Pain Leaders Circulating a Letter to Convince Oregon Health Officials Against Forced Opioid Taper

Pain Leaders Circulating a Letter to Convince Oregon Health Officials Against Forced Opioid Taper

The following email and connected letter is from Dr. Sean Mackey one of the nation’s leading pain physicians, urging fellow pain leaders to sign a letter opposing Oregon’s proposal to force taper patients who use opioids to treat conditions of back, spine and neck and with fibromyalgia. The deadline is two days away so they are hoping to get doctors, nurses, and advocates to sign on the link below.

Solutions are urgently needed to address the dual chronic pain and prescription opioid crises in the United States and across the globe. However, within the context of medical care, one crisis cannot be solved without considering the other. Unfortunately, this nuance is often ignored, with pain and opioid prescribing being legislated at a frightening pace. Some of the legislation is overly reactionary, leading to severe policy measures that lack evidence and often impose harsh unintended consequences to vulnerable patients.

A current example is the State of Oregon’s proposed rule to forcibly taper select patients on Medicaid, a health care program assisting low-income individuals, to zero opioids. This policy is moving forward, despite grassroots and collaborative efforts of clinicians and people with pain, all of whom formed a rapid response to oppose these proposals. Oregon officials also received international attention from media and human rights organizations. Through that collaborative effort, Oregon abandoned their original plan to taper all Medicaid patients on opioids. However, the revised plan is now singling out two pain conditions (conditions of the back, spine, and neck, and fibromyalgia) for forced, non-consensual tapering. And there are no clear plans or resources on how they intend to accomplish this. Other states are watching these efforts. Precedence established in Oregon can readily be expanded to other states.

We believe that a unified response could gain traction at this critical time.

I have drafted a letter addressing this critical issue, and hope you will consider adding your name. I intend to circulate to national pain societies, medical groups, and advocacy organization to request their endorsement.

If you are a leader of such an organization, I recognize the limits you might be operating within, so please consider adding your name as an individual endorsement.

We need all voices heard. Forced, non-consensual opioid tapering to zero is a human rights issue.

Please do not edit the letter; send me comments if you wish. Simply add your name and professional affiliation, and it will automatically save. I will need your response by March 8th, 2019 in order to submit to the Oregon Heath Evidence and Review Commission by their deadline.

Link to letter: https://office365stanford-my.sharepoint.com/:f:/g/personal/smackey_stanford_edu/Eqh9QkEAs95Gjlrsh7kGNJYBSI7iHScFpP8dDzWAtkMpuw?e=KVUlV4

Feel free to forward.

If you live in Oregon and are not a pain professional, you are invited to comment here.

https://docs.google.com/document/d/16YxFVAgWwCXzFf6lUR4XqGjB6Wz-eVd5R8RfKMG-Qe4/edit?fbclid=IwAR2Eiun3xjp9JKCXFAdZrumKBYUbf0Zll-jDG0lU36unRALhzDPv_ciCInU

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Authored by: Ed Coghlan

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Cindy

Sean, I just read your article. I would like to sign but there are many documents on the page. I’m not sure which one to open. I didn’t want to mess with your stuff.

Molly K Canfield

There will be no class action lawsuits. I’ve already contacted an attorney’s office. These (suits) cannot be brought against the federal government. The attorney related that it would have to be a private individual or private company (making a profit) for us to be able to litigate against. By the way, this particular attorney told me he got calls like mine all day long! Going to check out Judicial Watch.

KIMBERLY D SMITH

Hi. I’m not in Oregon. I’m in Fl. I used to be an RN. I had a simple posterior l5-s1 fusion and somehow my core was damaged from the operating table or a bar I was laying on while my surgeon took bone graft and fused my back. What’s happening to care of chronic pain patients out of fear caused by the Misinturrpation of the CDC and the reactions of the DEA is hurting the chronic pain patients. I too have had my meds cut. I have tried all kinds of non pill therapies . I no longer have quality of life. Its been taken away out of fear. I did not choose this pain. I’d much rather have kept my career and been able to carry a child. These things were lost!! I don’t crave pills, nor take advantage of my drs.at this point I wish I had any other disease!!! The stigma that comes from saying you have chronic pain is horrible!!! There is not way to measure someone’s pain. It’s subjective!!! You can’t judge a book by it’s cover, but myself, I have been wrongfully judged more than 1x. It’s the worst feeling in the world!!! Kim

