Pediatric Pain Program Announced by US Pain Foundation

Pediatric Pain Program Announced by US Pain Foundation

By Ed Coghlan.

“There is a huge unmet need when it comes to chronic pain for all people but it is even greater with our kids who have pain.”

With those words, US Pain Foundation President Paul Gileno announced a new program his organization is launching called Pediatric Pain Warriors.

The first major event will be a weekend retreat for kids and families Nov. 9 through 11 at the Coronado Springs Resort in Disney World. The weekend will include a Take Control of Your Pain daylong seminar about pain, support group sessions, and fun activities.  

Gileno said that other US Pain programs will be expanded to include pediatric editions.

“Pediatric Pain Warriors will be a safe place for kids and their families to be supported, connected and educated so they know they are not alone,” added Gileno.

The issue of identifying and treating pediatric pain is nettlesome.

One reason is expertise.

“There are too few training programs and too few pediatric pain specialists,” Dr. Elliot Krane, FAAP, Professor of Anesthesiology, Perioperative and Pain Medicine (Pediatric Anesthesia) at the Stanford University Medical Center and of Pediatrics at the Lucile Salter Packard Children’s Hospital.

In this 2016 study, it is reported that pediatric chronic pain is a significant problem with conservative estimates that at least one if five children is impacted.  Although the majority of children reporting chronic pain are not greatly disabled by it, about 3% of pediatric chronic pain patients require intensive rehabilitation.

For the weekend at Disney, Gileno said U.S. Pain is able to offer a limited number of scholarships to attend this weekend, which will cover two hotel nights, some meals, and a portion of transportation costs. If you are interested in a scholarship, you can reach the Foundation by emailing  pediatricpainwarrior@uspainfoundation.org.

If you have a child or know of one suffering from chronic pain, please share those experiences in our commentary section.

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Authored by: Ed Coghlan

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7 Comments on "Pediatric Pain Program Announced by US Pain Foundation"

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When your child suffers from a chronic pain condition there is pain associated on every level … Physically and emotionally for everyone. It puts u in a state of PTSD. It’s frustrating because it’s near impossible to find the medical support one needs. It robs your child of a so called Normal life. Family and friends find it hard to understand.
And yet we must only persevere.
It’s heartbreaking 💔💔.
It robs you financially, physically, spiritually……I pray that we can find more support, more healthier affordable treatments in this world 🙏🏻🙏🏻🙏🏻

Pain, incurable pain from sickness or injury has no age limit participation. As a parent, my wife and I have had to make decisions that involve medications with alternative treatment for our childs pain managment. OF COURSE we attempted every alternative treatment including, in my opinioin, very dangerous medications which were acknowledged by the manufacturer to arrive at the desired result of helping our child not suffer 24 hours a day and night. At 9 years old our youngest son was diagnosed with a pain generating disease. We had to make hard choices but, the end result wished for was less intensive pain for him. He is now 35 years old and along with still, dangerous medications he has to use some amount of opioid medication. He has a family, he still works, he has done well. I am not afraid of the opioid medications as much as I am with possible bad side effects of one of the VERY expensive medications (non opioid) that he still uses. He did not ask for his disease at 9 years old. Absolutely research and study must be undertaken to find either cures or at the very least symptom managment which for him in relentless pain and I am sure medical science will continue to make advances for children that suffer with pain but, what about. right now. A day….in the life of a child or an adult that is not getting effective relief from pain managment issues is another miserable day. I did not choose to use illcit, deadly substances to manage my lifetime back pain issues. I CHOSE to be treated with responsible pain management, prescribed by my doctor. I did not choose to “leave this world” and my cares with drugs, illcit drugs. I personally hurt no one with my documented use of opioid medication for 23 years. The end result of a unilateral prescribing policy for opioid medications to patients with positive results, no harm, in excess of 100 milligrams of “morphine equivalent” have done nothing short of giving me 23 years of a better life. Able to work and remain self sufficient and self providing is not only necessary to me and my family, it gives me purpose. NO ONE outside of my doctor, my wife, my close friends ever even knew I was using an effective dosage of opioid medication for decades as I continued to own and operate my self started business. I never diverted my medication, I never abused my mdication as proved through decades of “pill counting” amd double urine screen tests. Death is now more welcome than another day of ineffective pain managment.

I started using multiple sclerosis (MS) herbal remedy i purchased from (REDACTED) January this year. I only used it for a month and two weeks, my condition changed automatically, all my symptoms are gone. Remaining positive have helped me during this treatment. Now am living MS FREE.
Hope this will help somebody, remember, do your own research and make your own decisions based on information you have received and digested. Thanks to (REDACTED) for their amazing work. Forever Grateful!

It is an absolute need that is often overlooked. Great work work.

Some good news in the pain world. Thank you.

Thank goodness. I work with a program for students who are too ill to attend school, this is a problem with some of them. Hope this helps these children.

Thank God for this man!!! It’s bad enough that our veterans and the rest of us have to SUFFER but when it comes to CHILDREN NEEDLESSLY SUFFERING just because the CDC MADE A MISTAKE and the GOVERNMENT JUST PLAIN GOT IT WRONG AND APPARENTLY FOR NOW SEEM TO WANT TO LEAVE IT THAT WAY … that’s a WHOLE OTHER STORY in my book!!!! I’ve really not stopped to think about children that are in pain, I’m embarrassed but I’ve not. The same rules that apply to us apply to them. For once, I’m just speechless…. and right now that’s A VERY GOOD THING.
Ms. Terri James
Chronic Pain Warrior