Pain Advocates Urge Patients to Comment on CDC Opioid Regulations

Pain Advocates Urge Patients to Comment on CDC Opioid Regulations

Now that the Centers for Disease Control has decided to open up the public comment period on its controversial guidelines on opioid prescribing, pain advocates are urging that people participate.

To comment, click here and view the “Comment Now” button in upper right corner.

One group that greatly influenced the CDC was the PAINS Steering Committee and Myra Christopher of the Center for Practical Bioethics emailed her followers on Friday ending with the following message.

“It is our hope that each of you and your organization will engage in this process, and I want to personally encourage you to do so. All of us are working to establish a new standard of chronic pain care – one that allows healthcare professionals and those living with chronic pain access to the full menu of treatment options, including opioids for those who benefit from them. We are all, however, also aware of the risks associated with these medications. It is important for CDC to get this right, and they need our help to do so.”

Jim Broatch is the Executive Vice President of RSDSA.

“I believe that the CDC’s decision to accept additional public comments regarding its proposed draconian Opioid prescribing policy is an overdue but wise move. Every day, I receive desperate calls from people suffering with chronic pain whose prescribers have arbitrarily cut their long-term opioid dosage without any previous discussion and do not offer another therapeutic option.  It’s inhumane and malpractice. We have strongly encouraged the CRPS community to comment.”

Dr. Daniel Bennett is Chairman of The National Pain Foundation and its Global Pain Initiative.

“After years of inaction in a growing and very costly public health issue, it is encouraging the government is finally initiating discussion. Hopefully the public will arise to the occasion and educate our officials to prompt real action. We look forward, as The National Pain Foundation, in a partnership with the CDC, through the Global Pain Initiative, to provide the data that will move the treatment of pain into the 21st Century.”

Terri A Lewis, PhD, a frequent contributor to the National Pain Report put it succinctly.

“I invite chronic pain patients who rely on medications & are still alive, to offer their expertise to the public conversation.”

If you do comment, let us know what you told the CDC.

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Authored by: Ed Coghlan

There are 35 comments for this article
  1. Dan at 6:26 pm

    I have battled severe chronic pain for close to 5 years now. I worked in extremely hard labor conditions at my family business for 15 years before i was forced into disability in 2013. Early 2011 had been suffering from severe lower back pain as well as severe nerve pain in my legs.
    MRI revealed L4 and L5 were herniated as well as severe degenerative disks. Fusion surgery was a failure. I woke up toward the end of the surgery which may have complicated things, the doctors barely acknowledged this, all i cared about was healing and getting back to work. I also developed drop foot from the surgery After that the amount of meds helped but left me drowsy with no appetite as well as many other symptoms. To make things worse every couple weeks i would get sick with uncontrolled vomiting. Anyone with a horrible back knows how much pain puts you in. Then they kept selling me a neurostimulator that attaches to my spinal cord. Which I had put in in 2012. After having it removed because of an internal infection and replaced (not happy about that), it gave me minimal relief and left me with pain medicine and no improvement. After this Pain Management gave me a blood and urine test which showed I was taking my meds correctly but I also had Marijuana in my system. I was promptly kicked to the curb by them, treated like i was a heroin or hard drug addict, (never touched in my life) then my primary care dr said it sounded like they were trying to get rid of me. I had turned to marijuana for some pain relief, help with the lack of appetite and helped with my overall mood. Anyone who has gone through bad lower back problems with nerve damage knows how this is a constant struggle and gives you the feeling of not being able to escape the overwhelming pain. So after quitting marijuana use (which had no withdraw symptoms), things reverted back to having a miserable life. There is so much more about daily struggles and to make a long story short, my wife is divorcing me because of my condition, life is a struggle daily, as being an athlete/coach/manager most of my life, my activity is impacted dramatically and really believe marijuana treatment with lessening medication is the much better road to go……

  2. Reyna, A at 8:35 pm

    To The Centers for Disease Control and Prevention,

    As a child I had an amazingly, fully functional independent mother.  My mother, along with other members of my family suffers from chronic pain. I am writing this letter out of concern not only for my mother who suffers from chronic pain, but, for all those who are suffering and affected by the Opioid Prescribing Guidelines.

