Reader Reaction to Rally Against Pain – It’s a Start

Reader Reaction to Rally Against Pain – It’s a Start

By Ed Coghlan

The National Pain Report summary on Saturday’s Rally Against Pain in Washington D.C. sparked a lot of reader reaction. Here are some highlights:

David Becker:

The failure of the federal government to take an interest in the pain rally- is proof positive that they are too far removed from the millions who suffer from pain. In this regard, they made a huge mistake to underestimate that the millions of Americans in pain will be passive and silent about the governments immoral indifference to their pain. We will no longer allow government to treat as serfs without rights. We will fight back and win. We can no longer tolerate their inhumanity and their B.Sc.

We will need to get louder and more active to call for real change, new government programs and leadership that will recognize the right to pain relief. We need to call, for the removal of deadbeats in DHHS who served the interests of their organizations or professions without regard to the lives and wellbeing of people in pain We need to call for better political representation in the FDA, CDC, DEA, NIH. And as a new President will soon be in office- we need to do this as soon as the election is over. We cannot afford to miss this opportunity to ask the next President for real progress for people in pain.

Sheri Kay

A huge thank you to the organizers, speakers and all those that could overcome so many obstacles to attend! We, as chronic pain patients, know the depth of what it takes to do all you did! Starting from just getting out of bed! Thank you! Thank you! Thank you! Your efforts have begun a snowballing effect!

Joan Snow

I do appreciate all your efforts in going to D.C. I just hope they now know that we are serious and we are not going away until this mistake is corrected. I’m not sure what the solution is, I just know that what they have done isn’t the right one.

I also have never once gotten a high off from the medications I was given. I’ve been off pain medication since January and cannot seem to find anyone that will help treat me for my conditions. It has been the most unproductive year since I was diagnosed back in 2000. I hate having to say I need pain pills to function but I do. Not knowing where to turn is humbling. My life has been turned upside down once again.

Dustin Parker

I do think this article could have been better written. The author directed this article to an audience who is aware of the movement that’s been gaining momentum and totally missed the mark of spreading the word to those who have are uninformed.

He should have written this article as if audience had no prior knowledge of the group Rally Against Pain (RAP). If any group has what it takes to change the hostile environment chronic pain patients suffer its RAP, organized by the ever-vigilant hard working advocate Lana Kirby.

Mark Ibsen, M.D.

I am touched, Moved and Inspired By this start. Is this the step that begins a journey of thousands of people? Time will tell. What IS certain: We are “mad as hell, and we’re not going to take it anymore”. We know that we CAN present our case in a powerful way that engages others in conversations that lead to solutions. The first step in solving a problem is becoming aware of it…

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Authored by: Ed Coghlan

There are 12 comments for this article
  1. Mathew at 12:01 pm

    Tim,
    It is reassuring to know that not all Phyicians have become puppets to our dictatorial government. On my last visit to my PCP, he told me if it was up to him, he would not have any problem maintaining my pain medication.

    We can only hope that our new President will be sympathetic to millions of chronic pain voters. I could see a possible sympathetic change if Dr. Price is confirmed as HHS Secretary. We can at least hope.

  2. Renee Mace at 11:05 am

    I will sign anything to do with the CDC Guidelines and how they ruined my life

  3. Tracy at 8:44 am

    I am in for a class action lawsuit suit. Sssssooooo many people will be hurt by this insane move it is too big to even swallow.

  4. Sheryl M Donnell at 6:42 am

    I think we are making a start but let’s keep our momentum going. We need a class action lawsuit to get this to stop. Against the AMA and the financial corporations who are setting up for profit substance abuse futures since 2012. These futures (look at Bain Financial) have given reason for lobbyists to do this to everyone of us. They got the CDC to change their methodology for reporting thus changing stable numbers into an epidemic. The CDC itself admits the prescribed patient deaths didn’t change but it still insisted on this modern day witch hunt. Follow the money!

  5. Judy Jaeger at 9:16 pm

    I watched ALL the videos of ALL the speeches at the Pain Rally…..I was very proud of everyone who spoke….
    as to the government NOT taking an interest, Congress was NOT in session at the time of the rally, our next rally needs be done when Congress is in session, and organizers of the rally need to notify the media of what’s going on…..we can’t expect the media to just show up without any notice.
    This event was a good start….but we’ve got a long way to go….we need to stick together….we need to make our voices heard. Our human right to “life, liberty, and the pursuit of happiness” are being ignored……some of us have been living with untreated or under treated chronic pain management for years, even decades…..one rally isn’t going to change much, but it’s a start…..and we have to keep trying.

