What Is Your State Doing About Pain?

What Is Your State Doing About Pain?

The Federation of State Medical Boards is meeting in Fort Worth, Texas this weekend—and the “opioid” crisis is on the agenda.

“The State Medical Boards must lead the effort on regulation of the opioid crisis. The DEA and other federal agencies must work with the Medical Boards to avoid confusion with physicians legitimately taking care of their patients.”

Sherif Zaafran, MD, tweeted out his comments made as the Federation meeting got underway.

Dr. Zaafran is the head of the Texas Medical Board and a member of the HHS Pain Management Best Practices Inter-Agency Task Force and a very important voice

Saturday, he will also moderate a discussion of nationally recognized leaders who will “discuss new steps in the effort to address the nation’s opioid crisis. Included on that panel is Vanila M. Singh, MD, MACM, who is the chair of the Pain Management Task Force that calls for patient-centered approach to improve treatment of pain.

That Task Force Draft Report received some 6,000 public comments and the HHS group will gather again in May to adopt it.

“The action is at the state level,” said Terri Lewis, Ph.D. “Pain patients and physicians need to ask their state medical boards, what are you doing now?”

Just this month, two federal agencies eased some previous guidance on opioid prescribing.

The Centers for Disease Control and Prevention said many physicians have misapplied the 2016 guideline that resulted in a serious reduction on opioid prescribing.  The CDC tacitly acknowledged many physicians’ responses to the opioid crisis went too far.

Earlier this month, the FDA issued a safety announcement that it said “identifies harm reported from sudden discontinuation of opioid pain medicines and requires label changes to guide prescribers on gradual, individualized tapering.”

These agencies have been receiving blowback—and plenty of it—from medical professionals who believe that the reaction to the “opioid crisis” tilted dangerously toward those who become addicted from opioids versus the million of chronic pain patients who were adversely affected by the physicians, insurers and state regulators reaction.

Here’s one of the National Pain Report stories on it.

The question now is what will the state medical boards do with this new information?

The answers may begin to come this weekend in Texas.

Authored by: Ed Coghlan

44
Leave a Reply

2000
44 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
36 Comment authors
  Subscribe  
newest oldest
Notify of
Ali

These guidelines are a travisty of injustice.
The information was not put in physician’s waiting rooms .
Physician’s across America we’re not ask about guidelines.
Guidelines are defined as Opoids
are only used by addicted patients, addicts, and street druggies.
Intracable chronic pain patients were profiled along with addicts
as being an addict.
Intracable chronic pain patients use Opoids to relieve pain to have a productive life, they are compliant, and follow physician’s orders.
Addicts use Opoids to live unproductive lives and when out of Opoids will seek to obtain Opoids anywhere they can.
Intracable chronic pain patients use Opoids appropriate, have productive lives, and an asset to society. They have been profiled when stopping Opoids withdrawals because they are addicted. NoNoNo withdrawal to them is profound pain, no quality of life, and unable to cope with ADL’s.
Define withdrawl of addict?
Define Irretractable chronic pain?
Define withdrawal of pt with intracable chronic pain?
The definition has been used for all who have Opoids and this is profiling and not doing duediligence to withdrawl to intracable chronic pain patients.
Proof of dependence verses need to control pain?
Proof addiction is same for both addict and patient with intracable chronic pain.
Proof opoids don’t continue to help intracable chronic pain patients long term?
Where are these studies before government agencies profiled and made guidelines that are one size fits all?

William

I had very complicated surgery on my shoulder yesterday. I was on a nerve block that wore off during the night. I have now taken almost 1/3 of the little 5mg Oxytocin pills and I am still in tears (I’m 59 and normally a stoic man). The pain is intense and my doctor said that there is little he can do thanks to the latest DEA mandates. So a patient with no pattern of any drug use is denied cheap easy to get pain meds to treat his intense operative pain and because some druggie somewhere abused the system. So I am left in the Cyrene pain and in tears for no fault of my own. For the record the DEA and your war on legal pain meds is FUCKED up. God help you if you are ever in severer paid and are denied treatment you May rethink the excruciating pain you are putting millions of America’s through to punish a few cheaters. God has a special place in Hell for masochists like you.