    Complex regional pain syndrome (CRPS), formerly known as Reflex sympathetic dystrophy is the disease my mother has. She suffers with ongoing pain every day. CRPS/RSD is “characterized by various degrees of burning pain, excessive sweating, swelling, and sensitivity to touch.” I remember the day I picked my mother up from her surgery from a sprained ankle. The moment I picked her up, she wouldn’t stop complaining that her foot and leg was in agonizing pain, the doctors ignored it. Few weeks later she was given pain medicine that didn’t suffice and help her with her pain. She went to the doctors for a checkup and the signs were ignored. Month has passed, swelling and discoloration occurred. My mother brought it to their attention that something wasn’t right, yet it was still being ignored. Eventually, after months have passed she was diagnosed with RSD/CRPS.

    My mother has been suffering from RSD/CRPS for the past five years now. She has been fighting and pushing through the pain with the minimum amount of opioid medication, yet it is not a sufficient amount of opioids to cope with the pain. There are two stages of RSD/CRPS. The first stage does not involve the nerves. The second stage involves the nerves. My mother’s nerves in her lower right leg have died, due to the neglecting done by the doctors. The amount of opioids she is prescribed does not help her with her pain. It went from her ankle to her hip within the amount of five years, within the next few years it will become worse, eventually taking over her body.  She is only given a few opioids a day to help ease the pain, but, by the time it wears off she is not able to take the next pill do to the limited amount given to her. The pain the RSD/CRPS causes is worst pain then the pain for cancer patients.  Patients who suffer from chronic pain like my mother and others who suffer from RSD/CRPS, should be given more Opioids.

     Cancer patients are given many opioids to help seduce the pain since it is a terminal illness.  Little do doctors know about RSD/CRPS.  Victims of RSD/CRPS suffer from chronic pain that will just continue to get worse over time. It is as if it is its own cancer. It will start to deteriorate the muscles in the effective area and start shutting down the nerves. It will start to spread throughout the body and eventually cause death. RSD/CRPS victims should have the same amount of opioids if not more. RSD/CRPS is a slow and painful death that needs the proper amount of opioids to help seduce the pain.

    Other pressing issues for patients with chronic pain and the guidelines for opioids involve disabled elderly personnel. The amount of mobility should be considered when prescribing opioids for elderly personnel. My grandmother has issues with transporting around her home. She gets around her place with an electronic wheel chair in which even the movements to use the chair hurts her fingers in her decaying body.

    Help the patients who are slowly dying.

    Sincerely a concerned Daughter, grand daughter and service member.

  3. Dorian W at 5:16 pm

    suzanne it u get the news time within the next 2 weeks please tell people to comment on the cdc reulations.gov. be careful what you say because they can edit it to make u sound as though you against pain meds.

  4. Kristine (Krissy) at 4:50 pm

    Paul Harvey: There is a way to get to the big media. It takes a few hundred dollars and I haven’t seen anyone step up to that plate. We have to file our own press release through a big PR agent who would file it and it would go everywhere. If I had the money I’d do it. I know exactly who to contact and how to get it done. I was in that business for years.

  5. Kristine (Krissy) at 4:46 pm

    Suzanne: Wow, what an amazing bunch of stuff you went through! I hope you will keep us all informed through the National Pain Report. I hope you are ok!!