Marilyn Durham

This is horrifying! I wish I had seen this last month, dont know how I missed it. I was a resident of oregon until October 2018. Imoved to washington and was blindsided by forced rapid tapering, against my will, off pain meds I have been on for 10 years, I have been approved for SSDisability in Oregon because of my chronic spine and fibromyalgia related pain; not something that is usually granted by Social security (back pain). I was sent to “pain management” which is a joke, they just force people off opioids with no supportive, alternate treatment except steroid shots, somewhere down the line I guess because in 6 months time, I have received no other relief for the whole body , damaged nerve and related pain I suffer. I am filing a complaint against these clinics and am hoping to find people to join me to file a class action lawsuit against these so called pain management clinics. I have been in a nightmare of pain since November when I ran out of my existing Oregon prescription. I hope Oregon doesn’t do what Washington did to people. I have turned to chinese medicine, being lucky to have found 2 wonderful, professional women who treat whole body with chinese herbal medicine and acupuncture, including cancer patients suffering from forced withdrawals resulting from forced tapers. I fight every month using information from the Washington state medical board and other opioid laws, etc., easily found but seemingly unread or ignored by the doctors in this state who are like scared little children, afraid to prescribe or “uncomfortable ” doing so. Good luck Oregon!

Naomi

I broke my back at 17 ive had 4 back fusions since then, i had multiple other surgerys over the years, and i live in HELLISH CHRONIC PAIN, all those injections, shots, physical therpry, etc dont work ive tryed it all many many times and yes all it is , is all the drs “TORTURE ING me/us!! Now how long can they actually get away with THAT is my question? And ive had 50/100 mris since age 17 and that cant be good for my body , my kidneys, my brain, and i should be GLOWING by now i feel thats another form of there TORTURE . I just wanted to say ive been Harrased, by dshs, my drs, rns, pharmacy techs and everyone almost at my clinic because i SPOKE OUT ON HERE AND TOLD MY STORY. WELL WHY DONT THEY TRY LIVING IN CHRONIC PAIN, IT HURTS LIKE HELL. !!!! YOU KNOW I DIDNT ASK TO BREAK MY BACK WHEN I WAS 17. I DIDNT ASK TO LIVE IN CHRONIC PAIN. I JUST ASK FOR A DAM DR THAT HAS SOME COMPASSION OR IS THAT ACTUALLY TO MUCH TO ASK FOR THESE DAYS!??? CHRONIC PAIN SUCKZZZ!!!

Melissa Melendy

The distinction between addicts and pain management patients needs to be addressed. What we are now having to endure should be considered cruel and unusual punishment. Do our rights not matter anymore? No they do not!!! Maybe the people who are making these decisions on our lives should have to endure some of what we live with each and every day then I promise they would have a different opinion. What about those of us who were taking our medicine as prescribed and were not showing any signs of drug abuse in no way. Do our rights and voices not matter anymore? We demand to have a voice and maybe we should all bring up a court case against these establishments for inflicting cruel and unusual punishment. Maybe then they would listen!

Voakley

A violation of our Civil Rights! The government thinking they are saving people’s lives, but they are saving us to DEATH. The food s and death administration, the DEAd, cdc, and all who is getting away with this madness truly has got to stop. To many entities with the same adgenda is kill all Americans. People are in extreme amounts of pain, humanity growing larger every day. They will also become injured at work or unfortunately born with debilitating circumstances and this is how our future generations are going to be caged by a non functional system.

Gone

I was able to get only about a third of the medication that I was once prescribed! Forced tapering is not just in one state but it is in all states! The DEA has our doctors so afraid that they are tapering us faster then we can possibly go! Suicidal and Baker acted .. that is what I now know!
[edit] … I remind my family to fight for other if I am gone.
Today is that day!

Mamanrs 140

When I worked in the ER, we had a box of index cards labeled “DSB”, for “drug-seeking behavior”. The cards had patients’ names and dates of their visits, meds given on them. There’s no doubt in my mind that some of these patients were genuinely in pain, but we had several folks who went ER to ER looking for drugs in all the wrong places, raising suspicion for real patients.
I have had fibromyalgia for 22 years (a condition I was immediately suspicious of when diagnosed). My back is a mess from 35 years of lifting, pushing, and pulling patients and beds. I had to retire. I know the stigma of a chronic pain patient, and feel like apologizing all the time.