Kathy Coooper

My state is very secretive. They don’t give the public any information about these meetings. The state medical board in my state has been complicit, in the “War on pain patients.” The consider people with pain to be “low value” patients and refuse to set any guidelines on the marketing of Alternative medicine. Our state also has a shortage of physicians, so only people with really good resources and insurance even see a physician. Here in New Mexico,there were 2 cases of AIDS, from something called a “Vampire Facial” and the state is still allowing chiropractors and acupuncturists to do “Stem Cell Therapy” a profitable addition to their services. They remove a patients blood and the re-inject it, claiming they are stimulating stem cells. In New Mexico, physicians regularly endorse chiropractors and acupuncturists to their low value patients.

The New Mexico medical board covered for the device industry. Patients that reported medical device failures and improper operating room sales, were ignored to cover for the industry and the physicians who took money from the device industry. Physician in New Mexico are also getting around FTC regulations on marketing, by having their clinics or hospitals mislead the public with advertising. One “researcher” at the university even advertised Kinesio Tape, for a big donation. The entire marketing scheme was a fraud, but the medical board covered that up too.

Amanda Skaggs

If we put Dr. GREG HOUSE on the case it would get figured out lol…but seriously. Every one worried bout the deaths from opioid overdoses what about when CPP who been taking meds for years die from with draw because their Doctor wouldn’t write anymore scripts

Chronic Pain patient

What is Louisiana doing? I live in chronic pain everyday! It’s hard to do anything! I’m willing to do whatever I need to to get my voice heard. This so called Opidate Crisis is non sense! Those abusing opiates are also using street drugs, prescription meds, & drinking too & that’s what’s causing people to die. There is a huge difference between those who use medication to manage their pain & drug addicts who abuse their medication! Do your research the right way.
My Dr. saved my life! I’ve never failed a drug test or abuse my medications. I have a list of medical conditions that cause chronic pain. People who are disabled & live with chronic pain have the right to be treated like human beings, not animals! Dr.s are scared to treat their patients because of all this drama being caused.
My Dr. has started decreasing my meds & can’t give anxiety & pain meds at the same time. Now, my anxiety is increased, which increases my pain level too.
Are there people that live with chronic pain on these boards, organizations, CDC, etc. who are making these regulations & laws? The only way others can truly understand is if they have to live in chronic pain & walk in my shoes.
Do you know how it feels to plan on going to get groceries, then the pain is so bad that you can’t go to the store? Plan to attend your grandchildren’s event, then the pain is so bad, you can’t go? I pray that somebody hears our voices & stories & does something to change it!

Kathy Cooper

The state medical boards were part of the problem. They failed to step in assess any of this over the years. Their only purpose is to protect their industry, with no concern at all for patients. The state medial boards have been helping hospitals, and powerful industry interests to profit from this epidemic. I live in a state where to so called opiate problem, really a heroin problem, has existed since the 1990’s, yet people are still dying, and physicians are still denying care to patients who could be addicted. At the same time they continue to make money, billing medicare for ER visits by people with serious addiction or other problems.
Thanks to our corrupt medical board, and their collusion with the most profitable healthcare monopoly in the state, people are still dying. The state medical board protected advertisers ans PR people who obfuscated the problem , and used it for advertising. Our state has some of the worst health outcomes in the nation, which is really bad you compare it to other developed nations with the US at the bottom of the list. State medical boards protected the industries that profiteered form this problem.

Marsha

I’ve been thinking all along the DEA is a big factor in the CPP’s problems. They get their orders from the Attorney General, right? Whose his boss? President Donald Trump, who vowed to clean up the opioid crisis. Mr Trump, call off the dogs, please.

Another piece to this sad puzzle is the media. What do they do everyday? They look for attention grabbing headlines, human interest stories, topics worthy of Pulitzer prizes, like the country’s high on opiods, what should we do about it?

Enter elected officials. “Here’s what we will do in MY (state, county, district, city, take your pick). We’ll take away the pain meds from those junkies. They take too many, too long. Vote for me, elect me to get those opioids out of medicine cabinets.” Laws are passed based on inaccurate media reporting of guidelines, overdoses, poor research, and moral high-handedness.

Let’s don’t forget there is money to be made in alternative pain management. Acupuncture, massage, injections and spinal procedures cost lots. I’d be interested in knowing what the lobbyists are doing and who they are influencing.