  6. Dorian W at 9:20 am

    AS THE CDC PLANNED WHEN OFFERING THEIR EMPTY GESTURE NOT ENOUGH PEOPLE KNOW THAT THEY CAN COMMENT. HOW WAS THE AVERAGE PATIENT TO KNOW UNLESS THEY READ THESE PUBLICATIONS.
    SINCE THERE IS TIME I SUGGEST THE NATIONAL PAIN REPORT SEND A EMAIL BLAST TO ALL SUBSCRIBERS AND ALL OTHER PAIN MGT SHOULD DO THE SAME.
    GET THE DOCTORS TO NOTIFY ALL OF THEIR PATIENTS OF THE NEED FOR THEM TO COMMENT IMMEDIATELY. PAIN DOCTORS AROUND THE COUNTEY STAND TO LOOSE THEIR BUSINESS IF THESE GUIDELINES PASS. MOST OF THEIR PATIENTS WILL GO BACK TO THREIR PRIMARY CARE SOLELY. INSURANCE CARRIERS WILL NOT COVER SINCE THE PRESCRIPTIONS WILL BE ONLY 90 MG A DAY ANY DOCTORS CAN WRITE THAT WITHOUT SCRUTINY.
    BECAUSE PAIN MGT DOCTORS GENERALLY HELP THOSE OF US WITH HIGH DOSE PRESCRIPTIONS A primary is not qualified. PLEASE THOSE OF YOU WITH THE MEANS AND ABILITY WE NEED MASS MEDIA CAMPAIGN. EMAIL, FACEBOOK, FLYERS, TELEVISION AND RADIO. YOU MUST STRESS THE URGENCY.
    MORE PEOPLE DIE DAILY FROM ALCOHOL and TOBACCO YET THERE ARE 0 MEDICAL BENIFITS OF EITHER. OPIOID THERAPY WORKS. BECAUSE HEROIN IS SO EASY TO GET THESE DAYS, MUCH EASIER THEN FILLING A PRESCRIPTION FOR OXYCODONE TO CHRONIC PAIN PATIENT THAT NEEDS IT TO RELIEVE PAIN AND BE PRODUCTIVE, WE WILL SEE MORE DEATHS FROM HEROIN THEN ANYBODY COULD IMAGINE. IF A GRANDCHILD IN THEIR 20’S SEESOM OR GRADMOM IN EXTREME PAIN AND SUFFERING, BELIEVE ME THEY WILL GIVE YHEM HEROIN AND THEY WILL TAKE IT. WHEN A PERSON IS STARVING, THEY WILL GO THRU A TRASH CAN. WHEN A PERSON IS IN AWEFUL PAIN AND THEIR DOCTORS WILL REFUSE TO HELP THEY WILL TAKE HEROIN
    PERIOD! WE CANT LET THIS HAPPEN. PLEASE EVERYONE DO WHAT YOU CAN TO GET THE WORD OUT.

  7. Suzanne Stewart at 7:49 am

    Paul & Dave, I’ve been trying to get a new GP as mine left abruptly In a cloud of suspicion in Dec ’14! The GP got rid of all of the other Dr’s patients except a few, & Ivwas one of the few that he believed! He has to believe me as I’ve had 8 surgeries & tests and things to prove it! But he still insisted I get off of the Fentanyl Lollipops after 10 yrs ! I had to go down off the patch too! He tried to send me to an addiction place where he sent all of the others! But I never even smoked or drank or took a aspirin prior to that MVA! I wasn’t having that follow me around! I found a pain Dr and went thru withdrawals at home in July this year! It was horrible! I’d already had a CVA & heart attack, therefore dangerous too! But I had no choice! The pain Dr is great now luckily & still believes that lollipops are only for cancer patients!! I still don’t understand how any person can judge another’s malignant or non-malignant pain?
    Regardless, I wanted to tell you that I did a little video when going thru w/d this past Summer. Because of that video I’ve been approached by News correspondents! They were coming to my house with cameras and everything to do a documentary but the correspondent got delayed coming from LA! They say they’re coming sometime in the next week or so, I’ll keep you posted! They wanted me to talk to them about “their side” of the drug war! But I’m insistent to speak about the pain patient and our agony and our fight with and through all of this! I’m an advocate and I will not do it unless I say what I want to get out! I have ppl that have been helping me too!
    I’ll let you know!!
    Suzsnbe

  8. dave rosen at 6:32 am

    why arent you people speaking up to your doctors. bring in the literature, saying that say theyre not rules. the cdc even stated doctors should not use these guidelines until they are official, even then they dont have to. you gotta stand ground with your doctors as well as the beaurocrates, but do it professionally. that what i did and he agreed. WE MIST TAKE CONTROL OF OUR CARE. IF YOU DONT STAND GROUND THEY WONT THINK YOU IN THAT MUCH PAIN TO BEGIN WITH.