Jody Hoffman

Has no one paid attention to the bills passed that has set aside millions of dollars for addicts to go to drug rehab? Medicaid will pay 100% of your treatment bill. If they force you to taper off the pain meds how many are going to seek drug assisted treatment? They will be an out patient and will have to attend group & one on one counseling and Suboxone for months and months and Medicaid picks up the bill. If we can do some research I bet that our elected officials are invested in drug treatment centers. It’s all about getting rich and screwing the public

forced tapering sounds like a torture device. chronic intractible pain is torture. You cannot do anything, can’t walk, stand, work. If you want the suicide rate to increase, forced tapering is a way to decrease the population on medicaid or food stamps by force increase pain. Suicide of this population would be a good way to taper government spending so the rich can avoid tax increases.

Naomi

LET ME START OFF BY SAYING I BROKE MY BACK AT 17 IVE HAD 4 BACK FUSIONS, A REALLY BAD SLEEVE GASTRONOMY SURGERY THAT MY STAPLES HURT DAILEY IN MY STOMACH, I HAD CERVICAL CANCER IN 2011 HAD A FULL HYSTROMTOMY I HURT DAILY STILL FROM THAT, IVE HAD BOTH KNEE SURGERYS, RT ROTER CUFF SURGERY THAT HURTS DAILEY STILL, RT SHOULDER BIOPSEY SURGERY, IVE HAD A JAW SURGERY FROM MY EX MANY YEARS AGO, U HAVE ARTHRITIS, FIBROMYALGIA, AND MY RT HIP POPS OUT OF SOCKET BY ITS SELF I HAD A MRI 2 WEEKS AGO AND THEY SAID ITS FROM ALL MY BACK HARDWARE AND THEY ALSO SAY ALL MY PAIN IS FROM MY BACK HARDWARE, IVE HAD TONS OF CORSTINE SHOTS, AND EVERY INJECTION THESE DRS CAN THINK OF AND IT JUST NAKES MY PAIN WORSE NOT BETTER! SO DONT LET THESE DRS FOOL ANYONE WHEN THEY SAY OF WE HAVE A FIX TO THESE PAIN /OPIDS PROBLEM THE INJECTIONS BECAUSE THEY DONT WORK, MEDICARE WONT PAY FOR ANY OF THEM , I HAVE A HUGE BILL NOW FROM ALL THEM INJECTIONS. AND ANOTHER THING IVE BEEN ON PAIN MEDS BASICLY MY WHOLE LIFE NOW AND FOR ANY DR TO TRY TO TAKE ME OFF I SEE BASICLY ,THERE IS NO WAY TOO. IM ALREADY SUEING 4 DRS FOR HOW THEY TREATIBG ME LIKE SHIT AND GETTING READY TO SUE THIS ONE IM WITH NOW. IF THINGS DONT GET ANY BETTER! I THINK THE DEA MAYBE THEY SHOULD GO TO SCHOOL TO ACTUALLY WRITE PRECPTIONS BEFORE MAKEING ANY JUDGEMENTS ON THE PEOPLE THAT ACTUALLY NEED THEM! ALL THIS IS GONNA DO IS HAVE A HUGE INCREASE OF PEOPLE IN PAIN THAT CANT TAKE THE PAIN ANY LONGER TO COMMIT SUCCIDE AND THEN WHO IS THAT GONNA BE ON THE DEA TO SUE BY OUR FAMILY MEMBERS OR THE CDC? JUST SAYING! PERSONALLY IM TIRED OF NOT HAVEING A QUALITY OF LIFE ANYMORE DUE TO MY INCOMPETENCE DRS AND CDC AND DEA! TIRED OF BEING IN CHRONIC PAIN IT SUCKS! (I FOUND OUT FROM A ATTORNEY 2 DAYS AGO THAT ” FORCEING ANYONE THAT CAN PROVE CHRONIC PAIN IN CALLED ” TORTORE” TO THE PATIENTS, AND ALSO ITS IN “HUMAN TO OUR RIGHTS! SO LIKE I DID I HIRED A ATTORNEY TO SUE YET MY DR. IM TIRED OF BEING TREATED LIKE [edit], AND DISRESPECTED!

