By Ed Coghlan.
The National Pain Report has done a number of stories recently that have received numerous comments from people complaining about the federal (and in some cases their state) government. The reaction is that recent policies that have been adopted do not have the patient in mind.
This story, published on April 25, set off a firestorm of commentary from chronic patients and providers.
We’ve been talking with Terri Lewis Ph.D. about trying to create a survey from that story that could capture objective and subjective data from you.
She’s done just that, with the goal of having your input inform the FDA as the agency determines where to place the focus on alternatives and new drug development. They are holding a hearing on July 9.
The survey will be live until June 17th to give Dr. Lewis time to tabulate and submit to the FDA by the June 25th deadline.
FDA is challenged with determining how to balance the need to ensure continued access to persons who rely on opioids for continuous pain relief while addressing the ongoing concerns about safe use, abuse and misuse. Many of you will not be able to attend this so we are taking your voices to Washington DC with us. You can register to attend or view this hearing.
For Lewis, this survey will not only help let the FDA know what chronic pain patients, their loved ones and their providers are experiencing in 2018, but also will help her develop some data about individual states. Her initial focus is on the July 9th hearing.
“This survey is designed to create some patient focused due diligence on chronic pain that our government simply needs to see,” she said.
The National Pain Report is happy to partner in this effort and will share some of the objective results in the coming weeks as people begin to fill out the survey.