  9. Suzanne Stewart at 8:43 pm

    Karla! You hit the “nail on the head!!” It’s just absurd that they chose people with their priorities in their pocketbook/wallets instead of in their heads or hearts! They chose people with no true one on one experience with horrible pain 24/7/365! They didn’t choose any pain patients or Drs who work with real pain patients! They instead chose people who own their own treatment centers, massage studios and/or acupuncture clinics!! This is a horrible NOT thought out plan! They’ve luckily opened up for comments from us, the ones who suffer from the decisions these people made! I’m thankful for this opportunity to speak my mind, about how I feel re: this whole mess. I sent mine in awhile ago! I’ve been posting and re-posting just passing the word along to get as many people to post about this as possible! We need our voices heard! We are the ones who will ultimately suffer at the hands of this horrible mess!! Please.., anyone who reads this, who can help us in any way possible; I’m begging you to NOT take away the only pain relief I’ve had since the multiple injuries & surgeries of a MVA in 2002! I have not only “Full body/systemic CRPS”, but also too many other horribly painful illnesses to mention them all ! Another few, just for the record, are: Arnold Chiari Malformation I, Autonomic Neuropathy, Polyneuropathy in Collagen Vasvmcular disease, Degenerative Disc Disease, OA and RA plus SCID(an immune deficiency disease which prevents me from being s candidate for s pain pump of SCS)! Please know that not all of us fit into a neat little box or package! Please realize that most of our stories are horrible & traumatic ! Please listen to our voices, read our letters & comments and view us as real people in real pain! So many more will die of suicide & pain related deaths! Yes… Mr or Mrs “decision-maker” for all of us in pain; YOU CAN DIE from constant pain day in and day out!! Lastly, only about 5% of Real persons who suffer from real daily pain, become addicted!our bodies may become physically “dependent” but believe me when I speak for the majority or all of those in horrible chronic pain… We do NOT get pleasure or a “high” from our Opioid pain meds!

  10. Karla J. Rabel at 1:02 pm

    Dear CDC, and your policy makers,

    I am a chronic pain patient, and I would like to thank you for changing my life for the WORST! Since you come out with this stupid policy on the treatment of chronic pain patients, my doctor has changed my pain medication to something less effective and at a lower dose. Now I am in more pain than I have ever been because of you and your cronies dictating what a chronic pain patient should and shouldn’t have. How dare you take control of a person’s life! I thought we were supposed to be living in a free country!

    I understand that there is an epidemic of Rx pain medication deaths in the US, but majority of these deaths occur because the person is misusing or abusing their pain medications. Have you even thought about Us? The people that suffer with pain 24 hours a day, 7 days a week, 365 days a year, for years and years on end? The people that have to have help with their activities of daily living because they cannot do things for themselves? The people who use their medication properly? The people who can no longer do those little things they once loved doing. The people that can no longer have a relationship with their spouse or partner because of their pain? Have you even thought about Us, the people who deserve pain control so they can live a somewhat normal life like other people… like you?

    What are you going to do about the deaths from suicide when chronic pain patients cannot get the pain relief they need and they start blowing their heads off, cutting their wrists, overdosing on illegal drugs and so forth? ARE YOU GOING TO TAKE THE RESPONSIBILITY FOR ALL THE DEATHS THAT ARE GOING TO OCCUR IN THE NEAR FUTURE BECAUSE OF YOUR STUPID POLICY? I think you should! You and your policy makers should be held accountable for every chronic pain patient that takes their own life because they could not get the proper care and pain relief… And I think each and every spouse or family member that has a loved one commit suicide should be able to sue you for everything they can get!

    I would like to ask all of you that contributed to this policy a question… Do YOU or a FAMILY MEMBER suffer with chronic pain? I bet NOT…! If you or your family member did suffer with Chronic pain, YOU wouldn’t be allowing this to happen, am I CORRECT? What in the world are you going to take away from Us next, our disability benefits? You have pretty much ruined our lives, or what lives we did have, so take away whatever you want. Apparently the US is not a
    free country anymore because of all the government agencies sticking their noses where they don’t belong.

