US PAIN FOUNDATION ASKS PATIENTS; “WHAT SHOULD WE BE WORKING ON?”

US PAIN FOUNDATION ASKS PATIENTS; “WHAT SHOULD WE BE WORKING ON?”

The nation’s leading consumer pain organization is asking pain patients about the issues facing them.

“We are going to use the results to help develop our best course of action and to prioritize which states we are going to work to make change,” said Paul Gileno, Founder/President of the US Pain Foundation.

To take the survey, click here.

Gileno said the main purpose of the survey is to help people realize that there are issues that affect the quality of life of people with pain.

“We want people to be aware that their stories matter and finally we want people to realize that together we can make change in each state for better quality of care and access to needed treatments and medications,” Gileno told the National Pain Report.

The U.S. Pain Foundation understands the challenges and struggles those with pain endure. An organization created by people with pain for people with pain, we recognize and validate the 100 million Americans who courageously battle pain every day.

“The biggest challenge as always is going to be validating that pain is real and not having access to needed treatments, therapies and medications,” said Gileno.

On its website, the U.S. Pain Foundation supports the 4 Core Beliefs from the National Pain Strategy which will be released early in 2016.

  1. Chronic pain is a real and complex disease that may exist by itself or be linked with other medical conditions.
  2. Chronic pain is both an under-recognized and under-resourced public health crisis with devastating personal and economic impact.
  3. Effective chronic pain care requires access to a wide range of treatment options, including biomedical, behavioral health and complementary treatment.
  4. Denying appropriate care to people with chronic pain is unethical and can lead to unnecessary suffering, depression, disability and even suicide.

The US Pain Foundation is a partner with the National Pain Report. To learn more about the US Pain Foundation, visit their website.

Subscribe to our blog via email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Authored by: Ed Coghlan

There are 9 comments for this article
  1. John S at 6:56 pm

    Educate the PUBLIC – Teach them opiates have a place in society when used properly.

    Teach them Chrinic Psin patients have s legitimate need for the drugs.

    When I see on the internet a petition to ban OxyContin followed by comments like ; this drug is the devil and has no place in medicine. I know that lots of people have no idea of the good it does for pain patients and acute / post op pain.

    I get the feeling the term /.Pain Killer / is in need of a change. We aren’t trying to kill the pain just lessen the severity.

    The PUBLIC needs to hear the TRUTH about pain medicine and learn the difference between a drug addict and a pain patient that depends on pain meds to dress and bathe.

    Thanks,

    John S

  2. Sharon Dunbar at 12:21 pm

    Not all people on pain pills are addicts! We don’t all abuse our meds. Taking them away from those who really need them just to function, get out of bed, and LIVE will only increase suicides and getting street drugs that are illegal rather than legal meds from doctors!!!

  3. Sharon at 4:52 am

    Since these new guidelines I’ve had my pain mess cut considerably. I have been made to feel like a loser, drug seeker and criminal. It would be one thing if they had another option to help with my pain but the things they want to do seem to take time. Meanwhile I guess I’m supposed to suffer. I feel like I have no rights and mentally I feel so defeated. We need to not be punished because of the heroine addicts. I have no say in how they take my mess away or what I should or can take. We chronic pain patients need help getting our rights to fair medical treatment back. These people making these rules evidently do not have to live with chronic pain. I believe living in more pain is going to lead to a lot of suicides.

  4. John S at 3:26 pm

    I watched a TV show today called ” Grass ” and it was basically the old Reefer Madness ploy,

    The bottom line is: back in the 50’s and 60’s the government provided proof that smoking Grass leads to Heroin addiction. They had all the numbers and evidence to make their point. It was all Bull [edit] and lies and the public bought the lie.

  5. raz at 12:54 pm

    I listened to the cdc discussing the proposed new uh, guidelines, with a short time for people to call inwith their opinions. Seems to me that the callers were pretty much one sided, did not hear too much from pain patients but drs and parents who had lost a family member due to their abuse, not use of opiates. Would like to know how these callers were chosen. Why werent there more patients input rather than abusers of opiates and drs that benefit from rehabbing addicts? They pay more attention to them than people who benefit from opiates/opioids? Why dont the over 100 million people in chronic pain count, and the benefits of medicine that helps them function. I havent yet seen the results of this uh, meeting, but, no doubt believe the cdc will make the rules based on opinions and statistics that are made to keep allowing them to decide what we should or shouldnt put in our bodies and how drs are told to treat us. Let the drs not be swayed into thinking what and how we be treated without fear of reprecussions.

  6. Hallie at 11:01 am

    I am so angry & upset about the draft CDC guidelines… I think that & President Obama’s DEA/opiate abuse campaign needs to be the absolute top priorities for the U.S. Pain Foundation. Honestly I feel that the CDC has broken the law, and I also feel they are allowing for the PROP members associated with addiction rehab to potentially receive MILLIONS in profits if these guidelines go into effect. This group is engaging in lobbying under the guise of “patient protection” practices for opiate guidelines, they should be investigated for conflict of interest & exposed as the horrible fringe fanatics they are.

  7. Scott michaels at 7:24 am

    at this point, the powers that be should move on to other issues. this overkill solution is doing more harm then good.
    since pill mills are all but history, quack doctors are too scared or already just moved on and the drug abusers found it too difficult and too expensive to get pain medication along with the biggest fact of all, Jeroin is super cheap and super pure. drug addicts and abusers have no desire for pain meds. Only the people that actually need the medication, those in chronic pain.
    the right wingers are showing stats from 2010, they are lying, in articles and to the cdc and dea. they believe their is major problem. they are the problem.
    now that there is so much heroin available, the dea should concentrate their efforts on keeping it out of the country. With everything going on in the world, new deseases, strands of flu, threats of twrrorism theu airborn deseases. thats where the taxpayers money needs to be. with the money theyre spending, maybe put it towards killing cancer. Lastly the Groups like PROP AND PEOPLE LIKE BALLENTYNE AND SULLIVAN SHOULD ALL CRAWL BACK UNDER THE ROCK THEY CAME FROM. maybe they could attack children. theyre all playing with ipads these days.even though theyre smarter then ever. im sure they could go after apple for ipad addiction and how they will ruin our kids playtime life style. it will drive them to imac, compuer engineering and then what.
    if i am just dreaming, thhe solution is to rally, thousands of us on the capital steps or the CDC. THEY MUST SEE HOW MANY OF US ARE BEING AFFECTED BY THIS OVERKILL MENTALITY.

  8. John S at 12:02 am

    Thanks Ed, I did take the survey and hope to hear from them soon. Its nice to know that there are people out there that care and want to help – I hope.

    Thanks again,

    John S