What are doctors to do? The whole situation is full of confusion and misunderstanding. I believe the truth will come out one day. By then the law enforcement powers that be, the media with their promotions and prizes, the elected officials in their new positions, etc. will have done their thing. But there will still be people in pain, hurting just like now. What will the world do for them?

Gee

The CDC tacitly acknowledged many physicians’ responses to the opioid crisis went too far. Really, as a dr with DEA raiding your office, having everything you worked for taken away, and going to jail, you are again going to blame the drs. First you blame drs for overprescribing and causing an opioid, now you are going to blame us for treating PP’s wrong and misunderstanding the guide lines. Do I see anything wrong with this picture? Put the blame where it belongs, in the governments lap. Ten minutes worth of research will prove the statement blaming the drs wrong.

Researcher

PAULA FRAZIER I keep saying it, but no one listens. It’s common sense, not rocket science. As long as Drs are being punished, or threatened with losing their licenses, nothing will change.
In fact, if something isn’t put in place to PROTECT DRS from the DEA, etc. Nothing will change.
Find another way, nothing will change. ” The slow death of compassion for CPP’s” by Ken McKim YT and Dr. FORREST TENNANT, who made a video about REFUSING to quit prescribing or even cut back.
1 mo later his offices & home were raided by the CDC. No, the FDA. No…..remind me who raids even the most respected Dr in the country’s home & offices again?

Researcher

What is my state doing about pain?
Me me me! I know!!! Killing people!!! Georgia.

Researcher

The CDC has no power to discipline Drs. The DEA does. The DEA has cut back on the amount of opoids allowed to be produced in the US.
If every person who needed pain managment got it at the proper level today….they couldn’t because there would be a shortage. In 2014 I went to 10 pharmacies who said they were out. One pharmacist told me they hadn’t had that medication in 3 months. The 10th pharmacy gave me a partial & told me to come back for the rest, which chain pharmacies claim is illegal. They say if you get a partial refill, you forfeit the remainder.
All I see is words. The DEA knows what it’s been doing, yet I saw them lying on TV saying they have nothing to do with pharmacy’s.
Really? Who closes a pharmacy for filling “too many opioids”? Uhm, that would be the DEA. Who gets their orders from ?????

LEAH B

Last week I had to raise holy hell with the local police to get into my elderly, blind, hard of hearing neighbor’s condo. They found her barely conscious on the floor unable to move. She tried to overdose and as she approached her computer to write a suicide note, the meds kicked in sooner than she expected and she fell, hit her head and face, and knocked her phone out of reach on her way to the floor. She’d been on the floor for almost 48 hours. Paramedics said another 12 hours and she wouldn’t have survived.

My neighbor has several chronic pain issues. After her GP cut her off pain meds she turned to medical marijuana. She would only use once a day, a couple times a week because she couldn’t afford more than that, especially once marijuana was legalized in our state for recreational use and a huge tax added to make money for the government. Then her eye doctor told her he wouldn’t treat her if she continued to use pot. Since her eyes are the biggest source of pain, she gave up the pot so she could maintain her precious eye drops. I wish I could punch her eye doctor in the face. She’s on Medicare so she doesn’t have the ability to just go to another doctor like I can on private insurance. I used to have a key to her home but she recently found out a former contractor also had a key so she just changed her locks and we hadn’t gotten a new spare made yet. We’ve bonded over chronic health issues and playing the “no, you’re worse off than me” game. She lives alone, her closest relatives are a 5 hour flight away and her close friends are blind or disabled in some form. And she can no longer afford in-home help and is having to depend on the generosity of her former housekeeper and personal shopper to volunteer once a week. Last week they both cancelled.

She has been utterly abandoned by her caregivers, personal and medical because of the trickle effect of the opioid crisis. This has to change before we lose more.

Jane A Gallup

Ive been undertreated for almost a year. Im now housebound due to taking 75% of my medications I was on for 8 years. Same dose and doctor. I now have big BP spikes , my hair is falling out and the pain I am in is horrible on a good day. I do hope we are not going to have to wait too much longer!! Please let our doctors treat us without fear!!