Donna

I have been on pain meds for the past 20 years from nerve damage in my back and right leg that was caused during a surgery that left me with loseing 70% of my bladder and in pain everyday of my life. I also have Fibromyalgia, SLS Lupus, and Rheumatoid Arthritis. I honestly believe that the Dr. know which patients need their pain meds, but the Goverment is riding them about doing their job where they are suppose to do no harm.. All of us that have to have this med just so we can breath for another day can’t handle this pain that is so unbearable. There is going to be a lot of people taking their own life’s. The people that has never done any street drugs in their whole life, its like (OUR GOVERMENT OUR COUNTY IS PUTTING A GUN TO OUR HEADS AND I HOPE THEY ALL CAN LIVE WITH THAT BECAUSE THAT IS EXACTLY WHAT IS HAPPENING.)

Misti

It is outright discrimination against poor people now I know that in the USA there is an agenda by the Gov. to make the weakest poor a budget cut because this ORG. board will be the test sample for other states … many suicides and money saving deaths that the media will never report on

Please send your stories to Judicial Watch a group of lawyers that goes after Gov and politicians that over reach their powers !!!!
they must of all went to school to be medical doctors , this should anger doctors not just the people suffering Medical Marijuina will not work for everyone

Kristy

The studies that long-term pain medication are not effective for fibromyalgia and other chronic pain conditions and that over-the-counter are just as good, have lost their minds and these have to be false studies . I live it everyday I tried all , other medication out there it did not work ,I suffered I have now been on Ultram for 20 years. This concerns me immensely if my meds were completely stopped I would no longer be able to work as a nurse they have already been cut in half which makes it difficult. As a medical professional, personally what is happening in our world is beyond words to me. I pray like others a lawyer will pick this up and there be a class action suit and some way to stop the insanity ,so many people needlessly suffering. It is crazy to expect someone to undergo a surgical procedure unless that is what they choose ,over taking their medication. I don’t understand how to sign the petition for Oregon tomorrow is the last day. What truly is concerning me is that there is a class action suit against the big pharms for making opioids . I’m so worried would have a negative and detrimental effect they are comparing it to the tobacco industry years ago there is no comparison. Being in the medical field I can’t even imagine as a nurse not being able to medicate my patient that I am watching suffering. We were taught in nursing school you must listen to your patient and what they’re telling you in regards to their pain. Somehow it has been forgotten that it is not the governments pain. It is the individuals experiencing it. Again leading a productive full life speaks volumes. I am truly worried this is a genocide. Please forgive my grammar and spelling I don’t feel well enough today to correct. My love thoughts and prayers are with all in this crazy Web of lies being told to us. This law in Oregon must be stopped.

LEAH B

How come one can legally die with dignity in Oregon when they are terminal but pain patients can’t live with dignity?! And why are the politicians so concerned about helping drug addicts use clean needles and get clean with medication assisted therapy but chronic pain patients are dropped by doctors, insurance and pharmacy’s forcing them into withdrawal and debilitating pain from quitting cold turkey? When did the disabled become second class citizens while drug addicts are coddled? It’s a messed up world we’re living in. If my dog has serious arthritis and required pain medication, I could be charged with animal cruelty if I just stopped giving them the meds but I’m supposed to be okay with the government and corporations treating me worse than a dog?!

Tess

This is insanity!! And how can this be legal at all to say one group of low income patients are not allowed to have pain control? This is prejudicial and against constitution yet no human rights attorneys or civil are willing to get this in a court? I just don’t understand how America can allow our most sickest and most vulnerable population to be targeted like this? There is no more doctor patients relationship it’s gone.All pain patients power of what they put in and on their bodies have been taken away.And doctors are supposedly in fear instead of sticking together and fighting they are making it easier for government to take all power away from patients.Its so bad now that panic attacks happen when appointments come or even making a phone call to doctor office. Every appointment we have to be battle ready to defend pain meds after decades of stability and no issues. Everything is now a fight fmla,flares, hormones. Any reason a doctor can use to say u have to stop pain meds they use it.And patients are going to be honest with docs when they will be forced on disability? No u hide new symptoms or don’t bother calling because as a pain patient u know they hate dealing with u , u can feel it and see it by making everything as difficult as they can. Yet never having any of these issues before CDC guidelines , so what does that tell u.

