By Ed Coghlan.
America’s largest and most influential chronic pain patient organization is the U.S. Pain Foundation.
U.S. Pain, which is under new executive direction, wants to make sure that it is effectively supporting and advocating for the chronic pain community. In order to do that, U.S. Pain needs to know more about the people it serves.
The interim CEO for US Pain is Nicole Hemmenway, who has been fighting her own chronic pain issues for much of her life. She is an author, a motivational speaker and a chronic pain advocate. To learn more about Nicole, read here.
As a result, US Pain has released a survey that will not only collect valuable data from the chronic pain community but is designed to create information that will help the organization (and others) better serve patients and their loved ones on their pain journey.
It’s a 20 plus-question survey that can allow US Pain to better guide respondents and their loves ones on their pain journey. The questions cover types of pain condition, pain severity, treatment options, and more. It should take 5-10 minutes to complete.
US Pain, which has been leading the fight to incorporate the reflections of the chronic pain community into federal and state data, will share the results of the survey via the newsletter in the coming months and share those same results with the National Pain Report and our audience.
To fill out the survey, please click here to send your comments to the US Pain Foundation.
As Ms. Hemmenway has shared with US Pain audience and others that follow her journey:
“On my quest for answers, I have seen and done it all. I have visited the most renowned medical institutions and saw specialist after specialist. I have tried many conventional and unconventional treatment programs. I have screamed in frustration and have cried out in pain. I have been there. I understand the torment. But I also know miracles happen. I should be dead and yet somehow I survived.”
She’s not alone.
Speak your mind and let the world know what the chronic pain community looks, sounds and feels like!