Lisa Hess

THE DOCTORS HAVE STOPPED OR DECREASED OPIOID PRESCRIBING OR HAVE CLOSED THEIR OFFICES IN FEAR OF THE DEA BECAUSE THE DEA TOOK THE CDC GUIDELINES OUT OF CONTEXT AND RAN FULL SPEED AHEAD WITH IT. NEVER POSSIBLY THINKING THAT IT IS STREET DRUGS CAUSING THIS EPIDEMIC AND NOT OUR PRESCRIBERS. THE DEA IS THE AGENCY THAT HAS ALL THE DOCTORS RUNNING SCARED WHICH HAS CAUSED THE MISERY TO THEIR OWN PATIENTS TO AVOID AN UNANNOUNCED RAID OF THEIR OFFICES, HOMES, ARESTS AND FREEZE ALL MONETARY ASSETS WHICH PUTS DOCTOR’S OFFICE STAFF WITHOUT A JOB OR KEEP A JOB WITH NO PAY DUE TO FROZEN BANK ACCOUNTS. DOCTORS ARE BEING SUED. DOCTORS ARE BEING KILLED. PATIENTS HAVE BEEN SUFFERING IMMENSELY AND EVENTUALLY MANY HAVE BEEN COMMITTING SUICIDE DUE TO THE RESULTS OF AN OVERZEALOUS AMOUNT OF GOVERNMENT AGENCIES RELEASING FALSE INFORMATION TO THE PUBLIC AND CHRONIC PATIENTS AND THIER PAIN MANAGEMENT DOCTORS ARE THE INNOCENT PARTIES IN ALL ACTIONS THAT HAVE OCCURRED SINCE 2016 AND ARE STILL OCCURRING THROUGHOUT THIS COUNTRY. I’VE BEEN CUT ALMOST BY 200% ON MY MEDS WHICH HAS KEPT ME MOSTLY IN BED FOR THE PAST 6 MONTHS. EVEN LAWYERS ARE AFRIAD TO GO AGAINST ANY OF THESE AGENCIES ON BEHALF OF PATIENTS AND THEIR FAMILIES FOR WHAT THE GOVERNMENT HAS DONE TO OUR DOCTORS, OURSELVES AND OUR FAMILIES. THIS IS A DEFINITE FAILURE TO UPHOLD THE RIGHTS OF THE DISABLED IN THE AMERICANS WITH DISABILITIES ACT.

Terri James

With the DEA “constantly” attacking our physicians not to mention getting a large sum of money for doing so; just what are they suppose to do? They HAD “to follow suit”. The majority of physicians’ that did stand amongst their patients were reprimanded, losing their livelihoods as most of us have due to our government playing doctor without a license. My physician is far from stupid although unlike many, he is a caring and compassionate human being with a heart who continues to help me what little he can and is allowed. I saw two doctors who were in pain management, both of them flat-out said, “Due to the opioid crisis; our hands are tied!” To answer your question, no one in the state of Tennessee’s government is doing anything but going full force with this injustice. I’ve written and called, for what it was worth.
Mr.Robert Rose if you’ll remember is one of our veterans who served this country for eleven years. He asked for only eleven minutes to speak his mind as to what their “crisis” was doing to the veterans as well as the rest of us. The man was denied over and over until someone with some authority saw one of his articles, he was finally granted his eleven minutes. Eleven minutes for the eleven years he served this forsaken country of ours. He would later take this “crisis of theirs” and “injustice towards us” to the courts in Greeneville Tennessee. Our representative, “Dr.” Phil Roe didn’t even have the courtesy let alone the fortitude to show up and fight for what he believed in. I received a letter from him stating that he was going full force with the opioid crisis. The man did send me a reply, the others couldn’t even do that.

April Dawn;
You could start by checking out the Washington C-50 pain advocacy Fb page (https://www.facebook.com/groups/WASHPAG/), Washington DPP ( https://www.facebook.com/groups/125490741596250/), ATIP (https://www.facebook.com/ATIPUSA/), or try a search on Fb or google for state pain advocacy groups. Some of the state groups are outstanding; I’ve met some amazing folk thru the Oregon page(s) who are incredibly knowledgeable, hard-working, & understanding. There’s a number of pain groups on Fb –probably too many, actually– but you can find considerable support & info.

Speaking of info, an outstanding central info, education, & support source is Zyp Czyk’s* blog, “EDS & Chronic Pain” (https://edsinfo.wordpress.com/about/my-chronic-pain-story/). She’s got an amazing number of posts, all very useful & with smart commentary. You can search for just about anything on her blog & get terrific answers. She’s a brilliant & wonderful lady with EDS, so she really knows about pain.

