhaps it will come to that.

Ballantyne, like most narcissists, is a fool who can utter pretty words. Summed up, the pretty words remain foolish. Let’s not fall for them.

Is there a chart with truth…real data that would break down the deaths by Fentanyl, alcohol, and what victims were using combinations of alcohol ++ at death? The data is available…but has it been collected and made available?
Thinking aloud…first…thank you….but there has to be more than just old-age savings here. Future drugs that aren’t cheap like opioids appear to be a major player, and spill-overs between advisory boards and owners of said companies at times. On-and-on-on with players on a pharmacological chessboard changing roles via retirement….legislators…bonuses…and the bounties and lordships of the pharmaceutical feudal system….sigh….