  6. dave at 6:59 am

    The rally might be a start. But the future is up to the many who care about people in pain and who are people in pain to keep the torch burning. Social movements require unity, numbers and commitment. I make mention of that based on Charles Tillys books on social movements which i have read recently as he is often quoted when references are made to social movements.
    As people in pain largely outnumber people who control pain care and those who control pain care arent prepared for a social movement- its just a matter of unity numbers and commitment. We have seen the Kratom supporters unite in numbers of at least 150000 and with their commitment and lightning fast speed overturn a DEAs decision. We have much greater numbers then they have.
    Governments and the health care industrys performance on pain care is piss poor. They failed to engage people in pain at the planning stages of research and policy and in practices of pain care people in pain are treated more or less as animals for dctors cant fathom a person in pain having enough knowledge or decisionmaking capacity to have an opinion worth considering-not to mention most of them are right wingers that have trouble with people who think differently then them. And isnt it the most rude of awakenings when doctors become patients-and dont they make for the worst patients!
    Governments performance on pain care is also poor because they are uncaring and prefer to defer to medical professionals. Medical professionals take advantage of this arrangement and continue old prejudices about pain and deride and mistreat peple in pain and their pain. Pain care is a house of cards ready t be tippld and rebuilt from the foundation up by people in pain.
    If the vast majority of people in pain will contribute a small amount of their time or money each year in some united effort toward changing pain care it can and will happen If they assume others will do it for them-then i believe this start from rallyagainst pain may soon end. Its not that those directly involved in the rally wont continue making an effort- our efforts will be weighed and measured by the powers that be and seen as not being a real threat to them. Only with numbers unity and commitment can a movement be threatening enought t get the powers that be to change. So it is up to readers of NPR and PNN and the millions of people in pain to wrk together -even with the smallest of efforts to change pain care. I know we can change pain care if enough of us work together. I will pray that happens very soon and let us keep hope alive for a much better future for all people in pain.

  7. Tim Mason at 7:30 pm

    If you are old enough it can be called “Elder Abuse”. I am lucky to have a great Pain Management Doctor. I get the occasional injection and recently he said he had someone give him one. He said he needed to know what they feel like. He got someone to give him a knee injection as well. Next he is going to try a lumbar injection. He spent an additional 5 years or so studying pain, pain patients etc.
    I wish everyone could find a good pain physician.

  8. scott michaels at 9:21 am

    media media media
    I hope someone video recordered the rally and any interviwews.and the send it to every network.
    OBVIOUSLY HILLARY IS BACKING THIS. IN HER 2ND DEBATE SHE SAID”THE V.A. IS HANDING OUT OPIOIDS BY THE BAG TO PATIENTS” WE ALL KNOW THIS IS A BIG LIE.
    I WILL NOT VOTE FOR HER JUST FOR THAT 1 SINGLE COMMENT”
    A VOTE FOR TRUMP GIVES US GOOD CHANCE THAT HE WILL KEEP GOVT OUT OF THE EQUATION AND HAND IT BACK TO THE DOCTOR WITH OUT THE FEAR OF THE DEA. THIS ALL STARTED FROM OBAMAS IGNORANCE AND WILL ONLY GET WORSE, JUST LOOK AT WASHINGTON STATE. NOW KAISER IS DOING THE SAME. 90MG EQ. THEY ARE NOT SWAYING. SO I WILL EITHER LEAVE KAISER AND MAKE SURE I CAN FIND A PAIN DOCTOR THAT WILL CONTINUE TO MEDICATE ME OR BECOME AN ILLEGAL DRUG USER. I AM READY TO SEND MY WIFE AND SON TO DOCTORS AND FAKE IT. TIS WHOLE THING IS LUDICROUS, INHUMANE, TORTUROUS AND I HOPE THERE IS A LAWYER THAT FINDS THIS ALL ILLEGAL.

  9. Tracie Carlson at 7:44 am

    Thank you, thank you! I’m in to much pain and flaring to bad. to write. I’m a autoimmune arthritis awareness advocate and with the list of illnesses I have, my whole body is flaring. I have had to take a break from my volunteer duties because the stress of fighting for the right medications, treated like a drug addict. IFAA has been fighting for changes in step therapy, and many more medical needs. We don’t look sick, so it takes us years of suffering before we get diagnosed , then we have to fight Insurance companies for the right meds, now we’re fighting for our pain meds. Sound familiar anyone? The International Foundation for autoimmune arthritis. I Advocate for all pain suffers, all autoimmune suffering. I’m thrilled to see all the nonprofit organizations joining together for our rights! ! http://www.IFAutoimmuneArthritis.org