*pronounced “Zip Chick”

I’m stuck in Oregon (God help me), the state that’s trying to pass every other with THE most insanely draconian opioid ban. The final vote is May 16th & I have zero hope that the task farce will divert their course. After the April meeting they talked about pain patients after we all had left & their discourse sounded exactly as bigoted, hateful, & condescending as it did 2 years ago when this farce started. You could change a few words (“chronic pain patient” for “[African-American]”) & they sound exactly like a Klan meeting talking about people of color. One supposed medical professional on HERC was giggling about how hysterical & irrational we are, & said she thought she should bring her husband to the meeting to protect her from us. I guess she thought we’d run over her with our wheelchairs, beat her up with our canes.

Pain management

Inadequate prescriptions for people experiencing chronic pain.

My doctors rather for me to have a heartattack or stroke than have problems with the CDC, which I am sure will eventually happen from the long term effects of inadequate pain treatment from chronic and severe pain. And when it happens, if I live, I’ll probably seek litigation against the State and the CDC, and any agencies that have used false data from substance abusers ( since if that really investigated, they would find out many, or the majority of addicts lied to protect their image and family ties, in regards to their addiction trail. Most use heroin, and heroin based drugs first, and not their parents pain meds.

Molly K Canfield

I can’t figure out how to sign the letter either!

Paula Frazier

The CDC and the FDA can say what we want to hear all they want but if nothing is done with the DOJ and DEA being bullies it’s a waste of time.

Quite frankly, I feel like they won’t stop attacking pain management doctors so long as they are allowed to abscond with assets even without convictions. As long as they keep attacking doctors patients will suffer. So whatever the CDC and FDA do is worthless unless the DEA and DOJ are reined in.

Molly K Canfield

Naomi
I have commented on a couple of the most recent columns for us and I’m in the process of educating myself about how we can hire an attorney. The first attorney I spoke to said that you cannot sue the federal government , that it has to be a private company or person (a for-profit). I feel like we’re at a very high wall. Everest, if you will. I see that you are suing specific doctors and want to know if you have any advice for how we as a large group might bring about litigation. Monetary gain is not our primary objective ( well some of us ) The point is we are being treated inhumanely, our civil rights are being violated and we are being tortured ! I know this is not news to you. please get back to me or us on this board. Any advice is welcome and appreciated. thank you much and soldier on.

Thomas Wayne Kidd

April Dawn I will try to find the things you need to get in contact with for Information. You can email me at this address. thomaskidd52@gmail.com

Thomas Wayne Kidd

I can report that my pain doctor has actually increased my daily dose by 5mg. And he actually took time to talk to me and listen to me. I spoke my mind in a quite and precise manner. I also showed him a copy of the Patients Bill of Rights. Which I think he wasn’t expecting. Anyway he saw at the beginning of our visit that I had done my home work. I encourage others to research these things and don’t be afraid to speak up, ask questions and remind your doctor that you know and understand that our rights have been violated multiple times concerning the Americans with Disabilities Act. I reminded my doctor of my perfect record over the 14 years coming there, and stated that they had broken most of the contract which I was required to sign when I came there. It will bring results. Fellow chronic pain sufferers don’t give up, it appears things are beginning to return to sanity in their treatment of us. Keep praying and walk in obedience to Jesus Christ if you are one of His. If not I highly recommend my Redeemer! Without Him I would probably be a suicide statistic. Have as good a day as possible. You friend. T. Kidd.

kim mccracken

my doctor in Indiana has started forced tapering . since he cut my pain meds I’m in more pain and feel like I won’t be able to walk because my back hurts and feels so weak. When i told him about it he didn’t care . told me if i wasn’t happy about it to follow up with my pcp for a referral to go else where .

