By Ed Coghlan.
“There is a huge unmet need when it comes to chronic pain for all people but it is even greater with our kids who have pain.”
With those words, US Pain Foundation President Paul Gileno announced a new program his organization is launching called Pediatric Pain Warriors.
The first major event will be a weekend retreat for kids and families Nov. 9 through 11 at the Coronado Springs Resort in Disney World. The weekend will include a Take Control of Your Pain daylong seminar about pain, support group sessions, and fun activities.
Gileno said that other US Pain programs will be expanded to include pediatric editions.
“Pediatric Pain Warriors will be a safe place for kids and their families to be supported, connected and educated so they know they are not alone,” added Gileno.
The issue of identifying and treating pediatric pain is nettlesome.
One reason is expertise.
“There are too few training programs and too few pediatric pain specialists,” Dr. Elliot Krane, FAAP, Professor of Anesthesiology, Perioperative and Pain Medicine (Pediatric Anesthesia) at the Stanford University Medical Center and of Pediatrics at the Lucile Salter Packard Children’s Hospital.
In this 2016 study, it is reported that pediatric chronic pain is a significant problem with conservative estimates that at least one if five children is impacted. Although the majority of children reporting chronic pain are not greatly disabled by it, about 3% of pediatric chronic pain patients require intensive rehabilitation.
For the weekend at Disney, Gileno said U.S. Pain is able to offer a limited number of scholarships to attend this weekend, which will cover two hotel nights, some meals, and a portion of transportation costs. If you are interested in a scholarship, you can reach the Foundation by emailing firstname.lastname@example.org.
If you have a child or know of one suffering from chronic pain, please share those experiences in our commentary section.