By the way I traveled to Salem Oregon for the meeting but it does not matter because this is going to happen everywhere. After a year of tapering like I said I may as well have no medincine. I am just as dead. Thank to all that fight on.

I went to the meeting where one of us got five minutes to speak and also a md spoke in favor of us for five more. These people are insane and want a full on genocide of the sick. They sre serious and mean to kill every last one of us. On a personal note I have been lowered past what I can stand and my doc just matter of factly says well there is nothing we can do despite 20 years of records and proof of nueropathy. No point in going back for 2 eeeks of meds that have to last 4. Does anyone have any last ideas to help?

Denise Morris

These are excellent remarks about a deplorable situation. There is nothing else I could add, except applause to those who write – a difficult activity both in terms of mental focus and physical effort, for the chronic pain community, whose experience is not comparable to your sore muscles after a gym workout or horse riding event – things we can no longer even consider doing. My hope is that, while the majority are not able to participate in activism, but some do write comments on this site – might these comments be archived and presented in some capacity to the very lawmakers who have no business practicing medicine in the first place (particularly what I would call in this instance, “death-sentence medicine.”

Niese Cramphorn

I am a 30 year chronic pain patient. My “pain specialist” has cut my medication by more than half. Please stop this barbaric order. I am no longer able to do much for myself and my life is nothing more than pain day in and day out. Your goal was to stop suicides and street drugs but your are doing the opposite. I have considered suicide and soon need to do it to stop the pain that my husband and family suffer by this. You are not only hurting me but my entire family.

Niese Cramphorn

As a 30 year Chronic pain patient this forced taper has made what was left of my life a living hell. My doctor has not only tapered my dosage he has cut it so severely that I know longer am able to much of anything for myself. Please stop this barbaric order that is taking lives. If the purpose was to stop suicide and street drug use you are doing just the opposite. I have considered suicide to stop the pain and yes even drugs off the street. I have never done it but I have thought about it.

Debbie Nickels Heck, MD

This is an OUTSTANDING document eloquently explaining the complete STUPIDITY of the policymakers of Oregon. I definitely wish to add my name to it, HOWEVER I feel woefully undereducated on HOW to add my name to it. I downloaded the document but don’t understand how to add my name to the bottom. Having treated hundreds of pain patients based on their individual needs since I was a 3rd year med student & understanding their unique management needs, I believe those who made policies in Oregon are CERTIFIED IDIOTS! Unfortunately, regarding how to add my name to this outstanding letter, I most humbly admit I’m CLUELESS and need assistance in doing so in order to help the good people of Oregon to regain their rights to proper pain treatment by the good doctors there dedicated to treating them but are currently denied the right to do so. (Should all else fail, I could ask my 8 and 10 yr old grandsons this evening as payback for all the blankets I knitted and toys I repaired over the years. They EVENTUALLY need to return the favors somehow!)

William Buzard

this is my first time on this site. I’m so tired of this pain game. Started over a decade ago with a reasonable doctor that said I need to manage my pain. Here in Idaho there are two major medical providers one doesn’t do pain management at all anymore which I’ve never been apart of that one. The one I am part of was where this particular doctor worked. After a couple of years I stood there like a man and told him I was needing to take an extra one a day maybe tolerance. Back then I thought I could stand there and say something like that. That doctor told me that he can no longer prescribed pain meds to me and literally walk out of the room. he left that major medical provider here in Idaho to start his own practice. So I stayed with this same doctor’s office and the doctor I’ve been seeing for the last decade arrived at the same conclusion. That is that I needed to be on pain management. the first doctor I spoke of by doing what he did cost me a job of 10 years! My current doctor has been just fine what is out on medical leave. The stand-in doctor has made me come in every week stuck me with a 3in needle in my knee and made matters worse and wants to play hide the ball with the pain meds. Now he’s ordering MRIS x-rays anything else that cost more money than I have I’m playing hide the ball again with the pain meds. this whole pain management has been 15 years in the making and works. Now this standing doctor is making me realize the whole nightmare again and probably will lose my new job. he’s standing in for my regular doctor that I’ve seen for 10 years! He says he doesn’t believe in medicine. My experiences my doctors beliefs and knowing me mean nothing. It sure seems like open your wallet and suffer. I’m just subject to political opinion and money. I’m lost. I can see the same nightmare happening to me again and it’s just playing out. I wish there was legal recourse but medical lawyers are only looking for someone who had the wrong leg cut off!

