By Ed Coghlan
The National Pain Report summary on Saturday’s Rally Against Pain in Washington D.C. sparked a lot of reader reaction. Here are some highlights:
The failure of the federal government to take an interest in the pain rally- is proof positive that they are too far removed from the millions who suffer from pain. In this regard, they made a huge mistake to underestimate that the millions of Americans in pain will be passive and silent about the governments immoral indifference to their pain. We will no longer allow government to treat as serfs without rights. We will fight back and win. We can no longer tolerate their inhumanity and their B.Sc.
We will need to get louder and more active to call for real change, new government programs and leadership that will recognize the right to pain relief. We need to call, for the removal of deadbeats in DHHS who served the interests of their organizations or professions without regard to the lives and wellbeing of people in pain We need to call for better political representation in the FDA, CDC, DEA, NIH. And as a new President will soon be in office- we need to do this as soon as the election is over. We cannot afford to miss this opportunity to ask the next President for real progress for people in pain.
A huge thank you to the organizers, speakers and all those that could overcome so many obstacles to attend! We, as chronic pain patients, know the depth of what it takes to do all you did! Starting from just getting out of bed! Thank you! Thank you! Thank you! Your efforts have begun a snowballing effect!
I do appreciate all your efforts in going to D.C. I just hope they now know that we are serious and we are not going away until this mistake is corrected. I’m not sure what the solution is, I just know that what they have done isn’t the right one.
I also have never once gotten a high off from the medications I was given. I’ve been off pain medication since January and cannot seem to find anyone that will help treat me for my conditions. It has been the most unproductive year since I was diagnosed back in 2000. I hate having to say I need pain pills to function but I do. Not knowing where to turn is humbling. My life has been turned upside down once again.
I do think this article could have been better written. The author directed this article to an audience who is aware of the movement that’s been gaining momentum and totally missed the mark of spreading the word to those who have are uninformed.
He should have written this article as if audience had no prior knowledge of the group Rally Against Pain (RAP). If any group has what it takes to change the hostile environment chronic pain patients suffer its RAP, organized by the ever-vigilant hard working advocate Lana Kirby.
Mark Ibsen, M.D.
I am touched, Moved and Inspired By this start. Is this the step that begins a journey of thousands of people? Time will tell. What IS certain: We are “mad as hell, and we’re not going to take it anymore”. We know that we CAN present our case in a powerful way that engages others in conversations that lead to solutions. The first step in solving a problem is becoming aware of it…