    I spent many years in the nursing profession caring for patients like myself and in turn this is the care I am supposed to be happy, satisfied, and content with? I don’t think so! I think it’s time for you to go back and rethink this policy, and do a little more research on it! Or better yet, drop your policy because YOU are supposed to be “The Centers for DISEASE Control”… NOT “PAIN Control”!

    Karla J. Rabel (Montana)

    Address, phone number, age, medical conditions, names of my Pain management physicians, and any other information you would like upon request only.

  11. Laurie at 2:00 am

    I just left a comment which explained my total experience with opiod medication, detailing why I was put on it, the tight monitoring system in place making it impossible for abuse. my experiences before finally going on the medicine, what my lifewould be like without them, all of my pain issues, my related depression. I requested that this option not be taken away from those who truly needed at and explained that in my experience, there were far more people who truly needed it than who were abusing it. There were 641 comments

  12. Pingback: CLAAD.org » Pain Advocates Urge Commentary on CDC’s Opioid Prescribing Guidelines
  13. Paul Harvey at 8:31 pm

    I wonder if anyone in this group has a contact/connection in the media who could get our story on air (preferably on a national news program) so the cdc might get more “feedback” !

  14. Kristine (Krissy) at 5:11 pm

    Emily, can others of us use the link to your article in our comments to the CDC also?

  15. myst7 at 4:57 pm

    I sent a message that it took 12 years of seeing docs,MRI’s,spinal tap,epidural pregnancy, getting neck injections,surgery etc to get pain management from family doc.how surgeon left my neck a mess not his fault but some things are worse and not better …doc just talking of taking away pain management sent me in to a full blown MS relapse … I also have arthritis,Fibro,Deg. Disc disease ,curve of the spine .. have frequent falls so mess self up worse
    I just put it out there I gained 20# after surgery from no quality of life because addicts have made it so bad that I had 12 years from no pain management,and now being undertreated for pain that is unrelenting ..was that the type of letter we are suppose to write ? my letter was writen better this is just a summary

  16. paul at 4:38 pm

    I thought I was posting to the article that asked us to post. If it’s in the wrong place then I’m sorry. I was trying to give the more uncommon view from not only the chronic pain patient, but also the view from me the healthcare provider.

    So again if this is in the wrong place. Sorry

  17. Paul at 2:35 pm

    I work in this industry and yes there is abuse, but what needs to stop is the government putting more and more restrictions on the doctors and patients. Where I live the state put more hurdles on primary care physicians so much so that almost every doctor quit managing chronic pain and sent all their patients to pain specialist. Now the state had what they thought were “good” intentions trying to cut down on abuse, but we saw the opposite.
    Anyone that was abusing prescription meds turned to heroin and I saw more overdose deaths in 1yr than I have seen in 21yrs. Enough is enough. Addiction is a problem, but more hoops is not the answer. This is only hurting people who benefit from their medications. People in this state in many cases are now forced to drive great distances to get care. I can tell you people with chronic pain really love longer car rides “L”. I also just learned that after my doctor went to a seminar anyone that is also taking nerve medication (benzos) now has to choose. Tremors, or pain. I have no idea how the human body has been able to take both of these medications without problem and now the body miraculously changed. Again this is problems of abuse, but the only ones that suffer are the non-abusers. One more small item. Do you think we could add more reduntant slips to sign when we go to the doctor. Ok I think I’ve covered everything.

    Thanks

  18. Scott michaels at 10:36 am

    we all know we all hurt. we alll go thru hoops, our doctors are afraid to help us or just quitting.
    STOP COMPLAINING ON THIS SITE AND GO TO THE CDC COMMENT SITE AND TELL THEM. I SUGGEST WRITTING SEVERAL COMMENTS USING FRIENDS AND RELATIVES NAMES THAT WOULD BACK YOU. IF YOU ASK THEM TO WRITE. THEY PROBABLY WONT. HOPEFULLY HELL GET AT LEAST 10000 COMMENTS. I AM DROPING OFF FLYERS TO ALL THE PAINGT DRS OFFICES IN MY AREA. IF YOU CAN, DO THE SAME! MOST PAIN PATIENTS DO NOT KnOW ABOUT THIS. When they go to get a refill in february they will just be FREAKED OUT AS WE ARE. BUT THEN IT WILL BE TOO LATE.