Heidi, Seattle WA

April, it is the WA State Medical Quality Assurance Commission. They write the recommendations for prescribing and all things medical. They have several public meetings per year, some that allow public comment. State website will get you there. The site does pretty well informing what rule changes they are considering. I attended one last August, for rule changes, many members are aware of harms to CPP’S. I spoke directly to several after the meeting, and they mostly do not agree with dose limits. In WA, doctors are more threatened by Feds, esp DEA. So far, our states rules do give doctors more flexibility for prescribing than others. I really think the biggest problem with doctors is they are buying into PROP [edit], then blaming State regs. Even in Seattle area, VERY hard to find dwindling # of pain doctors willing to prescribe anything or accepting new patients. Had one doc, in 2017, spew PROP crap that my husband’s Oxy causes all his pain, treatment plan was to taper off all Oxy, then his brain would retrain itself and he would have NO MORE PAIN! I [edit] you not! His current doctor hates Oxy, wants to change him to methadone or morphine instead, which did nothing for his pain. We have to contend with the luck of the draw finding a doctor who listens to their patients! My husband currently on less than half dose of meds himself, but we still cannot find another doctor after more than a year of looking.
The WAMQAC does have rule-making every year or so, so keep informed! I was told by them that they do appreciate comments. Do find out the specific rules they are considering changing, then comment how that change will affect you.

Stacie Wagner

First I must share that on this very page is an advertisement for sublocade a once monthly pill for addiction. I’m in Arizona and we have had the DEA arresting medical community members for over prescribed medication continuing in the last week’s. Doctor’s here are terrified and so am I. I just had an appointment this week in which I was accused of having 2 extra days of my medicine per month. A ridiculously silly statement because my insurance will only allow my medicine every 30 days but I can’t argue or face the loss of the only thing that allows me to wipe my butt. Fear is my life beyond the agony. Fear I will be dropped by another doctor, fear I won’t have meds to make it through the day, fear of what I am emotionally doing to my family. This last year has been the worst year of 17 years of intractable chronic pain. I don’t have the energy to fight for anyone or anything. Because it can’t be me I’m in too much pain, too tired, too weak, too scared. And I know that the doctors here just don’t because they’re afraid of the DEA. The conundrum of society here in AZ is that they doesn’t take care of their sick and poor and call themselves Christians while they thump their Bibles at every turn for the right thing, which is very not necessarily the right thing but because they have their Bibles it must be true ( sarcasam implied please and thank you). And I really don’t know what else I can do to get a better outlook for chronic pain patients in the future I have called everyone I can but it’s hard do get out of my bed for more than a minute or two. So I very pathetically wrote this whining rant about what a weak ass [edit] I am now. So very sorry if you read this. Please ignore this if you can. Thank you all so much for being involved in this community of people who I know are truly remarkable!

Kim Quintero

The care for pain patients has declined so much that suicide has become the norm. Not all pain patients abuse opidiods. I have lost two friends in a pain group because of the righs for us to receive quality care from Doctors. The treatment of Doctors now is all of us are drug addicts. You are forcing people no other choice but street drugs or suicide.

KJq

My doctor now has to review once a year my meds. I usually see a PA. He has to hand prescription to me and only two days a week. This can mean days and at times a week with vacations forcing patients to skip doses to not be without . I’m betting it’s the beginning.
The attack is on those with need because abusers get illegally from over the boarder. Even tramadol is treated like a high level narcotic!

susan

I live in Florida. How do I find out about the changes here?

Robert

Hello April,
Go to the city of Seattle which after watching an hour long documentary about the “Death of Seattle” (local tv coverage), you will find the police do not even interfere with Heroin users injecting themselves on the streets. I also understand that Washington based Starbucks has a clean needle program for those who wish to enjoy their “H” with a good cup of “Joe”.
Something is radically wrong with a state that denies April proper pain management.

As for Michigan, nothing has changed in regards to opioid analgesics. Everyone is too excited over the use of Marijuana.

Cindy

April – All you need is access to the internet, which you clearly have. Use Google to find the names of your state senator and state representative — for that you’ll need your zip code —, and also the State Medical Board. Just Google terms like Washington State legislators or senate or house of reps, and Wash State Medical Board or Board of Medicine.

HOWARD

I TAKE TWO OPIOID DRUGS, MS-CONTIN 60mg 1x12hrs AND PERCOCET 10mg
1 TAB EVERY 6hrs FOR BREAK THROUGH PAIN. I WAS CUT ONE MS-CONTIN, I WAS ON 3 A DAY AND FUNCTIONED FINE, IVE BEEN TAKING THESE FOR OVER 20YRS. I HAVE 2 FAILED BACK SURGERIES, AND I HAVE DEGENERATIVE DISC DESEASE, IN MY LOWER LUMBER SPINE SO I WOULD LIKE MY MEDS TO BE PUT THE WAY THEY USED TO BE.