ELM

How can non-Oregon residents and non- healthcare professionals help? Let us know!

What in the world is the thought process behind targeting individuals with specific, painful diseases and removing their medication?

How does this benefit the patients care?

Thank you Everyone!

ElizabethR

I agree with Jeannette M. and others who are living with long term debilitating neck and back pain. Once again, I am trying physical therapy, but the therapist (perhaps in his late 20s) commented that my condition is largely age related (I’m 82), which is generally another way of saying, “Don’t expect to feel much better”. I already know that. Possibly there can be some improvement, however, which is why I’m doing it. Still, if my state government decides to forcibly taper my already-low dosage of a mild opiate, what remains of my functionality and quality of life will take a humongous hit.

I’m not a healthcare professional and do not live in Oregon, but I sent a message a few months ago anyway. IMO, we need a high profile media or political personality to take on the issue of long term, incurable pain from the viewpoint of those who suffer. There has been plenty of not-always-accurate publicity around the other side of the coin (misuse/OD). Perhaps then our very real pain, which afflicts millions of ordinary Americans who have NOT misused medication, would receive the serious attention and remediation it deserves.

marilyn r johnson

I am tired of this being referred to as a prescription opiate crisis. It is a heroin, illicit drug crisis. Chronic pain patients are not causing this, nor have they ever. It is a lie to lump us in with this. What prescription drug user was linked to the crack epidemic of a few decades ago. This is a power grab by the powers that be plain & simple.

Naomi

LET ME START OFF BY SAYING I BROKE MY BACK AT 17 IVE HAD 4 BACK FUSIONS, A REALLY BAD SLEEVE GASTRONOMY SURGERY THAT MY STAPLES HURT DAILEY IN MY STOMACH, I HAD CERVICAL CANCER IN 2011 HAD A FULL HYSTROMTOMY I HURT DAILY STILL FROM THAT, IVE HAD BOTH KNEE SURGERYS, RT ROTER CUFF SURGERY THAT HURTS DAILEY STILL, RT SHOULDER BIOPSEY SURGERY, IVE HAD A JAW SURGERY FROM MY EX MANY YEARS AGO, U HAVE ARTHRITIS, FIBROMYALGIA, AND MY RT HIP POPS OUT OF SOCKET BY ITS SELF I HAD A MRI 2 WEEKS AGO AND THEY SAID ITS FROM ALL MY BACK HARDWARE AND THEY ALSO SAY ALL MY PAIN IS FROM MY BACK HARDWARE, IVE HAD TONS OF CORSTINE SHOTS, AND EVERY INJECTION THESE DRS CAN THINK OF AND IT JUST NAKES MY PAIN WORSE NOT BETTER! SO DONT LET THESE DRS FOOL ANYONE WHEN THEY SAY OF WE HAVE A FIX TO THESE PAIN /OPIDS PROBLEM THE INJECTIONS BECAUSE THEY DONT WORK, MEDICARE WONT PAY FOR ANY OF THEM , I HAVE A HUGE BILL NOW FROM ALL THEM INJECTIONS. AND ANOTHER THING IVE BEEN ON PAIN MEDS BASICLY MY WHOLE LIFE NOW AND FOR ANY DR TO TRY TO TAKE ME OFF I SEE BASICLY ,THERE IS NO WAY TOO. IM ALREADY SUEING 4 DRS FOR HOW THEY TREATIBG ME LIKE SHIT AND GETTING READY TO SUE THIS ONE IM WITH NOW. IF THINGS DONT GET ANY BETTER! I THINK THE DEA MAYBE THEY SHOULD GO TO SCHOOL TO ACTUALLY WRITE PRECPTIONS BEFORE MAKEING ANY JUDGEMENTS ON THE PEOPLE THAT ACTUALLY NEED THEM! ALL THIS IS GONNA DO IS HAVE A HUGE INCREASE OF PEOPLE IN PAIN THAT CANT TAKE THE PAIN ANY LONGER TO COMMIT SUCCIDE AND THEN WHO IS THAT GONNA BE ON THE DEA TO SUE BY OUR FAMILY MEMBERS OR THE CDC? JUST SAYING! PERSONALLY IM TIRED OF NOT HAVEING A QUALITY OF LIFE ANYMORE DUE TO MY INCOMPETENCE DRS AND CDC AND DEA! TIRED OF BEING IN CHRONIC PAIN IT SUCKS! ( I ALSO TALKED TO A ATTORENY YESTERDAY AND HER EXPLAINED TO ME THAT ANY DR KEEP ANY MEDS FROM ANY PERSON IN “CHRONIC PAIN” IS ACTUALLY A FORM OF “TORTURE” AND THAT IS A LAWSUIT, SO THAT WOULD APPLY TO TAKEING ALL OR TAPERING TO ZERO MEDS IF UR IN CHRONIC PAIN. SO IM LAYWERING UP !