  19. Angie Clark at 9:33 am

    I have CRPS/RDS syndrome I only get 2 pain medication a day. They are the only releave I received. I am praying that they will not take my meds away from me.

  20. lonnie van cleaf at 8:57 am

    as of today only 65 comments to cdc.
    OUR LIVES ARE ON THE LINE HERE.
    GET EVERYBODY TO WRITE IN. WRITE IN FOR THEM. WITBOUT AT LEAST 10000 COMMENTS WERE GONNA LOSE. YOU GOTTA GET YOUR FRIENDS DOCTORS AND OTHER PATIENTS TO WRITE IN. HAND OUT FLYER AT PAIN DR OFFICE.IF YOUVE NEVER FOUGHT FOR 1 THING IN YOUR LIFE LET THIS BE THE 1ST. BASES ARE LOADED 2 OUTS IN THE 9TH INNING AND WERE DOWN BY 3 RUNS. WE NEED A HOMERUN TO WIN THE GAME. IF YOU DONT SWING YOULL NEVER KNOW IF KNOW IF YOU COULD HAVE KNOCKED IT OVER THE FENCE. IF WE SWING AND MISS, AT LEAST WE SWING.

  21. Janet at 3:32 am

    Being in pain all day every day for the last 15 years and it is not get better, I would not wish THIS on this on anybody.Over the past year They keep changing how I must get my perception I have to do hoops my pain will never get better but will get worst. Why make it harder on the ill because of the criminals? I don’t get that we are not children in grade school.

  22. Patti at 3:13 am

    I agree, we have too many abusers, but for each AB
    USER, we ALSO have a REAL SUFFERING individual that REQUIRES a higher dosage of pain relief that only an opiod can deliver! Unless you have suffered like those of us that DO, you have NO IDEA the amount of pain that we suffer. Besides, one is an ADDICT and the OTHER is NOT. The Pain Management Drs only need PAY ATTENTION to decipher which is which….

  23. Suzanne Stewart at 10:26 pm

    Only approx 5% of chronic pain patients actually become “addicted”! Most people taking Opiods who are living with daily chronic pain such as “CRPS”, do well on Opioid therapy and their bodies may become “dependent” but they do not get a “high” in any way! It only helps the pain to lessen to a more livable level or more tolerable! It never diminishes the pain totally and nobody expects that, just to help yo have some kind of life! The people or teams that they’ve chosen to take away the opioids from real chronic pain patients, have monetary gains in that the Physicians against Opiods own acupuncture and massage therapy places!! They want those used instead! Also the makers of the SCS and pain pumps, they’ll make money if ppl are given those surgical aids instead of a pill! But not everyone fits into a neat little box and ppl like me can’t have those surgeries for immune reasons & so I need to be able to take a pill to lower my #43 pain on the McGill pain scale! CRPS is #43 on the McGill pain scale.

  24. Joan Triplett at 8:36 pm

    While there are certainly many abusers of opiate pain relievers there are many more people legitimately suffering chronic pain that is relieved best by these medications. Often nothing else gives enough relief for those people for them to live any quality of life. Making it impossible for chronic pain patients to get the help they need is not the right approach. Doctors have become afraid to prescribe them and pharmacists have become like the DEA with everyone often treated like drug seeking addicts or drug dealers. There must be a better way to control the drug problems than to handicap people who have no life without pain relief. Please stop, slow down and approach the problem taking a humane approach. Thank you.

  25. Kristine (Krissy) at 6:10 pm

    Scott Michaels: I just replied to your message. Another thing I can do is create a link and send it to Dr offices and other places like you mentioned above. Maybe with the help of the NPR, the readers, etc. I can get links to other’s Dr offices to make this quick, as we don’t have much time. I would need email addresses for the places for my letter to be sent – in the email I can offer them a link to print the letters (like a half-sheet) and put them in their offices or order them from me at cost. What do you think? Reach me at kandiapple.mac@gmail.com

    Krissy

  26. Kristine (Krissy) at 6:00 pm

    Good Idea, Scott Michaels. I am going to prepare a letter, designed and a link and send it around. I’ll post it here if I get permission from the editors. Thanks.

