Parental Support

Parental Support

Most people know that school districts are legally required to provide certain protections and adaptations for students with medical or other special needs. What happens, however, when it’s the parent who needs the help?

According to the National Council of Disability, some 4.1 million Americans with disabilities are parents. This means 1 in 10 children have a disabled parent.

Officially, doing whatever needs to be done in order to get children to school and take care of their related needs is solely a parent’s responsibility. But having worked in a school system for the last 12 years, I know that staff are usually willing to do whatever they can to accommodate a parent experiencing a legit hardship, regardless of what it may be, if at all possible. After all, the parent’s pain or other medical issues also impacts the student in a variety of ways.

Joanna Mechlinski

For example, most districts only provide bussing to students living beyond a minimum distance from their schools. This is because the cost of transportation is very expensive, one of the biggest costs faced by a school district in today’s world. But I have spent the last 8 years in student transportation, so I know that if there is a seat available on a bus, there is generally no problem with having a student who is technically not eligible use it. After all, the bus is already on the road. And if the students are told to walk to the nearest actual bus stop, the driver doesn’t even have to go out of his or her way, adding extra time to the route. No one wants a child to miss school unnecessarily, simply because of parental hardship.

That said, if the parent doesn’t come forward and let us know, we have no idea the family needs help.

If it isn’t possible to provide busing, then we advise the parent to reach out to the school’s social worker. That individual may be able to connect them with another parent in their neighborhood, who can either give their child a ride or accompany them on the walk to school. Many communities around the world have encouraged families to take part in a “walking school bus,” which is literally just what it sounds like. A group of students and adults walk the route the school, picking up members at designated points along the way. This way, families know their children are safe coming to and from school.

If there’s a parent-teacher conference scheduled at school and chronic pain is rearing its ugly head, ask your child’s teacher if it’s possible to chat via phone or video. Many times, it is. Some teachers are even amenable to visiting the parent at home instead. But if for some reason your physical presence is required and you can’t drive or don’t have a vehicle, ask if you can accompany your child on the school bus that day. For safety and practical reasons, this is something that school staff tend to approve sparingly. But when approached by a parent who has a true hardship, yet needs to do something at their child’s school, staff almost always agree to provide the parent with a one-day bus pass.

There’s that old saying about how it takes a village to raise a child, and many people within school communities will band together to do just that for a child in need, be it financial, physical or emotional. Yet at the same time, 21st century life in the U.S. often puts an emphasis on independence, so people who need help may feel embarrassed or even stigmatized. Admitting that you need others’ help can be truly scary for many. But once you take that step, you may be surprised by how much support those around you are willing to offer.

Subscribe to our blog via email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Authored by: Joanna Mechlinski

Joanna Mechlinski is a former newspaper reporter who now works in education. She is a chronic pain sufferer who lives in Connecticut and is a frequent contributor to the National Pain Report. You can follow her on twitter @castlesburning.

4
Leave a Reply

2000
4 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
4 Comment authors
  Subscribe  
newest oldest
Notify of

You want to be very careful with this one. If life were only like the author described. The people I’ve met, professional and not are very judgmental. You tell a school system very much and you’ll find yourself dealing with the Department of Children Services. I even have neighbors that have only known me a few months that are more than happy to destroy parts of my garden and then tell me,” Well I thought I was doing you a favor, I didn’t think you could take care of it.” The school system I deal with knows nothing of my pain and treats me with anything but respect. I can just imagine what they would do if they knew the rest of the story. They would have a field day! Sometimes it’s best just to do what you can, call on a “good friend” if you have one and leave the rest to the Good Lord above!

Michelle

My child is Autistic and has had a very unfortunate time receiving what he is legally entitled to and each day that goes by makes me more angry that he was emotionaly and educationally abused by some of his special needs “support team” . I was forced to spend thousands to get an attorney and hired advocate to pair up to tackle the injustice . It took a few years to get the smallest changes accomplished all the while my health was declining and my employment suffered . It was the worst moments of my life because they made life much worse on us and targeted me because they knew my health was poor. I physically developed additional medical problems and want so badly to move past this but the injustice was so great and there was proof but I could not afford to even recoup my legal financial fees . My son suffered from regression and now approx 5 years later has just now progressed to comprehension to what really happened and is having trouble emotionally with the past abuse. I had to stop working due to my health and I’ve never recovered from the Fibromyalgia (induced by stress) and don’t even think it’s possible to recover from it, now that the biggest stressors have past. Please report things higher up in writing if anyone else reads this who has even a remote relevance to my story. I pray that no one else has a story like mine I hope that each person has a helpful school district.

Gary Raymond

I know a parent who needs serious help. Dr. Robert Redfield, CDC.

Virginia

This is something I’ve not known about, and I think this information should be given out to all parents in the form of letters sent home with the student, or mailed home via USPS. It is hard enough for me as a single senior, I can’t even imagine the difficulty it must be for a young mother (especially a single mother), trying to raise a child and who is suffering a chronic disease with intractable pain. Thank you for this, Joanna.