Vivian Bynum

I have chronic pain in my neck and spine after 16 years of meat wrapping, with repetitive movement, falling on concrete, lifting heavy boxes stacked to close to lift smart. I inhailed toxic fumes every few seconds while wrapping. I had lung cancer and 12 radiation treatments involving my spine, this was the allowed limit so they changed lead plates to redirect the radiation. I am a 17 year survivor but live with constant pain worsened by using my arms. I live alone and am already limited to 30 Hydrocodone tablets a month. They help about 4 hours and make moving bearable. I have regular drug testing, have always passed. I am 83, and live in Oregon.

Rich Reifsnyder

Hello Again, Alan Thurman you are right on the Money.This Government wants 50-100 million of Intractable Pain Patients and Wounded Veterans to Get Pain Relief at the Local Addiction Centers.People In this country would be surprised how many Congresspeople,Senators have big investments in Addiction Centers,Addiction Medication And Pharmaceuticals including Kolondy! This Fairy Tale Opiod Epedemic was And is the result of people OD and Dying from Heroin and Pills Laced With Fentynal not from Responsible Pain Patients taking Opiod Medication Responsibly And Jumping through every Hoop to have A Pain Free Quality Of Life!! Wait till the investigations,you will see the Lies,Fraud,Self Interest,Unscientific Data published by bought off Top Doctors In Well Known Respected Medical Journals.The walls will soon be closing them in,And I hope it’s Jail Bars!!

Rich Reifsnyder

Hi, I was force tapered from 160mg/day to 60mg/day or 63%,oxycodone.One Pills takes the severe pain away for 3 hours so half the day I suffer over this BS.I don’t want to tell the NP about my pain because of being Fired or called a Drug Seeker.I had 3 failed surgeries,6 inch SS Rods and Bolts in lower back,severe nerve damage,chronic pain syndrome,degeneration of spine etc.What gets me all CPP,S at this clinic get the same dosage as me 60 mg/day or 15mg/every 6 hours.I got hurt at work in 1998 and all was fine till 2016.I would never have thought my country would torture millions of us Intractable Pain Patients and Wounded Veterans and Cater to Heroin Addicts With Safe Havens,Free Needles And Narcan.Why are we abandoned and tortured over addicts misbehaving and abusing drugs then they are taken care of while we are kicked to the curb.I pray that all these people who did this to us are prosecuted for homicide and crimes against humanity.God Bless All,(Of Us)

Diana

I live in Georgia and as the result of bungled surgery I am left with damaged nerves and I could not live without pain medication. These politicians have something more in their sites than “helping” people get off opioids. I don’t know what but I am yet to see too many political figures who do anything to help people. There is big money in this somewhere.

Martha

I am not a physician, nor do I live in Oregon. However, the ‘Taper Tsunami’ has hit the East Coast. The media STILL refuses to acknowledge or seperate the fact that MOST of the problem is from ILLEGAL drug use, or abuse. It is not coming from responsible CP patients.
Secondly, most pain clinics follow the Mayo Clinic drug recommendations. They know that the Mayo Clinic “protocol” is only effective for about 50% of patients. Not good enough, by far. Further, there is research that Opoid pain relievers are more effective for females than for males! Somehow these facts never make it to the news, let alone Congress, FAD, etc.
Thank you all – who fight for those who can not fight for themselves.

