The National Pain Report believes strongly that the voice of the chronic pain patient needs to be heard.
That’s why we wanted to bring your attention to an important survey that is being circulated.
It’s aimed at people who have Complex Regional Pain Syndrome (CRPS), a condition that is poorly understood and difficult to treatment.
The pharmaceutical company Grünenthal, a company working to develop new solutions for patients suffering from pain-related diseases, has worked together with CRPS patient groups to create this survey.
“In order to truly comprehend this poorly understood disease, we need your help - and hope you will share your CRPS experience from diagnosis to current day. We believe this survey will greatly contribute to better therapies and quality-of-life outcomes,” said Cynthia Toussaint who is Founder and spokesperson For Grace, a non-profit that deals with issues on women in pain.
For Grace is one of several pain groups that has partnered with the Company.
The aim of this research is to gain the patient perspective around CRPS and is not intended to be promotional. We will comply with all federal laws protecting your personal data. All answers you give will be anonymized and will only be reported combined with other respondent’s data, so there is no information that can identify you. Anonymized results will be shared with Grünenthal and used by both CRPS patient groups and Grünenthal for research purposes.
“We hope your answers can guide and sensitize Grünenthal and other pharmaceutical companies to the experience of living with CRPS as they develop new therapies for those with CRPS and other pain syndromes,” said Jim Broatch, who heads the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA),which provides support, education, and hope to all affected by the pain and disability of CRPS/RSD, while we drive research to develop better treatments and a cure.
To take the survey—which will take about a half hour, click here.