  27. Lauren Sorrell at 5:58 pm

    Just left a comment with them. Hope it helps

  28. Scott michaels at 5:24 pm

    i just wrote a very lengthy yet informative comment on flipboard. under “medicine”
    please read and give me your input.
    make sure you write you letters to cdc but send copies to your local and national tv and radio stations and state representative, fda and dea. email you doctors ask his to tell his patients to get involved we need to blow out their internet and have bags and bags of snail mail. DONT COUNT ON THE OTHER GUY. ASSUME ITS JUST YOU AND THIS IS YOUR CAUSE. PRINT OUT THE CSC LINK MAKE FLYERS AND HAND THEM OUT AT YOU PAIN DRS OFFICE. OLD FOLKS HOMES WHERE EVER YOU THINK PAIN PILLS ARE BEING PRESCRIBED. EVERYBODY NEEDS TO KNOW IF THEY DONT WRITE IN THEY MAY NOT GET ANY MEDICINE PAST FEB 2016. GOOD LUCK!!!

  29. Kristine (Krissy) at 12:58 pm

    Paula: Try a different browser first. Otherwise wait. It might be jammed (we hope!). If you can’t get it late at night, look at the fine print on the bottom for how to contact their webmaster.

  30. wendy Hart at 12:29 pm

    I wish that these studies would simply study how those of us who have been affected by chronic pain for many years, and who have tried alternate forms of pain relief are doing w/our opiates. I am sick of being thrown if w/teenage drug abusers who have swiped Mom’s meds, or the street drug user or all the other folks who are not using their meds as intended. I don’t share my meds. I don’t sell them for extra cash. Nor do I use them to get high and escape my everyday life. I take my meds because they are the only thing that helps bring my pain down to a liveable level where I can be a productive member of society and useful to myself and family. I am tired of pharmacists telling me that they don’t have my meds because they don’t believe I need them in the amounts my MD prescribed. I hate that I can’t get the pills that work for me, like Soma, because others have abused them. I hate that my doctor is afraid of losing his license for prescribing me my meds and I am angry that the insurance company is pricing these meds out of my ability to pay by raising them from a tier 2 to a tier 4.

  31. Jenifer Farid at 11:58 am

    When the attack on pain management started a year and a half ago especially to those on Medicaid I was one of them. I have Chiari Malformation with Syringomyelia have survived two brain surgeries and one spinal vertebral surgery. Doctors never promised a Cure there is not one. The only way to manage my chronic pain and quality of life that has been taken away was with 14 years of opiods medication. I was not titrated off just dropped and thrown on Fentynal I ended up in the ER three times I’m surprised I’m still alive. These actions will cause more suffering and deaths to arise. A year and a half ago I thought I was the only one and now knowing that so many that suffer from chronic pain are going thru this it breaks my heart for countless others unnecessarily are going thru this now.

  32. Paula at 9:58 am

    I have tried for one hour to open this Gov site,,to no avail,,does anyone know what’s going on???

  33. Yolanda Norment at 9:33 am

    I have been diagnosed with Fibromyalgia in July of 2014. Prior to that I have suffered with chronic low pack pain that spread to my entire body. My life changed I was in so much pain I left me job and did not return for a year. Since returning I find it hard to focus on what I’m doing, I even forget the work I had just finished. My life is reduced to work and home, I truly don’t know how much longer I can actually work. With the sleepless nights and adding up and still having to function in a job that requires my focus and attention to detailed. I was once confident in my job now I’m second guessing if I did thing correct or forgot something. I have been diagnosed with fibromyalgia, Piriformis syndrome Type two diabetes which was under control until the pain started. DDD in my through out my spine and migraines asthma high blood pressure and a host of others. The medications I take for fibro are Paxil Gabapentine and tramadol tiznadine. I’m finding myself still waking up from pain to the point of no relief or temporary four hours of relief.

  34. Kristine (Krissy) at 8:44 am

    NOTE: If you are new to this, when you open the CDC comment section you can click on the dockets and read the things published prior. This will give you more insight into what’s going on.