Heather

Thank you for everyone who is voicing their opposition to these barbaric and arbitrary actions. I am a pain patient in PA and if the restrictions were applied widely, i would be impacted.

You are working to save lives. Thank you.

Oregon Health officals are cheap politically correct bullies, they will cause these people to commit suicide. Their death is on Oregon’s health officials hands. I don’t know how these officials sleep at night. If any of these people commit suicide due to these regulations leave a note behind naming every one of these officials and plus send one before you do it mail it to every news station . Medicaid / intractable pain issues people have a tough enough life .they do not deserve to be mistreated. What would Jesus do? Not what Oregon Health officials are doing. What if officials plans happen to backfire on them and bite them in the rear. They can’t see it now but it can happen 1 car wreck, one fall in the end up losing their job. Boom they’re low income & in chronic pain and they can think back when they make that crappy plan they now I have to live with it them selves. There in denial thinking it won’t happen to them. Guess what every one in intractable pain never thought this would be their life either. Who in their right mind would want or chose to hurt every day of their life ! Plus barly enough money to get by. Might as well live in a third world country. This is no longer great America, its becoming communist.

Jeannette mastenbrook

Various symptoms occur when dealing with severe neck and spine pain. I suffer from severe degenerative disc disease. Often the pain is felt in many other areas. Just because this disability isn’t seen physically with the eye does not mean that the pain is not real. All of us need to speak out . All chronic pain patients who suffer need to speak out and be heard.

Nickie Royse

All I read were letters with links. No instructions. No petition to sign. No explanation. Give me some kind of direction and I will be more than happy to engage. I care very much about this issue. I live with chronic pain every single day and I live in Oregon. Do a little bit better than this people. Seriously. Our lives are complicated enough and a little simplicity would be welcome here. I sign online petitions regularly. This is not how they work at all. If you want the letters forwarded then format them accordingly. Thank you.
Nickie Royse
dingbat2122@gmail.com
(and don’t let the name fool you)

Jeannette mastenbrook

Many in the state of michigan have also been tapered on medication. This is very much a concern .

Charles Swann

The forced tapering of dosages of opioids for fibro, spine, hip, and or joint pain is just as bad as if you forced tapering off of insulin in a diabetic. Pain in the above patients that have chronic pain does not stop because you tell it to. Removing therapeutic levels of pain medication is as cruel as breaking one finger on a person’s hand at a time till all are broken. The pain never stops but by tapering medications off you eventually feel it all completely all the time.

Chronic pain as described above never heals never goes away. By forced tapering of meds, you risk the quite likely deaths by suicide of patients that can. No longer tolerate their pain or the debilitating effects upon their lives.

Removal of therapeutic pain medication disables patients making many unable to do simple tasks such as cookie g or normal cleaning and or even moving comfortably about their own home. It degrades their quality of life to the point they question the worth of continued living.

Alan thurman

It’s utterly ridiculous that in 2019 health care patients can not get their medication. It’s utterly ridiculous that we have to beg for pain medication to work or have a normal life. It’s all About money. Combining death numbers from an illegal street drug heroine and a prescribed pain medication say Vicodin and printing that report stating 75k people last year died from opioids, that’s misleading and just like any other policy on any other drug the USA government is going the wrong way at a100 mikes an hour, creating more problems then originally created by people who got themselves addicted. Medicaid patients across the USA are being singled out and their prescriptions re being taken away across the board why? Pressure to lower the number of pills prescribed, where would any logical pain doctor start with lowering his pills prescribed, from the people who make him tge keast amount of mo ey and who take up double his time thru reports and hoops! So, Oregon its coming it has been goi g on in Illinois for two years. Let me say this, I have noticed that right next door to the pain clinic we now have addiction specialist (owned by the same company that helped you with part of your pain u til they performed all of the procedure and therapy classes they could. Now all of a sudden you need addiction classes(that have 6%) success rate. Why should these addiction places care? Aren’t they paid to fix people? NO, just to try paid well! So pain clinics remind me of a stock car race where the doctor is changing his hat from one sponsor to the next. I have more reports coming to you soon. One is called. Look who is stealing your medication now.