My husband and I live in West Virginia. We live in the northern panhandle and the doctors all over this state and surrounding states have completely fell apart over this guideline mess. Absolutely noone prescribes pain medicine for anything. The only way you can recieve help is if you have terminal cancer and even then its hard to get relief. My neighbor, God rest his soul, passed away last year from his 3rd bout of cancer. He was given only weeks to live but hung on for almost a year. And even he had to go once a week to the pain clinic for his less than adequate prescription of pain meds. Then once he was bed ridden, they had hospice come in. My husband broke his cervical spine a couple years ago at work. Has been through multiple surgeries and after his first surgery was when everyone decided to cut everyone off pain meds no matter how much pain they were in. He has had a second surgery since then with only one weeks worth of pain meds for after the surgery. My husband is 39 years old and bed ridden. He has almost no quality of life. He is in so much pain all of the time that i am breaking in half over it. I dont know what to do for him. And noone will help. We have 4 children and i have to take care of them and take care of him 24 hours a day by myself. And i even have no help with the autoimmune disorder that i suffer from. I am pushing and pushing so much that i fear one day i just may drop from a heart attack. This country is literally slowly turning into a communist country. I feel it is unconstitutional for the government to pry into anyones medical care. And then we have the gun grabbers as well. If we give up our 2nd amendment we have no other rights because we cant defend them. I am tired. I hurt not just physically but emotionally too for my husband and others that are suffering needlessly over this ridiculous “war on drugs”. Nothing ever works when you’re fighting the people who use to fight next to you on real issues. GET GOVERNMENT OUT OF HEALTHCARE!

Jeff

I live in Illinois and was recently told by my doctor I am maxed out that he can’t increase my meds when I loved to Southern Illinois from Indiana to get away from lake Michigan winters my pain management doctor there told me when he gave my my last prescription so I could get transferred here even though one of my main meds had to lowered by 10mgs and had to have generic since insurance will not pay for it I cannot afford the real stuff it’s almost a grand a month and now maxed out I am being forced to having injections every six months even though for the most part they are not worth much since I have had them for years yes they do help some but I don’t think they are worth the risk of being put to sleep being I have cauda equina I don’t have any choice that decision is made for me whether I agree or like it or not makes absolutely no difference at all it’s out of my control!
Patients have no rights or anything to say about their own health care anymore insurance and State makes these decisions and choices for us these are the facts we must face and deal with. My questions are simple when will the patient and doctor have any say about our health care care decision? When will patients have to stop suicide because of loss of pain control? I was just suicidal weeks ago because I couldn’t control pain. I am now on medications that make me sleep my life away I instead of pain control. Why even be alive when a person can only sleep twenty hours a day this is not life. I have real medical reasons absolute verifiable truthful, factual reasons backed by scientific proof with well over a dozen doctors in complete agreement this is my facts of life and pain will only continue to get worse until I take my last breath.
I THANK MY COUNTRY. MY GOVERNMENT, MY STATE FOR LETTING US DOWN AND SUFFER ON MY BEHALF AND MY FAMILIES I CAN ONLY HOPE YOU LAW MAKERS GET IN THIS SAME POSITION AND SUFFER WITH US MILLIONS OF LEGITIMATE PATIENTS! UNTIL THEN MAKE GOD HELP GIVE YOU COMMONE SENSE!

Dog

You cater to the junkie [edit] that CHOOSE to ruin their lives and then allow them to ruin others lives. Doctors are afraid to prescribe in fear of losing their license. People with chronic pain are the true victims. Dont get it twisted. And everyone in the decision making position should be ashamed of themselves.

Rosalind Rivera

What will the state of California do? Due to the tapering of my much needed pain medications, my life has almost completely come to a standstill. My trips are now confined to between my bed and the bathroom. Once a month I have the glorious please and liberations feeling of escaping my prison to go to my pain management appointment. There is never any release or even the tapering of my terrifying pain. I wake several times every single night due to pain therefore I am always in a continuous state of exhaustion and mental foggiest. The mornings are excruciating as are the end of each and every single day. I sincerely believe that my death has been hastened. How long can a human being exist under this condition. I completely understand why other pain sufferers such as myself seek alternative means to alleviate their agony and why other seek the final way out!
Rosalind Rivera
Lucerne Valley, Ca.

