By Suzanne Stewart.
Many people ask me about the US Pain Foundation. They ask me “what does the US Pain Foundation do? What are they doing to help with the Opioid crisis?” I thought I’d explain what they are doing and what kinds of things that I do, as an Ambassador for US Pain.
The US Pain Foundation does not seek notoriety—it works on making sure the pain community is aware of options they have in order to live better lives. If you visit USPainfoundation.org; you’ll see a myriad of resources to help.
I’d really like to inform you of some of the different projects that are going on within this non-profit organization–which is the largest patient advocacy group.
The US Pain Foundation is being very proactive for patients during this time of unrest and uncertainty. They have devised a plan for patients. This plan can be printed out and used by patients during an emergent situation; such as being dropped from their pain physician or if they feel desperate and/or suicidal. Here’s more on that.
There has been a lot of discussion (much of it on the National Pain Report) about more people speaking with Congress and state officials and making the case for better care for the chronic pain community.
US Pain is one of 31 patient & professional organizations/groups that have submitted a letter to Congress. In December 2017, these groups sent a letter urging Congress not to repeal the Ensuring Patient Access & Effective Drug Enforcement Of 2016. If it is repealed, this would hurt protections for chronic pain patients. This law would stop the DEA from limiting controlled substance pain medication distribution in a transparent way; also lacking due process and/or safety!
The entire move to repeal was ignited by the “60 Minutes”story”EX-DEA agent: Opioid Crisis-fueled by Drug Industry and Congress”, which was on TV in October 2017. The persons at US Pain, who deal with many of these kinds of issues, are: Shaina Smith, the Director of state Advocacy & Alliance Development, and Cindy Steinberg, the National Director of state Advocacy.
“Legitimate patients with chronic pain are being forgotten,” said Paul Gileno president and founder of the US pain foundation. “The disease of addiction is taking over the disease of pain and everyone is forgetting about the Pain Patient.”
US Pain also has designed a new app called “Ouchie”, where you can keep a log of your pain journey.
US Pain’s Ellen Smith is helping with another alternative to Opioids, which is medical cannabis. Ellen is a Board Member and she does webinars and teaches people about the correct use of medical marijuana. She and her husband were featured recently on National Pain Report.
I really urge you to check into the US Pain Foundation website. We have Awareness programs, Educational programs, Support programs and fundraising programs. You are welcome to always ask me anything, but please know that the US Pain Foundation is there for all of us!
(These views are my own & not necessarily the views of the US Pain Foundation)
Suzanne has lived with a Systemic CRPS & several other chronic pain illnesses since a MVA in 2002. Prior to being disabled from chronic pain, she was an Interpreter for the Deaf at a hospital & worked with Deaf children. Since 2005, Suzanne’s been a patient Health advocate, support group leader & Mentor. She continues doing these things today, but also does public speaking, awareness events and she’s a Writer/blogger & an Ambassador for the U.S. Pain Foundation. The statements and opinions that she provides are her own and should not be taken as the stance, position or viewpoint of the U.S. Pain Foundation. For entertainment she creates advocacy videos & uplifting ASL cover song videos on You tube and she writes in her own blog Tears Of Truth. You can follow her here: TearsofTruth.com