(We’ve received many comments from readers of the National Pain Report about the need for advocacy. Some have been stories about their own challenges. Here’s one we thought you might find interesting)
My name is Deborah Lynn Molitor and I live in Port Huron Michigan. I need Your help in knowing what to do because these little town Doctors keep saying my case is way too much for them to handle that I need to go to the City of Detroit? how do I go about that. Yes, I am very Sick and will list some things to help you give me some advice. I am ready to give up as I cannot even feed myself nor bathe myself. here are a few things below. My Days are Praying to get out of some Pain and the pain is to unbearable to even Live a somewhat normal Life and I know if I don’t do something I will Die from not being able to control these stress induced Seizures or my High Blood Pressure.
How do I find a Doctor that will help get me out of a Little bit of PAIN? I have a lot medically going on and my will to Live is giving out more and more Every Day. :(.
I have Spedo Tumor Ceberi and have had 37 shunt Revisions and I have been struggling with my health & PAIN most my life but two years ago I thought I was doing well, but then it’s like it all came back with vengeance last year I started getting unbearable back and neck and leg pain so I went to my primary and she ordered a x ray and a Cat scan which revealed Canal Stenosis, Spondylosis, Scoliosis & Severe DDD and severe disk bulging all over my spine about 4 other spine diseases then my blood test come back WBW 18,000 and that has not changed so there looking for an auto immune or cancer?
It seems that every specialist I see has found something Life Threatening–Heart Failure, Kidney Failure and Liver Failure and the big one Lung Failure.
I have Pulmonary Hypertension and 75% of my Diaphragm is Paralyzed and My Pain is so bad in my neck, back and Head and legs and I can’t sleep and most of the time I pray to Die!!!
My Pain Doctor seems to think anything over 3 Percocet 10mg does not help.
I can’t go on like this can someone tell me what I can do??
My Symptoms are Head pain like out of this world and numbness , hard time speaking and memory, poor motor skills in my hands and arms and legs, there are so many so I typed Low Laying into google and bam there was all my symptoms under Chiari Malformation ??
Could someone PLEASE tell me who I can call to tell my story or get help.