Gail Honadle

Start with the Legislators on the State Health Commission, Governor, Leaders of both Houses. Send them copies of the CDC/FDA reports. Statements from your doctors, list your health conditions, and how the Forced Tapers has impacted your life. I know the quality of my life has declined to the point I can’t use the tub, slow walk the grocery story, I now need an electric cart. I have to lift my leg into the car and hold on until I’m steady on my feet. I’ve had to stop after a isle in the grocery store and take a Pheregan pill to stop from puking the pain level is so high, BP hits Stage 4 and with Gastro issues most BP meds the ones they FDA has not recalled for Cancer, there was another 1 yesterday don’t like my GI Tract.

Karen Messinger

Why keep putting all the blame on physicians for anything that has to do with the phony prescription opiod crisis? They were blamed for over prescribing which caused the crisis. Bull. The oxycontin for one, was already on the streets before a prescription was written due to thefts from the pharmaceutical company, something CDC doesn’t talk about or want you to know.
Then the pill mills were allowed to go on. Nobody it seems could do a thing about it until the states hit hardest economically were flooded.
Now drs are being blamed again for tapering too fast. Gee, I wonder why? Could it be too many were afraid of writing even one script & losing their licenser to practice or lose their ability to even prescribe a Tylenol? They need to chain up the DEA & make the DEA do the job they are supposed to do – go after the real drug dealers. Also, take away the freebies DEA gets after every bust. Dr’s work hard & long for their money . For the DEA busting a Dr is easier & most likely more lucrative financially than drug dealers.
This whole thing was fabricated & now we have drug use really on the rise & it sure isn’t prescription opiods. Has anyone really wondered why it’s only the people in pain that this phony crisis is hurting & nobody is listening?

Mona Mallory

April Dawn – Here are the numbers for the Washington State Department of Public Health 360-236-4501 or 800-525-0127. Hope this helps and praying for things to get easier for you.

Gary Raymond

There are too many cooks in the kitchen! Illegal activity has been driving the persecution of the chronically ill. Each of the 50 States is inventing a unique way to torture their innocent victims. When is someone going to come up with the criteria that declares the “Opioid Crises” is over? Who throws down their weapons, removes the axes hanging over the doctors’ heads, and presents a white flag? Cerecloths do not count as flags…

mist

I blame the CDC guidelines and PROP witch hunt they have no clue and do not care the HARM and chaos they have created please feel free to share my comment…….
Wisconsin has become Hell on earth for many in my area,,, A VA doctor got accused of over perscribing and Gov took over what Gov is unaware of the trickle effect and the 5 degrees of seperation
a relative distant VA vet Cancer shot gun death
my daughter’s half brother had bone and muscle diseases that were constant pain zero treatment he feel asleep behind the wheel /age 23 dead.
mother and her son both suffered migrains both took their lives Skylar age 21 shot gun and mom a month later took pills and alcohol..
Mark P shot gun death a abandoned patient crippled by Lyme’s worked with my hubby
MY best friend of 25 years she worked for 31 years at Torro Muscular Dystrophy a progressive type .was refused pain meds,except 2 10mg hydrocodone per day , fell broke her hip sent to nursing home for 3 months took her own life same day she came home left a 15 year old daughter .the summer before her husband died from cancer. Her 15 year old daughter has the same progressive MD opioid ‘s need fixed .her mom came out of her own pocket thousands of dollars to get her daughter tested medicade doesn’t genetic test …
2 of her brothers have same type muscular dystrophy VA vet her older brother abandoned by VA accused of being a addict and over dosed after turning to herioin .found in his house weeks after he died.
Her younger brother MD also heroion addict .
Patient’ s that were chronic pain patients are the new heroin addicts in my area ..I know several

April Dawn

I live in the state of Washington. Since the forced tapering my life has become a living hell beyond anything I ever imagined – my life was hell before the forced tapering but at least I had some pain relief on a regular basis – not all of it – or enough to come close to giving me my life back – but enough to allow me some quality of life. I have no idea how to contact the right people for Washington state – state medical board – and no ability to research. Could someone please help me find who and how to contact them?